Chamber and committees

The Health and Social Care Alliance Scotland (the ALLIANCE) has continued to support the Women’s Health Plan through their dedicated lived experience programme. This has included the development of the conversation café toolkit, available for anyone to use, to encourage information sharing and peer support on areas of women’s health including menstrual health and endometriosis.

More information can be found in the ALLIANCE Final Report on Women’s Health Plan.

Menstrual health and wellbeing education is a key part of relationships, sexual health and parenthood (RSHP) education. RSHP education is an integral part of the health and wellbeing area of the Scottish curriculum, Curriculum for Excellence.

An online RSHP teaching resource, (www.rshp.scot) was published in 2019 and provides age and stage appropriate learning activities on RSHP education for use in all education settings and is aligned to Curriculum for Excellence. This resource includes learning activities on menstruation from second level (P5 to P7), with endometriosis introduced at third/fourth level (S1 to S3).

NHS Education for Scotland (NES) has launched an e-learning module on menstrual health available on Turas Learnand in particular is aimed at those working in primary care. The school nursing workforce and school counsellors can also access this training as required.

Our ambition is for a Scotland where health outcomes are equitable across the population so that all women enjoy the best possible health – throughout their lives. That is why endometriosis is one of the key priorities in the Women’s Health Plan and will continue to be so.

We are continuing work to improve the data we have on women’s health so that we can understand better the health of women and girls in Scotland, in the short, medium and longer term – including endometriosis.

More information on women’s health data can be found in the recently published data landscape review.

This data is not routinely collected however, the Report “Dismissed, ignored and belittled - The long road to endometriosis diagnosis in the UK” published by Endometriosis UK in March 2024 states that a survey of 4,371 people who have received a diagnosis of endometriosis shows ...52% had visited A&E at least once. 26% of respondents visited A&E 3 or more times with symptoms prior to diagnosis.

Our ambition is for a Scotland where health outcomes are equitable across the population so that all women enjoy the best possible health – throughout their lives. That is why endometriosis is one of the key priorities in the Women’s Health Plan and will continue to be so.

Information about the progress to date against each of the priorities in the Women’s Health Plan can be found in the Women’s Health Plan Final Report.

The Endometriosis Care Pathway for NHS Scotland aims to support healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms.

To support health care professionals to improve their knowledge and understanding of endometriosis NHS Education for Scotland (NES) has launched an e-learning module on menstrual health available on Turas Learn. It is open to anyone working in NHS Scotland and in particular is aimed at those working in primary care.

Further training resources have been provided through the Women’s Health Masterclass on endometriosis which provided information on diagnosis, treatment and current research on endometriosis, raising awareness of the Pathway with attendees. The resources from this event are available on Turas Learn.

We are currently working with the Royal College of General Practitioners (RCGP) to develop new training resources on endometriosis, for general practitioners.

Through the Scottish National Menstrual Health Specialist Network healthcare professionals with a special interest in menstrual health have a forum for peer support and sharing expert clinical advice and best practice related to menstrual health symptoms and conditions.

More information can be found in the Women’s Health Plan 2021 - 2024 Final Report.

The Scottish Government is committed to ensuring those living with endometriosis can access the best possible care and support.

There is now an Endometriosis Care Pathway for NHS Scotland which aims to support healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms. All NHS Boards should be taking steps to implement the pathway.

Most individuals with endometriosis can be managed within secondary care. For patients with more complex symptoms or who need complex surgery, there are three regional specialist endometriosis centres in Aberdeen, Edinburgh and Glasgow that provide multidisciplinary specialist care across Scotland.

To support health care professionals to improve their knowledge and understanding of endometriosis NHS Education for Scotland (NES) has launched an e-learning module on menstrual health available on Turas Learn. It is open to anyone working in NHS Scotland and in particular is aimed at those working in primary care.

Further training resources have also been provided through the Women’s Health Masterclass on endometriosis which provided information on diagnosis, treatment and current research on endometriosis, raising awareness of the Pathway with attendees. The resources from this event are also available on Turas Learn.

The Scottish National Menstrual Health Specialist Network provides healthcare professionals with a special interest in menstrual health a forum for peer support and sharing expert clinical advice and best practice related to menstrual health symptoms and conditions.

More information can be found in the Women’s Health Plan 2021 - 2024 Final Report.

The Scottish Government collaborated with Wellbeing of Women on a £250,000 research call in April 2022. The research is primarily being run by researchers at The University of Edinburgh and will look at a non-hormonal drug in the management of endometriosis-associated pain.

The research will be funded over 3 years with the research findings expected to be disseminated in December 2025.

In January 2023 the Chief Scientist Office announced funding of £299,509 for the 30 month ENDOCAN project, led by researchers at The University of Edinburgh. Through a large scale UK-wide trial, the research will investigate whether a cannabinoid can reduce endometriosis-associated pain.

Recruitment for the study is due to start in August 2025 in NHS Lothian and NHS Grampian. More information can be found on the research being undertaken by The University of Edinburgh can be found on their website.

We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

This year, we have allocated over £450,000 to gynaecology from our £30 million targeted investment in planned care, delivering around 3,500 additional new outpatient appointments.

The 2025-26 Budget, if approved by Parliament, will provide a record £21 billion for Health & Social Care, including a commitment to provide £200 million to help reduce waiting times and address delayed discharge.

We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

This includes ensuring that women have access to care that adheres to the most up to date practice guidance. The endometriosis care pathway for NHS Scotland supports healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis type symptoms.

However, data on the percentage of women diagnosed with endometriosis currently receiving multidisciplinary care is not available.

I refer the member to the answer to question S6W-30034 on 3 October 2024. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers