Chamber and committees

The Scottish Government published the Scottish Strategy for Autism in 2011. This was a 10 year strategy which ran until 2021.

In March 2021, we published our Towards Transformation Plan as a follow-on to the Scottish Strategy for Autism and the Keys to Life Learning Disability Strategy. The Plan seeks to shape supports, services and attitudes to ensure that the human rights of autistic people and people with learning/intellectual disabilities are respected and protected and that they are empowered to live their lives, the same as everyone else.

We continue to work on delivering the action in our Towards Transformation Plan and also, are currently consulting on proposals for a Learning Disability, Autism and Neurodiversity Bill which will inform future strategies for neurodivergent communities, including autistic people.

The Scottish Government is committed to improving care for people with chronic kidney disease through a number of activities which are aligned with the recommendations set out in Kidney Research UK’s Changing the Future for Chronic Kidney Disease in Scotland report, published in December 2022 with input from Scottish Government clinical advisors and partners.

We are raising awareness of the symptoms, causes, diagnosis and prevention of kidney disease by providing and promoting information on chronic kidney disease for patients and their families on NHS Inform .

Our Donation and Transplantation Plan was published in 2021 and sets out a dedicated priority to increase living donation and reduce the wait for a kidney transplant. This includes a number of recommendations to improve care, including developing resources and information to promote living donation , changing clinical practice in renal units, increasing direct engagement with patients and their families, and developing new guidance on staffing to support living donation.

We also continue to support the work of the Scottish Renal Registry which promotes excellence in renal care in Scotland including audits on the delivery of renal replacement therapy. The most recent report from the registry was published by Public Health Scotland in October 2022 and provides vital information for Health Boards, service managers and individual clinicians to improve care and standards for people with chronic kidney disease.

We recognise the importance of early detection of kidney disease in preventing the progression of chronic kidney disease and its associated complications. We expect NHS Boards to adhere to current guidelines on the diagnosis and treatment options from authoritative sources such as the National Institute for Health and Care Excellence (NICE) and the UK Kidney Association (UKKA).

In Scotland we are at the forefront of using service and performance data to improve care and diagnosis of kidney disease. This includes the work of the Scottish Renal Registry which reports on patients receiving renal replacement therapy and promoting excellence in renal care in Scotland through best practice audits.

The National Cancer Quality Steering Group (NCQSG) has responsibility for the development and oversight of tumour specific national quality performance indicators (QPIs) to measure the quality of care for patients, this includes a set specifically for renal cancers.

We have also invested in research which is intended to inform new approaches for earlier diagnosis of kidney disease through the Scottish Chief Scientist Office: Kidney function and cancer risk: An analysis using creatinine and cystatin C in a cohort study (nih.gov) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8413238/ .

Social Security Scotland works with individuals and disability organisations to design services so that everyone who may be eligible for benefits understands how they can apply for and receive them.

Clients can apply in ways that suit them best either by paper or online application, by telephone or they can receive application support from our Local Delivery team who can arrange a face-to-face appointment in a client’s home, a community setting or video call.

We have tested every stage of the application process with people and are committed to making adjustments based on feedback.

Social Security Scotland is committed to continuously improving to deliver benefits for the people of Scotland based on dignity, fairness and respect.

The Scottish Government have been clear that any Investment Zones here must be a good fit for Scotland’s policy, economic and governance landscape; be well aligned to our National Strategy for Economic Transformation, our approach to regional economic policy, and our recently published innovation strategy, and; be taken forward jointly by the Scottish and UK Governments, and in close partnership between government and the relevant Regional Economic Partnerships.

In the lead up to the introduction of "Frank's Law" in 2019 there were a number of discussions between Scottish Government officials and stakeholders which covered all aspects of the legislation. At the time of its introduction the Scottish Government issued advice in the form of a Questions and Answers brief which can be found at:

Free personal and nursing care: questions and answers - gov.scot (www.gov.scot)

In terms of funding, it was first distributed in the 2019-20 Local Government settlement and then baselined in 2019 it included £29.5 million is to support expansion of Free Personal and Nursing Care for under 65s. With effect from 1 April 2021 the £29.5 million funding was merged into the overall local government finance settlement block grant and as such individual local authority allocations are no longer separately identifiable.

The draft budget for this year is still under consideration while we respond to wider Health and Social Care budget pressures. The proposed allocation for the Technology Enabled Care programme in 2023-24 is circa £8m.

The Scottish Government is not a delivery partner on the Learn to Swim programme and as such, we do not hold this data . This programme is a partnership between Scottish Water and Scottish Swimming, to support a new generation of children to become safer, happier, and healthier through the delivery of the Learn to Swim lessons. Information relating to the programme is held by Scottish Swimming.

However, we are working with Scottish Swimming, Education Scotland, sportscotland and Scottish Water to develop interventions and approaches to provide opportunities for children to become confident, safer and competent swimmers. This includes the delivery of 4 small scale school swimming pilots to better understand how to provide opportunities for children across Scotland to experience the water in a fun, safe and inclusive approach.

The initial discovery work identified that in addition to a new national approach to Radiology Information Systems being required, there was a range of additional improvements that could be made to diagnostic services across Scotland if a more strategically consistent approach to the provision of digital technology was taken. As such, work on a standalone approach to RIS has been paused and a new Digital Diagnostics Steering Group established to explore options for future investment in national digital infrastructure to support diagnostic services within the current fiscal framework.

The information held in the National Clinical Data Store (NSCDS) currently contains data on vaccinations and anticipatory care plans (ReSPECT) and forms part of the patient’s clinical record. NCDS is interoperable with other core systems and supports our ambitions of ensuring that information is available to staff when and where they need it.