Chamber and committees

We have committed, both in the Programme for Government and in our initial response to the Social Renewal Advisory Board’s report, to a full, independent review of the Scottish Welfare Fund. The review will examine many areas of the Fund including accessibility, funding levels, local authority administration and statutory guidance. In order to do this we are commissioning independent research, findings from which will be reported before the end of 2022.

The Scottish Government is committed to ensuring that all people living in Scotland with dystonia are able to access the best possible care and support, and benefit from healthcare services that are safe, effective and put people at the centre of their care.

While the Scottish Government’s role is to set the strategic policy for the NHS in Scotland, NHS Boards and healthcare professionals locally have responsibility for both service delivery and people’s care. NHS Boards are expected to ensure that patients, including those who require care and support for dystonia, have access to a range of professionals to provide the appropriate management of their condition.

Dystonia UK, a leading charity that provides supports for people living with dystonia, is a member of the Neurological Alliance of Scotland (NAoS). The NAoS are key members of our National Advisory Committee for Neurological Conditions which is working to drive improvement in outcomes for people with a range of neurological conditions, including dystonia.

In 2019, we published a Neurological Care and Support – National Framework for Action, with a vision to ensure everyone with a neurological condition, including dystonia, can access the care and support they need to live well, on their own terms.

We are investing £4.5 million of funding to implement the 17 commitments in the framework, supporting innovative practice in neurological care for people with conditions such as dystonia. No applications have been received to date for projects in relation to the direct support and care of people affected by dystonia and we would welcome future applications.

Through Commitment 13 of the Framework, the Scottish Government will support neurological research by promoting the work of the Chief Scientist Office, third sector organisations’ research and Scottish neurological research networks; encouraging opportunities for people with neurological conditions to become involved in research trials; and highlighting the need for further qualitative research on the impact of living with a neurological condition.

The Chief Scientist Office research funding committees are open and applications on the underlying causes, diagnosis, treatment and management of dystonia are welcomed - Response Mode Funding Schemes – Chief Scientist Office (scot.nhs.uk)

Throughout Storms Arwen and Barra the Scottish Government’s Resilience Division maintained daily contact with the power companies and close engagement continues.

It must be noted that resilience of the electricity networks is reserved and is the responsibility of the UK Government. The Scottish Government will be engaging with both the upcoming Ofgem and UK Government Storm Arwen reviews.

In addition, the Deputy First Minister requested that the Scottish Government’s Resilience Division begin work on the scope and terms of a review into the Storm Arwen response on 30 November 2021, and on 14 December 2021 he formally commissioned the Scottish Resilience Partnership to collate evidence from local resilience partnerships to inform the findings of the review.

The Scottish Government will also gather evidence from other relevant groups, for example the voluntary sector and utilities companies, including power companies.

‎This work is already well underway and we aim to publish a review paper with recommendations in mid-January.

Information on the amount of people living with dystonia in each NHS board area is not held centrally by the Scottish Government or Public Health Scotland (PHS).

The Scottish Government has submitted a request through NHS Scotland’s Scottish Primary Care Information Request (SPIRE), which holds information from GP patient records, to better understand prevalence amongst neurological conditions including dystonia. We expect this data to be collected in 2022.

I refer the member to the answer to question S6W-04922 on 17 December 2021. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

We recognise the incredible contribution that Scotland’s unpaid carers make to our communities and know that the pandemic has added significant additional pressures. We are committed to giving a strong voice to unpaid carers, listening to their needs and acting on what they tell us.

We will develop and publish a stand-alone Carers Strategy with a focus on COVID-19 recovery and improving carer support in a meaningful and sustainable way. The strategy will focus on carers and their needs, setting out how policies across the Scottish Government can work together with other public bodies to support carers as we recover from the pandemic and beyond.

We will engage with unpaid carers about the strategy’s scope and purpose in the coming months, and this will inform its development. Our approach to the development of the strategy will be both a collaborative and an iterative one which will draw on the knowledge and lived experience of unpaid carers so that the strategy is shaped by those who best understand the many challenges faced. We will seek to publish the strategy as soon as possible to provide a clear vision for how we will respond to the challenges faced by so many carers.

In the summer of 2020, the Scottish Government undertook a Capital Spending Review of its capital budgets against the backdrop of Covid-19, which necessitated a review of rail enhancements priorities.

Following the 2020 review, amid significant financial pressures on the available rail enhancements capital budget, the North Hanover Street development was deferred. Against a backdrop of rising costs and pressures on the rail enhancements budget, Network Rail was instructed to return to Transport Scotland with a proposal to progress the development, with options for alternative funding.

Transport Scotland await a revised proposal from Network Rail. Officials continue to remain engaged in regular meetings with key stakeholders such as Glasgow City Council, Network Rail and Scottish Futures Trust aimed at keeping each other updated in respect of developments in and around the Queen Street station area.

Ministers are not notified of every patient death by suspected hospital acquired infection, due to the possibility of patient identifiable information.

However, Ministers are routinely notified of incidents of hospital infection outbreaks (involving two or more patients) with management information regarding the organism of infection, number of patients involved in the outbreak, investigations and any suspected deaths associated with the outbreak. 

The information requested relating to how many patients a) contracted and (b) died from fungal infections at the Queen Elizabeth University Hospital is not centrally held by the Scottish Government, due to the possibility of patient identifiable information.

The link below leads to the latest elective waiting times publication which was published on Tuesday 30 November for the quarter ending 30 Sep 2021. This provides number of patients waiting and seen by specialty for outpatients and inpatient / day cases.

Stage of treatment waiting times - Inpatients, day cases and new outpatients 30 November 2021 - NHS waiting times - stage of treatment - Publications - Public Health Scotland

The split between inpatient and day case is not published. in addition, this publication only covers details up to the end of September 2021, with the information on the quarter ending 31 December 2021 due to be published at the end of February.