S5M-12690.2 John Finnie: Improving the Lives of Scotland s Gypsy/Travellers As an ’ — amendment to motion S5M-12690 in the name of Angela Constance (Improving the Lives of Scotland s Gypsy/Travellers), insert at end ", and recognises the need for such support to be ’ underpinned by measures that enable Gypsy/Travellers traditional way of life, including the ’ mapping of stopping-off places and, save in exceptional circumstances, making these available to the Gypsy/Traveller community." followed by Business Motions followed by Parliamentary Bureau Motions 5:00 pm Decision Time Tuesday 12 June 2018 3 Today's Business Future Business Motions & Questions Legislation Other Gnothaichean an-diugh Gnothaichean ri teachd Gluasadan agus Ceistean Reachdas Eile Chamber | Seòmar followed by Members' Business Debate on the subject of— S5M-12545 Maurice Corry: Orkambi That the Parliament understands that cystic fibrosis — affects over 900 people in Scotland, including in the West Scotland parliamentary region, and that, in 2016, half of all people who died from the genetic condition were aged under 31; believes that Orkambi, which is manufactured by Vertex Pharmaceuticals and treats the homozygous delf508 mutation, which around 50% of people with in the UK with the condition have, is the second drug to be licensed for use in dealing with cystic fibrosis; notes that the main function of this treatment is to keep a healthy balance of salt and water in the organs, particularly the lungs; believes that, according to 2016 UK Cystic Fibrosis Registry Report, there are 336 people in Scotland who could benefit from having access to this, but that it is not currently available via the NHS, despite, it understands, the Scottish Medicines...