Victims of the infected blood disaster to feature in new Scottish Parliament exhibit

Jryna Batters, Bruce Norval and Bill Wright OBE describe the personal and lifelong impact infected blood has had on them and their families. The exhibit was designed in consultation with the infected blood community including representatives from Haemophilia Scotland and the Scottish Infected Blood Forum. It is thought around 3,000 people were infected in Scotland after being given contaminated blood products in the 1970s, 80s and early 90s.

The digital exhibit explores the decades-long timeline of how the infected blood disaster unfolded and how individuals worked to keep the issue in public and political awareness. It also looks at how the creation of the Scottish Parliament provided a platform to those who were campaigning for their voices to be heard.

Jryna lives in Skye and tells of her shock at being told she had Hepatitis C after a routine blood donation. Unbeknown to them, Jryna’s husband Donald had contracted the infection after a blood transfusion of infected blood products. She tells of the shame and stigma she felt along with the lack of support. Sadly, Jryna’s husband Donald died from liver cancer, which had a profound effect on her and her children.

Bruce from the Black Isle also tells of the enormity of the challenge in “fighting the whole system”. He feels he had to do a lot of work himself to find and challenge the evidence and narrative. Bruce and many of those infected were children at the time and he explains the lack of patient awareness and consent. He tells of the lifelong and devastating impact chronic illness has had on him and his family.

Bill, who lives in Dunkeld, explains how he was infected with Hepatitis C in 1986. Initially told that his infection was “unavoidable”, he is now living with liver cancer. He has campaigned tirelessly for justice, driven by his desire to see the truth uncovered for those who have died or those who lost family members as a result of being infected.

The Presiding Officer joined Jryna, and Bill to see the new exhibit going on display, alongside regional and constituency MSPs who represent them and representatives of the infected blood community who advised on the exhibit.

Presiding Officer, the Rt. Hon. Alison Johnstone MSP said:

“This new exhibit is a permanent reminder of the devastating impact the contaminated blood disaster has had on people in Scotland and their families. But not only that, it highlights their enduring campaign over several decades to get to the heart of the truth and seek justice.

“I am pleased that the Scottish Parliament is using its national platform to remind people of what happened to Jryna, Bruce and Bill and the thousands of others who have lost precious family members or are continuing to live with the impact of infected blood today.

“Their stories must never be forgotten. And we must continue to let them be heard to make sure nothing like this can ever happen again.”

Jryna Batters said:

“The impact of the infected blood disaster for me and my sons is significant loss. Loss of time with my husband Donald, loss of love, family time, memories and adventures.

“For me the exhibit represents some recognition for those that have sadly died and whose lives have been filled with pain because of infected blood.”

Bruce Norval said:

“I would really like people to learn from our experiences and for the Parliament at Holyrood to be committed to always continuing to listen to people who are in a minority.

“The Public Petitions Committee should always remain accessible to the smallest possible groups of people, and open to hearing their experiences and evidence. It’s particularly important that Parliament listens to people and evidence even when it might be uncomfortable, or at odds with wider narratives from people in positions of power, including the civil service.

“In Scotland right now, there is still a lack of joined up care across all victim groups, and I would like to see the Department of Health write to all GPs to ensure that the 500 or so infected people left in Scotland, receive the treatment and support they need at this time in life, which is usually people in their 50s and 60s. I would like to see care that is based on a clear treatment plan for infected people, including people infected as very young children, and acknowledgement that cancer isn’t the only risk to infected people, so that we all receive the best possible care and treatment now, and when it comes to end of life care.”

Bill Wright OBE said:

“The permanent video display in the entrance to the Parliament reinforces the decades of campaigning which continues on the detail of the compensation scheme. I thank the Parliament for taking this initiative. With Scottish Government support we continue to work towards a permanent tribute/memorial to the grievous loss and suffering faced by those infected and affected by the infected blood disaster. My hope is that this will come to fruition soon”.