Convener

*Duncan McNeil (Greenock and Inverclyde) (Lab)

Deputy convener

*Bob Doris (Glasgow) (SNP)

Committee members

*Mark McDonald (North East Scotland) (SNP)

Aileen McLeod (South Scotland) (SNP)

*Nanette Milne (North East Scotland) (Con)

*Gil Paterson (Clydebank and Milngavie) (SNP)

*Dr Richard Simpson (Mid Scotland and Fife) (Lab)

Drew Smith (Glasgow) (Lab)

*David Torrance (Kirkcaldy) (SNP)

The following also participated:

Marion Ferguson (Ivacaftor Patient Interest Group)

Joan Fletcher (Association for Glycogen Storage Disease (UK))

Professor Keith A A Fox (University of Edinburgh)

Professor Tim Goodship (Newcastle University)

Nancy Greig (Health and Social Care Alliance Scotland)

George Grindlay (Health and Social Care Alliance Scotland)

Professor Peter Hillmen (PNH Alliance)

Alastair Kent (Genetic Alliance UK and Rare Disease UK)

Lesley Loeliger (PNH Alliance)

Richard Lyle (Central Scotland) (SNP) (Committee Substitute)

Ian Mackersie (aHUSUK—A Patients and Families Support Group)

Professor David Newby (NHS Lothian and University of Edinburgh)

Dr Mark Eldon Roberts (Salford Royal NHS Foundation Trust)

Len Woodward (aHUSUK—A Patients and Families Support Group)

Clerk to the committee

Eugene Windsor