The Scottish Medicines Consortium (SMC) continues to provide early information - on an in confidence basis - to Health Boards on medicines in clinical development that are expected to require a companion diagnostic through regular horizon scanning reports.

As part of the Scottish Strategic Network for Genomic Medicine (SSNGM), the Scottish Genomic Testing Advisory Group (SG-TAG) for cancer is now live, and has successfully carried out a review of a new genomic testing pathway for biliary tract cancer which was approved for implementation. This cancer pathway includes diagnostic and prognostic targets, and also targets for SMC approved medicines. The equivalent group for Rare and Inherited Conditions is due to launch next month. Both groups will include a process for considering the laboratory genomics delivery model as well as the cost of the genomic testing pathway for SMC approved medicines.

I refer the member to the answer to question S6W-22241 on 13 November 2023 which provides an overview of the scope of the review. All answers to written parliamentary questions are available on the Parliament’s website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

The process of recruiting a Chair for the independent review is underway and an advert is currently live. The advertisement will be live for 5 weeks and will close on 27 November 2023, with interviews expected to take place in December.

There were 16* detected firework related crimes in Scotland in October 2023. As of 15 November there has been 22* detected firework related crimes for November 2023. This figure is expected to rise as Police Scotland continue their investigations.

This compares with 6* detected firework related crimes in October 2022. And 33* from November 2022.

*Please note that this figure includes both arrested or charged individuals.

The Scottish Government is committed to preventing the harm caused by alcohol consumption during pregnancy and to supporting those impacted by Fetal Alcohol Spectrum Disorder (FASD).

We recognise there is more that needs to be done to support people with FASD, that is why we provide funding to the Fetal Alcohol Advisory Support and Training Team (FAASTT) to allow the delivery of training to improve knowledge, attitudes and confidence in professionals working with individuals with FASD.

We also provide funding to the FASD Hub in Scotland with the aim of providing support, training and advice to families, carers and professionals supporting children affected by FASD as well as a new project supporting adults with FASD. This was the first FASD Hub of its kind in the UK.

The visit to the Port of Dunkirk was led by Forth Ports, DFDS and Ptarmigan Shipping, with Douglas Chapman MP also in attendance. The Scottish delegation was supported by Scottish Development International’s office in Paris. Whilst detail on seafarer employment issues was not discussed, the Scottish Government is keen to see maximum benefit derive to Scotland and its citizens from new ferry services to the Continent.

The Scottish Government want to see stronger direct shipping links between Scotland and the EU. A new freight and passenger service would provide increased resilience for exporters, as well as opportunities for inbound tourism and increased employment. However, the operation of a commercial ferry service, including crewing arrangements, is the responsibility of the commercial operator whilst ensuring compliance with the relevant employment legislation and standards.

The National Institute for Health and Care Excellence (NICE) is collaborating with the Scottish Medicines Consortium (SMC) on a joint multiple technology appraisal (MTA) of cystic fibrosis (CF) medicines, including Kaftrio®. The NICE recommendations that were published on 3 November are draft and could change following the current consultation period.

Existing patients and new patients who are started on a CF medicine while the MTA is ongoing will continue to have access to the medicine after NICE and the SMC issue their final recommendations, irrespective of the outcome.

In addition, this week the Medicines and Healthcare products Regulatory Agency (MHRA) extended the licence for Kaftrio and Kalydeco to include children aged two to five years old. This extension helps address the unmet needs of younger children with cystic fibrosis.

The Scottish Government keeps its records management plan under review as stipulated in the Public Records (Scotland) Act 2011. It is reviewed annually, or sooner if changes to the law require it. The next review will take place within the next 12 months.

The Mobile Messaging Policy is due for review in October 2024.

As noted in the answer to S6W-21903, ferry operators are responsible for crewing arrangements whilst complying with the appropriate employment legislation and standards. Shipping safety and seafarer welfare and employment conditions are matters reserved to the UK Government. The Scottish Government does not have powers over employment conditions for seafarers.

The Scottish Government expects the highest shipping safety and crew welfare and employment conditions to be observed by those vessels and for those crew working in Scottish waters. International ferry services can often have skilled crew from around the world, and not domiciled in the UK. However the UK Seafarers Act ensures crew will be entitled to National Minimum Wage equivalent whilst working in Scottish waters.

It is the statutory responsibility of local authorities to manage and maintain their school estate, and Scottish Government funding is intended to augment, not replace, local authorities’ own investment in their schools.

East Lothian Council have been awarded financial support through the £2bn Learning Estate Investment Programme (LEIP) for their Wallyford High School and Whitecraig Primary School projects.

In addition, through the previous Scotland’s Schools for the Future Programme, the Scottish Government awarded East Lothian Council with funding of £9.5m towards 2 school projects.

As a result of investment by this government, the proportion of schools in “good” or “satisfactory” condition in Scotland has increased from 61% in April 2007 to almost 91% in April 2023. LEIP investment will build on this progress.

We will continue working with COSLA, local authorities and Scottish Futures Trust to explore how we can deliver further improvements in the school estate.

I refer the member to the answer to question S6W-22728 on 21 November 2023. All answers to written parliamentary questions are available on the Parliament’s website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers .