Chamber and committees

Screening Oversight and Assurance Scotland, supported by the work of an expert advisory group and led by the Director of Screening, is currently developing a business case for implementation of targeted lung screening. This is expected by the end of this winter, and will consider the matter of incidental findings. Following receipt of the business case, the Scottish Government and delivery partners across the NHS will have greater scope to make an evidenced-based assessment of implementation timescales.

The roll-out of any screening programme is a complex undertaking, and the UK National Screening Committee acknowledged in its recommendation that there remain a number of significant issues that must be worked through before a full programme of lung screening can be implemented. This means a national screening programme is likely to take years rather than months to implement.

In the meantime, lung cancer remains a national priority. The Scottish Government has a dedicated chapter in our £114.5 million National Cancer Plan, and in December 2023 we redesigned lung cancer diagnostic services to help ensure patients receive faster access to treatment.

I refer the member to the answer to question S6W-33241 on 24 January 2025. All answers to written parliamentary questions are available on the Parliament’s website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

There are no plans to expand eligibility of The Young Patients Family Fund (YPFF) at this time.

In addition to support available under the YPFF, financial support for travel to hospital is available via the patient travel expenses reimbursement schemes. Under those schemes, patients and authorised escorts can reclaim reasonable costs of travel associated with attending a hospital appointment, in line with eligibility criteria and medical requirements.

Priorities for the Scottish Government are:

• national implementation of the Scottish Epilepsy Register,
• further adoption of successful approaches to improving services through the neurological conditions network,
• continued improvements in provision of ‘social support’ and psychological services for people with neurological conditions,
• continued development and adoption of condition specific care pathways,
• continued development and adoption of approaches to workforce planning and training for nursing, pharmacy, neuropsychology allied health professionals, and neurophysiology.

This work will be considered as part of the development of the Long Term Conditions Strategy due to be published later this year. Any required funding will be considered during the 2025-26 budget deliberations.

The largest proportion of funding has been awarded to projects that improve services for all or more than one neurological condition, including services for carers. Direct investment was also made to projects for the following specific conditions:

• Acquired Brain Injury
• Cerebral Palsy
• Epilepsy
• Functional Neurological Disorder (FND)
• Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
• Migraine
• Multiple Sclerosis (MS)
• Parkinson’s Disease
• Progressive Supranuclear Palsy (PSP)
• Psychogenic Non-Epileptic Seizures
• Spina bifida/ hydrocephalus

A full list of projects funded through the Neurological Framework can be found here.

Implementation and evaluation of the Collaborative and Compassionate Cancer Care The Cancer Strategy for Children and Young People in Scotland 2021–2026 is managed by the Managed Service Network for Children and Young People with Cancer (MSN CYPC).

Consideration will be given to an evaluation of the delivery of this strategy as it continues into 2026. Recommendations and actions are continually reviewed by MSN CYPC and the 2023-24 MSN CYPC Annual Report has been published on the MSN CYPC website – www.msncypc.Inhs.scot.

The delivery of the Cancer Strategy for Children and Young People in Scotland 2021- 2026 continues to be taken forwards by the Managed Service Network for Children and Young People with Cancer (MSN CYPC) into 2026.

The progression of actions in the strategy are regularly reviewed by MSN CYPC and will inform any future national strategy approach required to ensure that children and young people with cancer will have access to the best possible treatment and care.

The Managed Service Network for Children and Young People with Cancer (MSN CYPC) are currently working with Young Lives vs. Cancer (YLvC) to take forward learning from the NHS England and Picker Institute U16 Cancer Patient Experience Survey, to see if this can be developed for children and young people with cancer in Scotland.

Additionally, the MSN CYPC provides a range of patient experience support services such as the Youth Advisory Forum which provides children and young people with cancer with the opportunity to share experiences with each other as well as identifying gaps and improve the quality of services by providing feedback. The Parent, Carer and Families Forum, also facilitated by MSN CYPC, gives a voice to the youngest children with cancer, and their support networks which enables their views to also be captured.

Public Health Scotland (PHS) publishes annual data on 16 to 25 year olds with cancer in Scotland in their incidence statistics. The latest report is available on the PHS website

PHS also publishes information on cancer in children (ages 0 to 14) and young people (ages 15 to 24) in Scotland

Children and young people with cancer in Scotland 9 May 2023 - Children and young people with cancer in Scotland - Publications - Public Health Scotland

Health Boards are expected to support patients and their families in identifying and accessing available support. Financial support for travel is available for patients and authorised escorts, according to eligibility criteria and medical requirements, through schemes such as the Patient Travel Expenses Scheme (PTES) and the Highlands and Islands Travel Scheme (HITS).

Scottish Government has funded Young Lives Vs Cancer to provide practical advice and emotional and financial support to young people diagnosed with cancer and their families. This includes advice on potential welfare benefits as well as direct grants.

Further to this, we are working in partnership with Macmillan to improve the service we offer patients with cancer through the Transforming Cancer Care Programme (TCC). This partnership with Macmillan is worth £27 million and is the first of its kind in the UK. The programme ensures that every patient with cancer in Scotland has access to a specialist key support worker, who can provide emotional, financial, and practical support.