Chamber and committees

At the present time there are 20 patients from Scotland who are awaiting a lung transplant. Due to the very small numbers of patients who have an underlying diagnosis of Cystic Fibrosis who meet the criteria for listing for transplantation, to prevent inadvertent patient identification the most specific answer that can be given is that this is fewer than five individuals. These patients are being managed jointly by the Scottish Cystic Fibrosis Specialist Centres and the transplant clinical team in Newcastle.

The Scottish Government is committed to working to improve outcomes for people with rare conditions, including cystic fibrosis. We are developing an Scottish Action Plan for Rare Disease based on the four priorities of the UK Rare Disease Framework: faster diagnoses, increased awareness, better care co-ordination, and access to specialist treatments and care.

Following the urgent roundtable meeting I chaired on 4 November, I met with partners and representatives from across the sector on 8 December. The key outcomes were a focus on training and prevention, with the Violence Reduction Unit supporting Police Scotland and Night Time Economy Partners to continue to roll out bystander training to raise awareness for staff to help keep people safe.

Police Scotland’s Strategic Gold Command continues to monitor the situation, and are working closely with third sector and partner organisations, looking into further protective and preventative measures to combat drink spiking, including a public awareness campaign focused on bystanders and perpetrators. We want people to report if they see something suspicious and to step in if they think someone may be at risk or see someone behaving suspiciously.

I would encourage anyone who believes they have had their drink spiked or been assaulted in this way to contact Police Scotland on 101 or in an emergency 999.

I refer the member to the answer to question S6W-05094 on 5 January 2022. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers .

The lead investigators on the 9 projects funded through the long term effects of COVID-19 infection call were notified on 22nd December 2020 that their projects had been successful in obtaining funding.

Provisional funding letters were issued in January 2021, with the start of transfer of funds as per the payment profile dependent on the receipt by the Chief Scientist Office of a Start Certificate issued by the host institution Finance Office.

Start certificates were returned for all 9 projects, with confirmation of start dates for individual projects of between 01-02-21 and 01-05-2021.

Post award monitoring is through 6 and 12 month progress reports. In addition, a final report for each project is to be submitted on completion of the project. These final reports will be made publicly available on the Chief Scientist Office website.

The end dates for the 9 projects are:

COV/LTE/20/04 HUNT

28.02.2023

COV/LTE/20/06 PELL

28.02.2023

COV/LTE/20/08 SCULTHORPE

31.03.2023

COV/LTE/20/10 BERRY

31.01.2023

COV/LTE/20/15 SHEIKH

28.02.2023

COV/LTE/20/26 CARSON

31.03.2023

COV/LTE/20/28 LINDSAY

31.01.2023

COV/LTE/20/29 COOPER/DUNCAN

30.04.2023

COV/LTE/20/32 TORRANCE/GRANT

28.02.2023

For reference, details of the 9 above projects are available from the Chief Scientist Office website

Long Covid Call – Chief Scientist Office (scot.nhs.uk)

The Scottish Government has commissioned National Services Division (NSD) to undertake a programme of activity to assist in identifying the capacity needs of NHS Boards and staff in delivering safe, effective and person-centred support for people with long COVID.

As part of this activity, a Short Life Working Group on managing the long-term effects of COVID-19 was set up. The Short Life Working Group identified the need to establish a Strategic Network to support the delivery of the policy framework outlined in ‘Scotland’s Long COVID Service’, which includes exploring how a care co-ordination model might be able to enhance the way in which primary, community and secondary care services work together in order to meet the needs of people living with complex needs as a result of long COVID.

The Strategic Network will then support experts, clinicians and lived experience and will have a key role in identifying and ensuring that the £10m long COVID Support Fund is targeted at areas where this additional resource is most needed and can make the biggest impact.

Identifying and ensuring that the £10m long COVID Support Fund is targeted at areas where this additional resource is most needed will make the biggest impact for those people with long COVID. That is why a Strategic Network is being set up to support the delivery of the policy framework outlined in ‘Scotland’s Long COVID Service’.

We have published Coronavirus (COVID-19): face covering and masks guidance which includes information on wearing face covering and masks including exemptions. It is the responsibility of each individual business to apply the guidance to their own circumstances.

We have invested more than £460,000 to enable Chest Heart and Stroke Scotland to deliver its long COVID Support Service. We have raised awareness of the service through:

• The Implementation Support Note which we have developed for clinicians supporting people with long-term effects of COVID-19 and has been disseminated to all NHS Boards. This resource includes information on the support available through Chest Heart and Stroke Scotland’s long COVID Support Service and how it can be accessed.
• The Decision Support Toolkit which was developed with the Scottish Intercollegiate Guidelines Network (SIGN) and the Digital Health and Care Innovation Centre to incorporate key information from the Implementation Support Note, including details of Chest Heart and Stroke Scotland’s long COVID Support Service, https://www.signdecisionsupport.uk/ . Available via both a web-based platform and a mobile app, the toolkit presents clinicians with current evidence and helpful recommendations on assessment, investigations and referral, planning care, management and follow up for people experiencing long-term effects of COVID-19.
• The NHS Inform website which provides information, guidance and signposting for patients experiencing long-term effects of COVID-19.
• Our marketing campaign in October and November 2021 which included a marketing toolkit sent to more than 3,000 contacts across the NHS and third sector. This marketing toolkit contained information on Chest Heart and Stroke Scotland’s long COVID Support Service.

We are committed to ensuring that this service can be easily accessed by those who wish to do so, and we will continue to work with Chest, Heart and Stroke Scotland to support this as appropriate.

The Scottish Government is committed to providing clear information and support for people with long COVID. To help raise awareness of symptoms and signpost people to appropriate support, a marketing campaign ran in October and November 2021. The campaign budget was invested in: print and production of campaign posters for display in community pharmacies and GP surgeries across Scotland, language translations, social media posts and a campaign toolkit sent to 250 direct partner contacts with additional distribution of approximately 3,000 contacts.

The campaign directed people to the long COVID microsite hosted by NHS Inform, accessible at www.nhsinform.scot/long-covid . The microsite had nearly 86,000 users during the campaign period.

In 2021-22 our investment in support of General Practice of £155 million (through the Primary Care Improvement Fund) demonstrates the Scottish Government’s ongoing commitment to the development of multi-disciplinary teams to support general practice. This investment will free up GP and GP practice staff time to focus on complex care in the community, including treating patients with long COVID. On top of this we have made additional winter funding available to Health Boards to allow the recruitment of extra Primary Care pharmacists, nurses, physiotherapists and other MDT staff.