Adults with Learning Difficulties<br />(Provision of Services) (PE743)<br />“The same as you? A review of services for people with learning disabilities” (Implementation) (PE822)
“The same as you? A review of services for people with learning disabilities” (Findings) (PE881)
The first current petitions are PE743, PE822 and PE881, which are on the Scottish Executive's "The same as you?" policy. At its meeting on 21 September 2005, the committee agreed to seek the views of the Deputy Minister for Health and Community Care on PE881 and to link it with PE822 and PE743. The committee also agreed to invite Executive officials to update the committee on the implementation of "The same as you? A review of services for people with learning disabilities" once comments had been received from the petitioners on previous responses.
The four of us will make a presentation to provide the update.
We are more than happy to hear that.
Thank you for the opportunity to provide an update on the progress that is being made to implement "The same as you?" I will introduce the team briefly. I head the adult support and protection unit, which takes the lead on the work; Bette Francis is my deputy; Jenny Pickthall is the policy officer on learning disability; and Peter Stapleton works in the carers branch. We thought that collectively we would cover the territory more effectively.
I will focus initially on the hospital closure programme. The closure of long-stay hospitals was one of the specific recommendations with a target date in "The same as you?" Early in our hospital reprovision work, we realised that not all boards would meet the target. At the last return of figures from the remaining six health boards, 194 people were still in long-stay hospitals. The Minister for Health and Community Care wrote to national health service boards last year and issued an updated report on hospital closures. At that point, there were 312 long-stay patients, so there has been a shift, although a lot of work remains to be done.
I will provide a brief overview of continuing national work. The national implementation group has set up a task group to consider how the implementation of the recommendations of "The same as you?" have been or will be affected by changes in supporting people funding. The task group's work will inform the on-going evaluation of supporting people funding, particularly with regard to the effect on learning disability services. The group aims to take its findings back to the implementation group and relevant ministers.
I will say a few words about carers policy and the Executive's response to the care 21 report "The Future of Unpaid Care in Scotland", which Rhona Brankin mentioned last year in her letter to the committee on these petitions.
That concludes our presentation. We are happy to clarify any points and take any questions.
Thank you for taking the time to give us that very comprehensive update. I will now open up the discussion to members' questions. We will go first to Jackie Baillie, who is champing at the bit.
I was going to out myself as the convener of the cross-party group for learning disability, but that was done for me before I could. I am not sure whether I am required to declare my interest formally. If so, consider it done, convener.
That is us.
There may be a resource issue. I am interested by the fact that, given that some time ago the cross-party group was shouting about performance indicators, five years in we are only discussing those, if I understand you correctly. What monitoring do you do? How do we ensure that partnership in practice agreements are not variable? We know that at the moment they are, because we have seen some of them. Some are excellent, but some could do with extra work. How do you know that your money is being spent? I can report to you that, irrespective of the supporting people programme, some local authorities are reducing the services that they provide to people with a learning disability, as is the case across the board. That is not anecdote but fact. We want to help you. You can blame us for the situation, but we think that you need a very robust monitoring framework.
I am sure that I speak on behalf of the team when I say that we are gratified by the fact that Jackie Baillie views the policy so positively. Like her, we consider ownership by users of the service to be critical. If we do not have the people who use services alongside us, our policy as a whole will be empty. We recognise what she says about the variation across Scotland in the success of the policy to date. She will acknowledge that, with 32 recommendations, we must prioritise. We have done so in the way that I have described in the reports that we have undertaken to date. We have sent those more detailed reports to all local authorities and health boards, in the expectation that they will be used as blueprints for implementing policy at a local level. We see that as critical.
I do not wish to prolong the meeting, but I would be happy to respond to that just now. However, perhaps the convener would like me to respond later.
If we have time, I will let Jackie Baillie offer her suggestions at the end.
I join my colleagues in welcoming the presentation that we have heard this morning. I associate myself with the positive remarks that Jackie Baillie made about the national implementation group's work, which I believe is important. I believe that the policy direction is absolutely right.
If Helen Eadie does not mind, I think that her question would be better answered by Bette Francis, who has done some direct work on costings.
The formula for supporting people is not managed by the implementation team, but we work with colleagues in the Executive who take forward the supporting people agenda. Although we have representation on the task group and we are examining costings, I am afraid that I cannot answer questions specifically on the supporting people formula. Obviously, I can ask colleagues from the supporting people team to answer those.
On monitoring, which Jackie Baillie mentioned, I think that the reason why we have had such good feedback is that people are comfortable. However, there have been concerns and perhaps even some criticisms. The two main issues on which people gave feedback were that there was no real monitoring of services and that local authority provision can be a postcode lottery.
If that was all that we did, it would not be sufficient, but we do other things as well, such as our work on the national implementation group and the statistical return, which is quantitative rather than qualitative. We take part in a number of activities on our priorities. It would be difficult to ask local authorities and health boards to do monitoring more often than every three years.
I am sure that Jackie Baillie and the cross-party group will bring forward any evidence that comes to light. A number of individuals have come to me about lack of service provision, so perhaps I will pass that information on to the group.
In all our policy areas, we do such work routinely when we get representations from members of the public or from voluntary organisations. If we receive correspondence of that nature, we respond to it. If we had sufficient concerns, we would go out to talk to people. Bette Francis mentioned hospital closures. We knew from the quantitative data that the targets were not going to be met but, in addition, a number of people said that they were not satisfied with the degree of progress in particular areas. As a result of that, the minister asked us to go out on a series of visits. That led to the quarterly returns, which Bette Francis described. We will do further visits to those six areas so that when an issue comes to the fore, we will assess it and address it as appropriate and with the minister's approval.
That is comforting. You said that you do not have a great deal to do with the supporting people fund.
A different team in the Executive deals with that.
It is handled by employment and education staff. We know that there are cutbacks in the supporting people fund, which is a reserved area of policy. How much input does your team have to the relevant team in the Executive? Can it make an input into Westminster about the moneys that have been allocated? There is a dearth of services and people are extremely worried that they will no longer receive services when the supporting people fund is reduced or stopped.
At the moment, there is one member of that team who is on the group that Bette Francis described, which is examining the different pots of money that are available. She informs us about what the intentions are in relation to supporting people as she becomes aware of what the impact may be for people with a learning disability. Above that level, my division head is in discussion with the division head who heads up the supporting people team on the issue so that we will know at an early stage what the impact will be in each of the coming years.
Thank you for the quality of your presentation, which must have taken a long time to put together. Your commitment to the issue is welcome and I am totally behind it. I suspect that you might have just answered my question, but I will try to spell it out in words of one syllable. I am concerned about the long-term affordability of the more complex care packages for the 194 people who, according to you, are still in hospital. From experience in my constituency, I presume that the cases that have not yet been resolved are the more complex ones. Can you assure me that the funding that will be required to resolve those cases will be put in place? I would be happy to take your assurance. I would also like to know about the long-term position.
Before the witnesses answer that, I will come in, because I was going to ask a similar question. We are down to smaller numbers, as John Scott says. In my constituency, there is a hospital that is closing and has only a handful of service users. If a dispute arises between the advocacy team in the hospital and the service user and their family about the package that the social services department in the area has devised, how can the issue be resolved? It is difficult to use one individual case to highlight a wider problem but, if it can happen in one case, it could happen in others that the social services department is forced to provide an inappropriate care setting because that is more cost efficient. How would you make a policy intervention on such a decision?
We tend not to get involved in individual cases, as you appreciate. Local authorities largely make their own decisions about the use of resources and social services departments tend to lead in decision making about individual cases.
I agree with the convener, because there is a similar set of circumstances in my area. It is difficult to site a generality on a specific instance, but the convener has said something similar. More and more of the responsibility for providing the care package is being transferred from health authorities to local authorities through their social services departments. With the best will in the world, health authorities apparently have more money than local authorities, which seem to be short of money throughout Scotland. Is that a long-term problem? You are not intervening at the moment, but do you not have concerns about the long term?
We do not regard it to be a long-term problem, as we have gone from several thousand people being in long-stay hospitals down to 194. We are concentrating on that number through the NHS QIS work that Bette Francis described, which lists the hospitals that currently have people in them and when their closure dates are. We followed that work up with visits to get the lie of the land in each hospital; we now have quarterly returns and will visit again. Through that process, we will better understand the detail in respect of that group of fewer than 200 people. We will continue to focus on that until we resolve the issues for what is a relatively small number of people in comparison to the several thousand people who were in long-stay hospitals five years ago.
Before we discuss recommendations on what to do with the petition, I think that Jackie Baillie wants to ask another question.
I do not have another question, but I am happy to start the recommendations, to try to be helpful to you, as I always am. I am conscious that helpful bits of work are going on, including work that the Scottish Consortium for Learning Disability is doing on the impact of "The same as you?" alongside people who have a learning disability. That is helpful and interesting work, although I do not know when the report will be produced. I recommend that we keep all three petitions open. The officials gave an explicit invitation to the cross-party group for learning disability to comment on the monitoring framework and implementation. As the officials may regret making that explicit offer, I will take it up before they can withdraw it.
I do not think that we will regret that—it is partnership working.
I am conscious of the primacy of the parliamentary committee, convener, but would it be possible for the cross-party group to do that work and then report back to the Public Petitions Committee? Perhaps then, if we are successful, which I am sure we will be, we can close the three petitions. Until then, can we keep them on the table?
We have written to cross-party groups before to ask for their perspective on issues. Your suggestion is not inappropriate. It would be welcome to hear from the cross-party group as part of our consideration of the petitions. I hope that we will keep the petitions open so that we can continue our dialogue on the issues that they raise.
I support Jackie Baillie's proposal, but I have one question for the witnesses. In the Scottish Parliament and the Public Petitions Committee, we are always careful not to suck up power from local authorities and we try not to criticise them, because we acknowledge their decision making and authority. However, I would like to get a feel from the witnesses about the extent to which the funding for local authorities on the issue should be hypothecated. Do you have a sense that local authorities throughout Scotland are not using the funding as it was intended when the Scottish Executive handed it out through the supporting people initiative?
As I am a civil servant, it would not be appropriate for me to comment on that.
Okay.
We should take up Jackie Baillie's recommendation, but I recommend that we should also send a copy of the Official Report of the meeting to the petitioners and invite them to comment on what we have heard this morning, so that we can get as wide a perspective as possible. Do members agree to the recommendations?
I thank Jean MacLellan, Jenny Pickthall, Bette Francis and Peter Stapleton for taking the time to give us that comprehensive update, which the committee appreciated greatly.
Environmental Protection Act 1990 (PE884)
Our next current petition is PE884, by Sandra Clarkson, on behalf of Prestwick marine neighbourhood watch. The petition calls on the Scottish Parliament to urge the Scottish Executive to amend the Environmental Protection Act 1990 to ensure that local authorities keep beaches free of litter and refuse throughout the year.
I welcome the positive response from the Minister for Environment and Rural Development. I look forward to hearing the petitioner's views.
Neurological Services (Post-polio Syndrome) (PE873)
The next petition is PE873, by Helene MacLean, on behalf of the Scottish Post Polio Network. The petition calls on the Scottish Parliament to urge the Scottish Executive to join the international community in recognising post-polio syndrome and to conduct a much-needed national review of neurological services to take account of the needs of PPS and all other long-term neurological conditions, with a view to establishing multidisciplinary centres of excellence to assess, treat and research such conditions, which affect the lives of many thousands of individuals in Scotland.
I thank the committee for the opportunity to appear before it again. Although the petitioner will not be participating in the meeting, she is present, so we can act quickly if anybody wants us to set up a multidisciplinary clinic in the foyer.
I suggest that we take up Margo MacDonald's proposal and write to ask the Minister for Health and Community Care about the prevalence study and the modelling. It would also be appropriate to write to determine the chief medical officer's perspective. Do members have suggestions?
That is fine.
Those people might be pleased to hear from you, because if the study considers models of service delivery, it could be a prototype for all the stuff to which the Kerr report referred.
The petition has been a success. I draw members' attention to the additional information on updating the statistics on people who have PPS. Could we forward that information? We have been asked to update a website, but that is not in the committee's power. However, I presume that we could send a copy of the information to the chief medical officer and NHS Health Scotland.
We will provide all the available information.
I should have mentioned that; I always mix up the medical man and the scientist, although they look different.
It is worth asking for all opinions.
The scientist would take the lead and the medical man would say okay. If the scientist works out matters, that will be fed into the implementation of care through the medical officer.
If we write to all the people who have been suggested, we should receive information that allows us to see whether we are making the progress that we hope to make.
The other big thing is time—the proposal has been kicking around for quite a long time. The two issues are time and money.
I thank Margo MacDonald for her input. After we receive the responses, we will address the matter in due course. We hope that you will have another opportunity to see how we are making progress.
Would you like me to mark you out of 10?
Not at the moment.
School Buses (Safety Measures) (PE892)
Our next petition is PE892, by Ronnie Beaty. It calls on the Scottish Parliament to urge the Scottish Executive to amend the Education (Scotland) Act 1980 to set down minimum safety standards for school bus provision, including the provision of certain safety signs; to make regulations under the Road Traffic Regulation Act 1984 requiring the use of certain safety signs and lights on school buses; to make failure to comply with such signs an offence; and to seek the necessary powers to require bus operators to remove such safety signs from school buses when they are not in school use.
Thank you for your courtesy in allowing me to be present. I know that Mr Beaty and his family are here, although Mr Beaty appears to have popped out for a moment.
I welcome Stewart Stevenson to the meeting; I also welcome his comments. We should consider referring the petition to the Education Committee. I was particularly struck by the comment from the Scottish Accident Prevention Council that
There is outstanding support for the petition among the responses, most of which Stewart Stevenson mentioned. The Scottish Parent Teacher Council quite rightly pointed out that, unfortunately,
I do not dissent from anything that has been said. Standards vary among local authorities for no apparent reason. I am pleased that the minister has drawn to local authorities' attention the recommendations from the Scottish Consumer Council's recent study. However, as we saw with our previous petition, implementation is always an issue. We should send the petition to the Education Committee and ask it specifically to consider how regulations are being implemented and whether they need to be changed.
I echo everything that has been said. All the responses are positive—even the one from the Minister for Education and Young People. I disagree with him in only one regard. He says that the recommendations should be commended to local authorities, but I think that they should be mandatory. The issue is an important one throughout Scotland, not only in certain regions. I agree that we should send the petition to the Education Committee, drawing special attention to the paragraph that John Scott mentioned.
If that has not happened, we will make all the responses available to the petitioner. If he wants to provide any additional information, we will give that to the Education Committee as well.
I welcome the remarks of the committee members. Might members be prepared to suggest to the Education Committee that, if it identifies any actions that could be taken by another Parliament, it should express a desire that that happen, so that that can add weight to deliberations that might take place elsewhere?
If we were to tell a committee of this Parliament to tell another Parliament what it should do, we would be getting into dangerous territory.
If I may be helpful, convener, I would just point out that the Education Committee will be able to read the entirety of our discussion in the Official Report. Therefore, the point has already been made.
That is a good way around it. Do we agree to follow the action that has been suggested?
Mental Health (Care and Treatment) (Scotland) Act 2003 (PE889)
Our next petition is PE889, by James A Mackie. It calls on the Scottish Parliament to examine the workings of the Mental Health (Care and Treatment) (Scotland) Act 2003 and, in particular, the making available of legal representation and legal aid to patients detained in psychiatric wards or released to the community who are under the influence of prescribed antipsychotic or brain-altering drugs.
Should we invite the petitioner to submit his views?
Do we agree to do that?
A96 Improvements (Elgin Bypass) (PE558)
Our next petition is PE558, by Pauline Taylor. It calls on the Scottish Parliament to urge the Scottish Executive to include as a matter of urgency a bypass for Elgin in the programme for improvements to the A96.
It appears that no further action is required on the petition. However, I just point out that we received the petition in 2002. Were the petitioner a man, he would have grown a very long beard by now. I note that the letter is from the Enterprise, Transport and Lifelong Learning Department. The minister concerned needs to bear in mind the fact that people might ask why it takes such a long time for certain issues to be resolved.
That point is worth making.
The coalition is obviously failing.
Do we agree to take no further action on the petition?
Vulnerable Adults (Medication) (PE867)
The next petition, PE867, is from W Hunter Watson. It calls on the Scottish Parliament to provide adequate safeguards against vulnerable adults being given, by surreptitious means, unwanted, unnecessary and potentially harmful medication.
We are aware that a revised code has been prepared but has not yet been published. Some of the concerns that the petition deals with have been expressed to the Executive as part of its consultation on the code. We should keep the petition open until the code is published, at which time we will be able to see whether the Executive has taken on board the comments that have been made.
Do we agree with that suggestion?
Medical Negligence (PE866)
Our final petition is PE866, from James Kelly. It calls on the Scottish Parliament to consider and debate the need for an independent body to be set up to investigate claims of medical negligence.
I have the greatest sympathy with the petitioner and acknowledge his perception of how he was treated by NHS Ayrshire and Arran. However, on the basis of the minister's response, I have to say that we must agree with the minister. I do not think that we need any more bodies looking into these matters. There are adequate avenues by which appeals can be made. That has to be our position. Therefore, we must, regrettably, close the petition. There is nothing more that we can do.
Do members agree?
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