Official Report 200KB pdf
Jennifer Smart will clarify what the committee is being asked to do at stage 1 of the bill.
The Health and Community Care Committee is being asked to consider the bill as the secondary committee, the lead committee being the Justice and Home Affairs Committee. That committee has to report by 22 November at the latest so our report has to be given to it before then. The Justice and Home Affairs Committee is hearing evidence tomorrow while we meet.
Convener, may I speak?
I would like to make a point first, Kay. I want to ask the committee to express its concern at the way in which we have been forced to consider this important issue. It became clear to me, when I attended the Justice and Home Affairs Committee meeting, that many of the key points in the bill relate to the medical points in part 5. Because of the way in which the bill was parachuted in to us, we have not had time to hear evidence from key people. That is not to undermine the work of the Justice and Home Affairs Committee, as it is considering the bill thoroughly and has a longer time in which to do so. I ask the committee to formally register concern about the fact that we have had insufficient time to consider the bill.
I wanted to express concern about the fact that the Justice and Home Affairs Committee is meeting at the same time as we are tomorrow. That will give us no chance to sit in on that meeting. There are controversial points in the bill, particularly those that relate to health. I am concerned that we will not be able to scrutinise the bill properly.
The only thing that we can do at this stage is to flag up areas of concern for the Justice and Home Affairs Committee. We can also make members of that committee aware of the fact that we have not been able to consider the bill in depth and that they will have to do extra work on the medical aspects of the bill. I became aware, reading the Official Report, that some members of the Justice and Home Affairs Committee thought that we had been doing the same kind of work on the medical side that they had been doing on the legal aspects of the bill.
This report was written over the weekend and submitted yesterday lunch time. It has been written without seeing the submissions from Alzheimer Scotland, the Southern General hospital or the British Medical Association that are now sitting on our desks. I would like people to note that those are serious contributors and that their views should be taken into account in addition to the report.
Could we take a five-minute break, to allow people to read Ben's report before we comment on it? I have not seen it before now either.
I have to go to an Equal Opportunities Committee meeting for 10 o'clock. Can I put in my tuppenceworth before I go?
Yes.
I have read Ben's report. We should thank him for a thorough report. I think that the main controversies are about section 44(2) and section 47. Ben touches on that in his report, which I read as soon as I got it.
Gordon Jackson made an eloquent argument at the Justice and Home Affairs Committee for leaving out section 44(2), as it opens up a can of worms.
I have made my main points. I think that those two sections of the bill are the two that members will want to consider in terms of amendments.
Are you happy with the definition of adult with incapacity as it stands? It is a definition within the (Scotland) Act 1984, with the possibility of its being changed in the future, depending on what the Millan committee reports. Are you happy with that definition?
That situation is unavoidable because of the time scale. I do not think that it is a fundamental problem.
Thank you, Malcolm. We will now have a five-minute break to give committee members the time to read Ben's report. We will come back at 9.55.
Meeting suspended.
On resuming—
I hope that everyone has had an opportunity to read Ben Wallace's report. I appreciate that committee members have not had the opportunity to read through the great pile of papers and submissions that have come in from other organisations, in some cases overnight. That is one of the concerns that we raised at the beginning of the meeting. The concerns about the way in which we are being asked to comment on this bill I will take to the next meeting of the conveners committee, which is a joint meeting with the Parliamentary Bureau. Many of the difficulties arise because we are the secondary committee on this bill. Perhaps that will have to be taken into account in future.
Before you do that, I wish to say that the contents of this bill are significant. I know that we are the secondary committee. One of the questions that I asked you before was whether we can separate out the remits of the Justice and Home Affairs Committee and the Health and Community Care Committee, because I do not want to go over the ground that another committee has gone over.
The clerk will answer that question.
Hugh, before you arrived, others expressed the same concerns. Hugh's question with regard to the implications takes those concerns a little further.
I have asked those questions privately. I will hand over to the clerk.
The timetable was set for the committee by the Parliamentary Bureau. If we fail to report by 22 November, we will fail to feed into the deliberations of the Justice and Home Affairs Committee. The stage 1 debate for the bill is on 8 December.
Having read Ben's report and the submission from the Southern General hospital, I have concerns. We are not doing ourselves any favours if we hurry this matter. I propose that we adjourn until 11 o'clock. I am not prepared to participate in this meeting without having read the information that we have received.
I second that.
The problem is that we would then only have until 12 o'clock because I will have to leave then, and I assume that other members are in the same position. I agree that we cannot do this bill justice in such little time. There are so many important implications of this bill that we would serve no one if we rush through it.
Bear with me. I am trying to find a way out of this.
When was the bill lodged?
As far as I can remember it was lodged on 8 October.
So the Executive lodged a bill on 8 October, which allowed at most two months of discussions.
The recess fell after 8 October and the bureau did not meet to set the timetable for consideration of this bill until after then.
That is why we are in this position.
And the financial resolution—
Which tail-ends it.
Yes. It will fall on 8 January.
We must say that we need adequate time to do our job properly. We are not here to rubber-stamp the Executive's bills; we are here to scrutinise.
This bill is far too important to rubber-stamp it.
As Richard pointed out, we are amending an act that was published in 1585, yet we are rushing through our considerations in half a day.
In response to one of my questions last week, Iain Gray kindly pointed out that the Millan committee will be bringing out a report on the Mental Health (Scotland) Act 1984 early in the new year, although no specific date was given. This committee should propound the argument that the discussion of this bill should wait at least until the Millan committee's interim report because it would be helpful for all of us.
The definition of incapacity could be changed.
We are in danger of the bill falling if we do not—
Yes, the bill will fall.
Even an hour or so is too little time to show respect for those organisations that provided submissions.
Dorothy, no one on this committee will disagree with that point. You are absolutely right.
Is it in any way possible to delay this discussion? What would be the repercussions if we did so?
I agree. We have documents before us and it would be difficult to pick out the important points in one hour.
Having read through the bill, the explanatory background information and all the paperwork that we have been given to date, my feeling, as convener of this committee, is that a joint committee should have been established to scrutinise this bill. The fundamental problem arises from that not having been done. Having listened to part of the Justice and Home Affairs Committee meeting that discussed this bill and having read the transcripts of another, that committee is concerned that the crucial parts of this bill are the medical aspects. That committee feels that while its remit to consider the entire bill is satisfactory, it does not normally focus on health issues.
But as you said, the concerns over this bill are medical concerns. My problem is whether, if we highlight areas of concern and submit them to the Justice and Home Affairs Committee, we are deemed to have scrutinised the bill.
I also have some concerns about that, because the information that we have been given within the last week is all technical. On its own, it is pretty substantial. We have been presented this morning with some of the issues that we, as parliamentarians, need to address, which will affect the people who will have to implement the legislation. We do not do ourselves any service to try to rush through this within the next hour or hour and a half.
My concern is for the people who desperately need this bill.
We are being asked to say whether we are in favour of the general principles of the bill and to highlight any concerns that we have. Obviously, the full scrutiny of the bill will happen at stage 2. That is the point at which members of this committee can put down amendments. From what I have heard, there is nothing to stop the committee continuing to send a reporter along to the Justice and Home Affairs Committee and having other members of the committee sitting in on that committee—as Margaret Ewing is doing today in this committee—and asking questions there. The only thing that may stop us is the timetabling problem.
Can I make a suggestion? The Minister for Health and Community Care and the Deputy Minister for Community Care will be with us for three hours tomorrow. We would probably not wish to do this, but if we were to cut their visit to an hour and a half—
—we could donate today to the Arbuthnott report, go away and read the submissions, and ask the people who are giving evidence to the Justice and Home Affairs Committee tomorrow to give their evidence to us afterwards.
We should consider Ben's proposal because we have three hours tomorrow. We can assume, can we not, that the Minister for Health and Community Care will always be with us?
We could ask her about this topic, saying, "It is your Executive that wants the urgency", and she can answer questions on it.
No. We cannot ask the minister to get involved in this, but the idea of truncating her session and using the time in other ways is a sensible one.
We have heard three possibilities—well, members have heard two and I made another one privately to the clerk. One possibility is that we do something about the rest of the agenda. If we discuss Arbuthnott and tomorrow's questioning of the ministers in private this afternoon, that would free up the rest of the meeting. We have to be out of here by 12.30, which gives us two hours—the full meeting—to read through and discuss the Adults with Incapacity (Scotland) Bill.
Cancel it.
Cancel her.
And we want the bill by January.
The bill has a very tight time scale and I have real concern that we are coming up with views that are ill thought out and will affect individuals out there. We can say to the Minister for Health and Community Care, "Look, we have a difficulty in terms of timing. We want to do the job properly. Can we postpone the meeting?" I do not think that the minister will have a problem with that.
That would also do away with the need to discuss tomorrow's questioning of the minister. She will understand. The Executive is introducing the bill.
I agree 100 per cent with that. The committee has to look forward a little more. We are trying to take on too much and we have to realise that certain things, such as this, will be priorities. We cannot fit it in with things such as three hours of questioning with the ministers or the Arbuthnott inquiry. We are trying to do too much. We are not doing ourselves a service and we are certainly not doing a service to the people that we represent. We should postpone tomorrow's meeting with the ministers.
I almost agree with that.
I cannot allow you to almost agree, Richard. We need a bit of unanimity on this.
Well, hear me out. The range of topics that we were proposing to question the ministers on tomorrow would have taken 36 hours, not three and a half. Tomorrow's session was doomed to be a failure anyway. I am sorry, as I know that I have not been at the committee to make that point. It has been difficult being on three committees, including the Standards Committee.
I have a greater degree of sympathy to that than to cancelling the ministers' visit. I spoke to them yesterday about the way in which I wanted the meeting to proceed, in terms of their statements about what they consider to be the headline issues, their work load for the coming year and so on. That would be a way of taking forward dialogue and setting our minds as to what we should be addressing.
I doubt whether we will get through it in half an hour. We are talking about 10 minutes from each minister—that is, 20 minutes—and 10 minutes for discussion, which is "Here's your hat. What's your hurry?" Would it not be better to reschedule the meeting with the ministers so that we can hear what they have been preparing?
I am inclined to agree with that.
One of the problems is that the ministers were originally scheduled to come at the beginning of October, but other things took over and the meeting had to be rescheduled. It was initially meant to be a meeting that set the general scene for them and for us, but it has slipped into November. If it continues to slip, we will lose the point of having the meeting. There is a range of possibilities, but we have to devote more time to the Adults with Incapacity (Scotland) Bill. I would prefer to find a way to do that, in terms of the timing, that we all agree on.
Are we not generally agreed that there should be a discussion tomorrow for which time should be allocated? The only argument at the moment is whether the ministers should be there at all or whether they should be there for half an hour.
I think it is just tokenism.
It is a waste of their visit.
Can I take a view from the committee?
I agree that it is all or nothing and that we are pretty much in an emergency situation over this. The minister will understand. Perhaps she could be asked to state in advance, in writing, her ideas about the Executive's work programme. That would assist us. We will never be able to stick to half an hour.
That is right.
I think that we should just press ahead with it.
I tend to agree, although I have to go to Brussels tomorrow. It is really up to the rest of the committee, but it is more appropriate to set aside the proper time to discuss this. We are all agreed on that.
Any comments about the bill that you have, Irene, you can put through me.
I would rather do justice to what is in front of us. The reputation of the committee and the Parliament depends on the way that we treat this. I would rather have a full three-hour session, focusing on the serious, critical issues in front of us, than tampering and being half-hearted. We did not have a full discussion last time and the terms on which we parted were not good. I would prefer there to be a proper, structured session rather than a half-hearted, quick discussion. I hope that we can develop a partnership with the minister. A forward plan, on paper, is perfectly adequate. Let us sit down and do the business that we are here to do.
I am not unhappy with the written plan.
My views are known.
I am happy with the plan not to meet the ministers. Is it realistic to get evidence from the people who are giving evidence to the Justice and Home Affairs Committee, while they are here?
The people who are giving oral evidence to—
The BMA, the Royal College of Nursing and Professor Sheila McLean of the University of Glasgow.
What time will they be giving their evidence?
They will be here at 9.30 am, the same time as us.
Are they giving evidence at the beginning—
The middle. The committee has got a European document first.
I will see whether the clerks can liaise so that we can be there to take that evidence jointly.
They could join us here in the chamber.
We are meant to be in committee room 2 tomorrow.
I wonder if the Minister for Health and Community Care could be told informally by telephone. It would be a courtesy, and it would help her with her busy schedule.
I want to take guidance on what committee members want to do with the rest of this morning's agenda. If we are not questioning the ministers tomorrow, item 3, on agreeing our line of questioning to the ministers, is unnecessary, and falls. We then have item 1, which we are discussing at the moment, and item 2, which is a consideration of the draft Arbuthnott report.
It happens.
We could move now into discussing the draft Arbuthnott report, and leave all our discussion on the Adults with Incapacity (Scotland) Bill to tomorrow. We should bear in mind that if we go to the Justice and Home Affairs Committee, much of our time tomorrow will be taken up listening to other people's evidence. That is important, but it will cut into how much time we have to discuss our concerns and the points that we want to make. One option is to continue to discuss adults with incapacity this morning and to discuss the draft Arbuthnott report as well.
Could we not adjourn the public meeting and do Arbuthnott just now?
We are beginning to get into a right mess. This morning, we complained that we have just received papers and have not read them. We have indicated that we have real concerns about that. If we are to hear evidence on the Adults with Incapacity (Scotland) Bill, we need an opportunity to read the documents before questioning people. We cannot talk about it because we have still not read the papers.
Would the meeting be quorate?
The meeting has been called. We are here.
As long as there are three of us. We have committee room 2 this afternoon if we want to continue this meeting there.
I so move.
I have another committee meeting, but I will have to let it go.
I have a constituency obligation at 4 o'clock, so I have to leave here in good time for that.
I appreciate that this is all totally unsatisfactory to all committee members.
Convener, we have an agenda before us. The first item is the Adults with Incapacity (Scotland) Bill. We have taken a decision on that. The second item is "Fair Shares for All", the Arbuthnott report. Item 3, on the line of questions to the Minister for Health and Community Care and the Deputy Minister for Community Care, falls, because we are not seeing them. Why are we not continuing to item 2 now? I cannot understand that.
When are we going to pick up on item 1? That is my difficulty.
My only point is that, if we spend a lot of tomorrow listening to evidence in the Justice and Home Affairs Committee, that cuts down our time for discussions. If that is want we want to do tomorrow, I think that we have to find a way to get extra time for discussion today. That is what I was trying to say.
Can I suggest, convener, that we move on to the Arbuthnott report now? Depending on what time we finish that, we can return to the bill late this morning and continue into this afternoon, examining the non-contentious items. If we can clear everything except the areas that are of concern, that will allow us to focus on the issues tomorrow.
Can I propose that, this morning, we simply concentrate on the Arbuthnott report review? Let us get one report correct. We have John Forbes here. Let us do it thoroughly and properly. Can we read all our papers? I take Hugh's point, but I do not know from the BMA's information what they consider non-contentious or otherwise. I appreciate the suggestion. Can we just use our time and concentrate on Arbuthnott, and do one thing right?
With the proviso that we may have to continue to meet this afternoon, and that, at the end of this morning's session, we will suspend the meeting and reconvene this afternoon. We would need to be quorate to continue meeting as a committee. That would be in committee room 2. I am aware that that would mean members having to change their plans.
Meeting continued in private.
Meeting resumed in public.
Having completed this morning's business, I propose to adjourn this meeting until 1.45 pm when we will resume in committee room 2 to continue with item 1 on our agenda. Tomorrow's meeting will convene at 11.15 am. Are we agreed?
Meeting adjourned at 12:33.
On resuming—
This morning, it was made clear that members wanted more time to talk about the Adults with Incapacity (Scotland) Bill. Ben Wallace, who was our reporter at the Justice and Home Affairs Committee, will give us his report, after which I would like to hear what committee members think about the general principles of the bill and the key areas of concern. It is essential that we flag up areas of concern at this point so that the Justice and Home Affairs Committee can consider them.
Members will have read my report. I do not want people to be too concerned about the fact that it mentions euthanasia. I recognise that the bill does not aim to introduce euthanasia, but I thought that it was right to note the fact that it is one of the issues surrounding the bill. We should discuss the ethics of the issue.
Can we take each step at a time? Definition is the first step.
I have several points that I hoped to get through.
Rather than hearing everybody's points, which may be similar, perhaps we should deal with one issue at a time.
Ben, would you prefer to get to the end of your report and then take it from there?
I would not mind dealing with the definition of "incapable adult" and then moving on to the next issue.
I share Ben's concerns. The issue of partial or diminished capacity is important, particularly in relation to learning disability. ENABLE has given us written evidence that it would prefer the bill to refer to severe learning disability. I am not sure whether that is legally correct; that is a matter for stage 2 consideration.
That point is partly covered in the Scottish Law Commission's submission. On page 3, it mentions the principles of the Council of Europe, and its formula. It is all down to definition. The Law Commission submission mentions
My reading of the bill was not that all people with learning difficulties would be included and were deemed to be incapable. When I read section 76(1), I thought that the existence of intervention orders was a recognition that some people might be incapable in one area or for one decision; I did not think it meant that those people were generally incapable. The bill recognises gradations of incapacity; ambiguity exists, however, so perhaps the bill needs to be more explicit.
That needs to be examined by the Justice and Home Affairs Committee.
There are two confusing points about that. First, the age of consent in Scotland has always been different from that in the rest of the United Kingdom. Now, as I understand it, consent means that someone is capable of making an informed decision. Secondly, professionals have to make a decision that the person they are discussing something with is capable of making an informed decision. That has nothing to do with age. When 16 is referred to, I think that it refers to other legal matters in terms of capacity. I therefore suspect that it is not a medical issue.
I agree. The age issue is not our concern. All I would expect is some consistency of approach, but that is another point for the Justice and Home Affairs Committee.
Our reporter raised that point. I assume that such points are made on the understanding that at some point, there will be an acknowledgement of this committee's remit and interest, and of the fact that the points were made in the course of Ben's research. I am working on the assumption that the issues highlighted by our reporter will be recognised.
Paragraph 7—the largest part of my report—deals with safeguards to protect the individual. I looked at the question from a welfare or medical treatment point of view, rather than from a judicial one; I approached it from the patient's point of view and also bore in mind the need to protect carers.
Presumably, most of the time decisions would be agreed upon in partnership. However, we need a law that covers the extremes.
That is where the issue is skirted round. At the end of the day, is the worst-case scenario that the view of the doctor or clinician is upheld over the view of the carer or proxy? That is a difficult decision. That is why I felt that I must mention the euthanasia statement. The priorities must be spelled out in the bill. I do not see a clear priority there as yet.
I noticed, when I skirted over the BMA submission in our limited lunch break, that it covers the point that Ben has covered. Section 19.3 states:
We should hear what other members think about that.
That tackles the issues that Ben raised. It considers care in the widest sense. If someone receives help from the social services, they will have an attached social worker. Ben's problem relates to someone who has sustained head injuries in a car accident, where that type of support would not be on tap and decisions must be made quickly.
I have been reminded that our remit is to flag up points of concern. I take it that members have a point of concern about who will have the ultimate decision.
As I indicated this morning, I take a different view on this. I think that we have to consider this next section with the next one. Where the bill has run into most difficulty in terms of public opposition is that it appears to have reopened the door to euthanasia. That area must be explicitly taken out of the bill. Once euthanasia and related issues have been taken out of the bill, I am more relaxed about the welfare attorney or guardian having the right to make these decisions. People are worried about the welfare attorney or guardian having those rights because they think that will be a back door to euthanasia via the welfare attorney or guardian. If they do not have any rights in that area, I do not have a problem with them having the say over treatment.
That takes us into two matters that I would like to flag up.
Three issues are relevant here. One is treatment, where it is a positive intervention. The second is withdrawal of that treatment, so that once you have defined what your positive treatment is, can withdrawal of it be seen as benefiting the patient? Let me illustrate that: if death is imminent, to continue feeding and hydrating a patient at that point may be inappropriate. However, hydration and nutrition should never be withdrawn as a means of achieving death; in other words, it should not be—
The death of somebody who was not going to die.
The third issue is non-intervention, which is not laid out here at all. It is the medical treatment we are talking about, and under a medical duty of care the doctor is under a general duty—nothing to do with the bill—to undertake such treatment as will be beneficial to his patients. So there is a general duty of care there. That may be enough to say whether there should be intervention or non-intervention.
A reality check.
A reality check. I am not sure whether it fulfils that in terms of the emergency situations to which doctors and health teams are having to respond. I am sorry. That is not all that helpful, except to say that I am concerned about this point.
I have a vague recollection of reading somewhere that the bill will allow doctors to deal with emergencies. Can you shed some light on that, Ben?
There are situations where a doctor can issue a 24-hour or short-term incapacity certificate. There seems to be—this is the reality check—no concept of the dimension of time in parts of the bill. That also applies to the partial incapacity in assisted decision making: either one is in a situation where one could get permission or come to an arrangement, or one is not. I could not see a reference to a here-and-now problem. I have been through the bill and the closest reference to a situation is where a doctor—a GP—can issue some sort of 24-hour certificate.
The certificate is referred to at section 44(3)(b)—sorry, we are getting into detail—which says:
Do committee members feel that mechanism is not realistic and that we do not want to impose it on emergency teams trying to save lives?
The question must be asked, but I may well have read the bill wrongly. As you say, convener, we are all learning.
I am surprised that you say that, but I do not really know about it. We should flag up that matter.
We will come back to this discussion tomorrow, so we should ensure that we have received clarification on that point before then.
On the question of the balance, I think that it would be better to have a mechanism that did not involve the Court of Session in any dispute. For example, a patient with Alzheimer's disease is managed in a residential or nursing home—I think that Alzheimer Scotland mentioned this point in its evidence—and is being treated with neuroleptic drugs, which, under the guidelines, would not be regarded as appropriate in most circumstances. The next of kin, acting under section 1(4)(b), says, "I do not want my relative to be treated in this way any more", to which the doctor says, "Yes, we should continue to treat them". The way in which the bill reads at the moment means that the treatment has to be stopped and the doctor has to go to the Court of Session to continue it. I think that Ben is saying that that is pretty impractical.
No, they can say, "Bang".
There must be a mechanism for either a second opinion or for the team and the individual to seek mediation at a local level for less serious cases. There is always a third stage: either party can go to court in the event of disagreement. It should be for either party to do that, rather than for one to have the right to do so over the other.
In such circumstances, there cannot be withdrawal of treatment while that right is being exercised, which could complicate matters for the patient.
The bill says that treatment continues while the dispute is pursued.
I do not think that it is stated enough. It needs to be central to what Richard is talking about.
Are members happy about that? Are there any further comments on this aspect of the bill?
I agree with what has been said about additional safeguards. Apart from anything else, it is costly and time consuming to go to court.
Ben's argument is that, as a result of costs and so on, people may not take that recourse.
It is not whether I think that it is practical—
Yes, it is not the practical but the financial implications. There are all sorts of other implications that are not to do with the primary issue, which is the care of the patient.
The bill removes a lot of the liability on the doctor's duty of care and gives it to someone who does not have the same level of duty of care, someone who has to satisfy a much lower level of what is right.
Having done that, is it correct that that person is not liable for the decision that they have taken?
That is a completely different subject, but it is like the difference between the evidence required for a criminal conviction—beyond reasonable doubt—compared to a civil conviction.
That is a crucial point. An attorney cannot make a clinical judgment.
I must repeat my concerns on this point. We are all influenced by different examples, which is a problem. Guardians and welfare attorneys are going to have varying degrees of care. I still think that a lot of the examples that are being given to us could be dealt with by making it clear that no one has the right to end an individual's life. We are not talking about that.
The position in the bill must be refined. At the moment, I feel that this bill does not take a clear final line on whose responsibility that is. Once a decision has been taken, there does not seem to be a clear line on who is responsible for it.
I am not sure that I agree with that. It is clear that, if the guardian or welfare attorney decides that treatment is not to be initiated or is to be withdrawn, the doctor cannot contravene that wish without going to court. That has merit, in the sense that it is clear. However, I believe that it is as unbalanced as the reverse situation that Malcolm described, in which the doctor could pursue treatment and the welfare attorney would have to go to court to prevent it. Both those situations are unacceptable. It is not just that I prefer a compromise—I believe that these matters must be worked out in the best interests of individuals.
We must make it explicit in the bill that that is not a choice either for doctors or for guardians. The issue of euthanasia must be removed from the bill. People are saying that it is there by accident or that it has come in through the back door, but if it is dealt with it will not form part of our discussions. No one is allowed to withhold treatment when someone is not about to die; that is not an option for doctors or carers. Once we have removed the issue from the bill, we can deal with the situations that remain.
Malcolm, at the moment our job is to raise concerns about the bill that is in front us, although I take your point.
I think that we should deal with this in two parts. We should deal first with euthanasia and then with the remaining issues.
I would say that the bill does raise the issue of euthanasia. As a carer, I would have to take into account the present and past wishes of the incapable adult. Let us say that I have no medical background and my wife is in a critical condition, having made it clear now and in the past that she wanted to die. I could say, without having to talk to a doctor, that treatment should be withheld. It does not even have to be pointed out to me that I am in contravention of this bill. I could simply say that I knew what my wife wanted, and someone would then have to take me to court to overturn that. My liability would be so limited that all that I would need to say was that I genuinely believed that my wife was fine. That is in the bill.
The points about the duty of care were well made, and it would be reasonable to include them in the bill. However, Malcolm Chisholm is right. If we say in general terms that we do not think that this is the way in which to deal with this issue, and that we have concerns that the bill introduces ambiguity and doubt, that will be sufficient at the moment. We should remember that, at this stage, we are commenting on the bill as a whole, rather than undertaking detailed scrutiny.
Yes. Because we have raised these concerns, amendments may be lodged and the bill may be changed. All that we can do at the moment is to raise concerns section by section about what is in front of us.
Malcolm is absolutely right—a number of individuals and organisations have raised a fundamental issue. It would be proper for us to express our concern about the way in which this subject has been handled and how it is clouding debate on the bill, and it would be proper for us to point out that the wording should be further considered because of where it could lead. We, and other individuals, would then have the opportunity to lodge amendments during the detailed scrutiny stage. At the moment, it is sufficient to say that we are concerned about the wording and its implications.
Those were good points and I do not disagree with any of them. The main issue is the role of the attorney who has the right to refuse treatment. The two major cases in England and Scotland have clouded the rest of the bill. We have to address whether water and the life-support machine can be switched off.
The limited liability provision allows someone to get away with it. It does not come up to the standard to match the benefit or the care provided. It is not about euthanasia—it has nothing to do with that. However, if we were to alter the provision, it would be from the limited liability angle. We have discussed paragraph 8 of my report. It is for the committee to decide whether it agrees with it or not.
Having read the bill and the various explanatory background notes, I thought of a few issues that I would like to raise. Other members have already covered a lot of them.
May I suggest that we first ask whether any committee members have other issues to raise? At the end, you can do a sweep up of anything that we have not covered, convener. I have one issue that I would like to raise.
All right. Who has a real constraint on their time? Hugh, Richard and Ben.
I have to be away at 3 o'clock.
That is a point that I was about to raise.
I do not think that we should try to reach a conclusion this afternoon, but we should indicate our concern. The organisation made its point well; I retain an open mind on whether I agree or disagree with what it said. Nevertheless, it has raised a concern that is worthy of further deliberation.
For the sake of the Official Report, can you be specific?
There is a lot in section 48 of the bill, but given the limited time, I do not want to go into the details. It is sufficient to say that concerns have been raised about research and section 48—for example, would further legitimate research be prevented, and could there be an unforeseen barrier to that research? We should ask that those questions be considered.
So the question is whether section 48 will be a barrier to non-therapeutic research and continuing research into chronic conditions.
There are two issues. First, research into causes is precluded by the bill; Alzheimer Scotland and two other witnesses have said that. That is because research into causes is unlikely to be of benefit to the individual—there would be difficulties in making that assumption.
Because research has to be linked to the specific benefit to the specific patient?
Beyond that, the problem is that it may be precluded by the European convention on human rights and biomedicine. We are considering whether to sign up to that at the end of the year. If we sign up to it, we need to ask whether the proposals in the bill or any amendments that we make to them would be precluded by the convention.
Do you have anything else to say, Hugh?
No, that was my main point.
I have not had time to read fully the evidence on the Mental Welfare Commission. However, the role of the commission is being changed in several respects—I would like to come back to this subject after I have had a chance to consider the evidence. Two sections deal with the Mental Welfare Commission, but perhaps that question should be sent to the Justice and Home Affairs Committee.
Some of the duties of the Mental Welfare Commission are being transferred to the health boards. We may want to discuss the whether health boards should be responsible for patients' finances.
As things stand, such matters depend on where the licence for an establishment is held. It falls to the registration officer of the health board to ensure that patients' funds are held and dispersed appropriately. There does not seem to be any change to that arrangement, although it is individualised—
A limit is imposed, as well. It does not involve property and shares and so on. A figure of £5,000 is mentioned.
I have a brief point about the letter from the Scottish Intensive Care Society, which rightly says that intensive care
One of the problems that I have is that the submission refers to the document, "Making the right moves", but does not mention specific sections of the legislation.
That ties in to the question about treatment in an emergency situation. I remember reading about it—we will have the relevant section by tomorrow.
Although we do not want to talk about euthanasia, we should be aware that many of those who have sent submissions to us are worried about the issue.
Malcolm Chisholm's point was well made. We have to clear up some of the ambiguities.
My concern is that we should meet the requirements of the European convention on human rights. I feel that we might be wasting our time going through the bill if it is not going to meet the test that will be applied. I do not think that the test has been applied to the bill yet.
The Justice and Home Affairs Committee will have to question the Executive on that.
I would like to thank Ben Wallace for his work. His report was helpful and he had obviously given some thought to it. One of the benefits of such a report is that it helps to focus the debate, although we might not agree with the detail.
I echo that and I recognise that Ben has done a lot in a short time, working with others to put the report together. The subject is complex and I know that all members will take an active interest in stage 2 of the bill. This afternoon's discussion has given some indication of the concerns about the bill.
Meeting closed at 14:49.