Chamber and committees

I announced on 15 January that fares on the Northern Isles and Clyde & Hebrides ferry networks will be frozen for six months.

Building on the 3 month freeze I announced in early November, ticket prices will be held at current levels until the end of September to help people and businesses in both Shetland and Orkney.

With the fares confirmed, Serco NorthLink Ferries will imminently be opening their bookings until the end of September.

I refer the member to the answer to question S6W-13225 on 13 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

The Scottish Government has had no discussions with the UK Government regarding any poor customer service processes and response times at the Medicines and Healthcare products Regulatory Agency. No businesses have raised any concerns with the Scottish Government on this matter.

As committed to in the National Workforce Strategy for Health and Social Care, we have been undertaking a data collection exercise to inform future decisions about workforce investment. This work is being led by the Scottish Cancer Network, which is engaging with local boards and professional representatives.

A final report, including recommendations, will be provided to the National Oncology Taskforce in the first quarter of 2023. The Taskforce is made up of NHS Board Chief Executives and Medical Directors, and will seek national solutions to ensure the longer term resilience of oncology services in Scotland.

Our National Workforce Strategy for Health and Social Care supports the remobilisation and recovery of health and social care services and sets out priorities for recruitment, training and retention. We anticipate that the Strategy will be used by workforce, service and financial planners across Health and Social Care at all levels.

Through this Workforce Strategy, and the NHS Recovery Plan, we are investing in staff so that they have the right skill mix and career progression opportunities.

Through our National Advisory Committee for Neurological Conditions, we are identifying priorities to strengthen the neurological workforce alongside the National Workforce Strategy, Remobilisation Plans and Rehabilitation Framework. We have scoped neurological workforce priorities and work has commenced to address these with a focus on nursing, allied health professionals (AHPs), neuropsychology and neurophysiology.

A Transforming Roles paper on Clinical Nurse Specialists (CNS) was published in 2021. Through the Centre for Sustainable Delivery, an expert group has been reviewing how existing CNS competencies for neurological conditions such as epilepsy, multiple sclerosis, motor neuron disease and Parkinson’s align to Transforming Roles with a view to identifying challenges or barriers to accessing training to develop and sustain this workforce.

We are testing with NHS neurology services in the West of Scotland, a workforce capacity planning tool for Allied Health Professionals that has been developed through the Healthcare Improvement Scotland Excellence in Care programme to help ensure staffing levels are in line with safe staffing legislation. An AHP Education & Workforce review has been completed with recommendations from that review being published early this year. Thereafter work will commence on an implementation plan.

We are undertaking work to better understand specialist service provision for people in Scotland with neurological conditions, through which we aim to develop an approach to ensure reliable information and workforce data is available and informs actions.

This will consider existing roles, specialities, subspecialties, and developments in advanced Health Care Assistants, key workers and third sector speciality regarding neurological care. The process will also align with relevant commitments from the Neurological Framework, Transforming Roles agenda and the National Workforce Strategy.

ScotRail is committed to becoming a menopause friendly employer and has delivered “Let’s Talk about Menopause” training to its Executive Committee and eighty of its senior leaders.

ScotRail designed and delivered training for colleagues in ScotRail and the wider UK rail industry to celebrate World Menopause Month in October 2022 and has plans to offer Train the Trainer sessions with other ScotRail staff. ScotRail’s aim is then to roll out a programme of menopause awareness training across the organisation.

Applications for the Menopause Friendly Accreditation (MFA) are open four times each year and ScotRail’s Equality, Diversity and Inclusion Manager is currently in the process of collating evidence to submit with its audit survey which ScotRail intends to do by end February 2023.

Public-facing information about neurological conditions is being developed for the NHS Inform website, to support education and self-management.

New or revised pages have been published on Functional Neurological Disorder, Multiple Sclerosis, Huntington’s Disease, Transverse Myelitis, Migraine, Myasthenia Gravis, Post-Polio Syndrome, Epilepsy, Motor Neuron Disease, and on eight types of Muscular Dystrophy. Further pages currently in development include Cerebral Palsy, Ataxia, Tourette’s Syndrome, Multiple Spinal Atrophy, Parkinson’s Disease, Dystonia and Progressive Supranuclear Palsy.

Through the Neurological Care and Support – a National Framework for Action 2020-25 , we have funded a number of projects which have developed or are developing information to support people to better understand their neurological conditions. I further refer the member to the Neurological Care And Support: A Framework For Action 2020-2025 – Midpoint Progress Report , which was published on 13 July 2022 for further detail.

We welcome the report by Kidney Research UK and commend its work to support people with chronic kidney disease in Scotland. A number of Scottish Government clinical advisors and partners participated in the roundtable which informed the development of this report.

The Scottish Government is committed to improving care for people with chronic kidney disease through a number of activities which are aligned with the recommendations set out in Kidney Research UK’s report. We are raising awareness of the symptoms, causes, diagnosis and prevention of kidney disease by providing and promoting information on chronic kidney disease for patients and their families on NHS Inform .

Our Donation and Transplantation Plan was published in 2021 and sets out a dedicated priority to increase living donation and reduce the wait for a kidney transplant. This includes a number of recommendations to improve care, including developing resources and information to promote living donation , changing clinical practice in renal units, increasing direct engagement with patients and their families, and developing new guidance on staffing to support living donation.

We also continue to support the work of the Scottish Renal Registry which promotes excellence in renal care in Scotland including audits on the delivery of renal replacement therapy. The most recent report from registry was published by Public Health Scotland in October 2022 and provides vital information for Health Boards, service managers and individual clinicians to help improve care and standards for people with chronic kidney disease.

I refer the member to the Neurological Care And Support: A Framework For Action 2020-2025 – Midpoint Progress Report , which was published on 13 July 2022. This report provides an update on the progress under each of the five aims in the Neurological Care And Support: A Framework For Action 2020-2025.

Specifically, page 13 of the report details a project we funded to develop principles of good transition across the lifespan of people with neurological conditions, using a range of methodologies.

More widely, Scottish Government will introduce Scotland’s first National Transitions to Adulthood Strategy in this Parliamentary term to ensure there is a joined-up approach to supporting our young people with disabilities as they make the transition to adult life. The scope of the Strategy will be developed through engagement with people with lived experience of transitions in all areas of life, including health care. We will begin progressing external engagement on the Strategy in early 2023.

In 2022-23 we supported the Neurological Alliance of Scotland (NAoS) to produce three information resources to support key workers and carers to guide people with neurological conditions to access Self-Directed Support (SDS).

The resources have been produced in conjunction with Self-Directed Support Scotland and are designed to raise awareness and understanding of SDS amongst three groups who are in a position to support people living with a neurological condition to access it: health and social care professionals, voluntary sector workers, and parents/carers of children with neurological conditions.

The resources were published by the NAoS in January 2023 at www.scottishneurological.org.uk and comprise:

• Self-Directed Support for adults: Information for Health and Social Care Professionals
• Self-Directed Support for adults: Information for the Voluntary Sector
• Self-Directed Support for children: What to Expect - Information for Parents