Chamber and committees

We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

This includes ensuring that women have access to care that adheres to the most up to date practice guidance. The endometriosis care pathway for NHS Scotland supports healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis type symptoms.

However, data on the percentage of women diagnosed with endometriosis currently receiving multidisciplinary care is not available.

In addition to funding to support the expansion of access to diabetes technology already announced in the financial year 2024-2025, the draft Budget for 2025-2026 contains funding to support continued policy development various for long term conditions. We will always give careful consideration as to whether additional policy development is required for any condition, including chronic kidney disease.

More broadly, the draft Budget delivers a record £21 billion investment in health and social care, including core funding to NHS boards to deliver services. NHS boards have responsibility for deciding how to use this core funding to deliver services locally based on the needs of the people in their area, including people living with chronic kidney disease.

The Retail Industry Leadership Group, co-chaired by myself and Polly Jones, Senior Manager, Corporate Affairs, Asda, is in the process of finalising a refreshed Terms of Reference (ToR) to better reflect the ongoing work of the Group. All members have had the opportunity to provide their views on this process, including a discussion on the ToR at an ILG meeting on 06 November 2024. The revised ToR, which now includes a redrafted line highlighting that the Group will promote the interests of businesses in all their sizes and formats, is expected to be published on the ILG gov.scot page in early 2025.

The Best Start (2017) recommended that all neonatal facilities should provide emergency overnight accommodation on the unit for parents, with accommodation available nearby for parents of less critically ill babies. We have no plans to introduce guidance on the number of parent beds that should be available in each unit.

We are currently working with Regional Chief Executives and Regional Planners who are leading on development of plans for implementation of the new model of neonatal care, with the expectation that a phased transition to the new model will begin later this year. Accommodation is part of Board’s planning under the new model of neonatal care implementation.

The Best Start (2017) recommended all neonatal facilities should provide emergency overnight accommodation on the unit for parents, with accommodation available nearby for parents of less critically ill babies. Boards are expected to include provision for this in their planning.

We also provide support to all families with babies in neonatal care to cover the costs of food, travel and accommodation as part of our Young Patients Family Fund.

Hospitals with the neonatal intensive care units have accommodation for families on site, and this will be offered to families in the first instance. If hospital accommodation is not available, the Health Board will usually be able to book and pay for nearby accommodation for families in advance.

Data on the amount local authorities spend on reading books is not collected centrally. The delivery of education is devolved to local authorities and funding is provided to local authorities via the “block grant”. Each local authority will have their own approaches to funding school reading materials, which will vary according to local needs and resources.

The Scottish Government has supported the development of The Endometriosis Care Pathway for NHS Scotland which aims to support healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms. All NHS Boards should be taking steps to implement the pathway.

To support health care professionals to improve their knowledge and understanding of endometriosis NHS Education for Scotland (NES) has been commissioned to create a bespoke training package and framework focussed on menopause and menstrual health, which includes endometriosis, for healthcare professionals in Primary Care.

The Scottish Government has also worked with NHS Education for Scotland to deliver an endometriosis masterclass for health care professionals across Scotland on diagnosis, treatment and current research into endometriosis.

Additionally, through the NHS Inform Women’s Health Platform, we have made a range of information on endometriosis available to women online. This has included the Endometriosis UK Pain and Symptom Diary as well as access to a self-help tool on periods and mental wellbeing.

A menstrual health symptom questionnaire has also been developed by NHS Education for Scotland and is available through the TURAS platform for healthcare professionals to share with women. It will also be available for women to access directly via the NHS Inform Women’s Health Platform shortly.

We have no plans to establish a national advice helpline for people with endometriosis.

Through the NHS Inform Women’s Health Platform, we have made a range of information on endometriosis available to women online.

This includes signposting to peer support groups and organisations such as Endometriosis UK who operate a free, confidential helpline run by trained volunteers who have a personal experience of endometriosis.

There are also national helplines including 111, Breathing Space and The Samaritans for anyone who is struggling and needs someone to talk to.

Through the NHS Inform Women’s Health Platform, we have made information on a range of health topics available to women online and in one place. Connections have been made throughout the platform with content on menstrual health symptoms, like heavy menstrual bleeding, linking to more information on possible causes, such as endometriosis, helping to raise awareness of the condition and supporting women to access the information they need when they need it.

As of December 2024 there have been:

• Almost 65,000 users on the life sections
• Over 986,000 views on the Periods pages
• Just under 3.2 million views on the Menopause pages

More information about the Women’s Health Platform can be found in the Women’s Health Plan Final Report.

All health professionals should consider the mental health and wellbeing needs of their patient as part of their care and a support.

The Endometriosis Care Pathway for NHS Scotland aims to support healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms. This includes advising practitioners to assess women’s individual support needs, taking into account their symptoms, priorities, desire for fertility, aspects of daily living, work and study, cultural background, and their physical, psychosexual and emotional needs.

Through the NHS Inform Women’s Health Platform, we have made a range of information on endometriosis available to women online.

This includes signposting to peer support groups and organisations such as Endometriosis UK who operate a free, confidential helpline run by trained volunteers who have a personal experience of endometriosis.

The platform also hosts a range of content on mental health with several self-help guides to help people manage their mental wellbeing including a menstrual health and mental wellbeing self help guide and another to support those living with chronic pain. There is also signposting to national helplines including 111, Breathing Space and The Samaritans for anyone who is struggling and needs someone to talk to.

We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.