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Official Report
Meeting date:
30 November 2021
Meeting of the Parliament (Hybrid) 30 November 2021
Our vision is for Scotland to be a country where women and girls have equal rights and equal access to power and resources, and where they can live their lives free from gender-based violence.
Last updated:
9 January 2025
PB_2024_Paper189
S6M-14548: Michael Marra: New Care Pathways for People Living with Ehlers- Danlos Syndromes — That the Parliament understands that Ehlers-Danlos syndromes (EDSs) are part of the inherited connective tissue disorders, and are mainly characterised by joint hypermobility, skin hyperextensibility and tissue fragility; further understands that these syndromes are classified into 13 subtypes and present great clinical and genetic heterogeneity; believes that the most common is the hypermobile Ehlers-Danlos syndrome (hEDS), the diagnosis of which remains clinical; further believes that there is currently no pathway of care for adults living with hEDS or hypermobility spectrum disorder (HSD) in Scotland or the UK, and understands that people living with these conditions, including in the North East Scotland region, report feeling dismissed by healthcare professionals, with time to diagnosis reportedly currently averaging two decades; recognises the work of volunteers and campaigners at The Ehlers-Danlos Support UK, which was set up in 1987 to support, advise and inform those living with Ehlers-Danlos syndromes, and notes the encouragement for the Scottish Government and parliamentarians to engage fully with the issue, and to work with the NHS, researchers and patient representatives to deliver the care pathways that people living with Ehlers-Danlos syndromes need.
Last updated:
18 December 2024
PB_2024_Paper187
S6M-14548: Michael Marra: New Care Pathways for People Living with Ehlers- Danlos Syndromes — That the Parliament understands that Ehlers-Danlos syndromes (EDSs) are part of the inherited connective tissue disorders, and are mainly characterised by joint hypermobility, skin hyperextensibility and tissue fragility; further understands that these syndromes are classified into 13 subtypes and present great clinical and genetic heterogeneity; believes that the most common is the hypermobile Ehlers-Danlos syndrome (hEDS), the diagnosis of which remains clinical; further believes that there is currently no pathway of care for adults living with hEDS or hypermobility spectrum disorder (HSD) in Scotland or the UK, and understands that people living with these conditions, including in the North East Scotland region, report feeling dismissed by healthcare professionals, with time to diagnosis reportedly currently averaging two decades; recognises the work of volunteers and campaigners at The Ehlers-Danlos Support UK, which was set up in 1987 to support, advise and inform those living with Ehlers-Danlos syndromes, and notes the encouragement for the Scottish Government and parliamentarians to engage fully with the issue, and to work with the NHS, researchers and patient representatives to deliver the care pathways that people living with Ehlers-Danlos syndromes need.
Last updated:
20 June 2022
SPBill17PMS062022accessible
Policies supporting the NCS will be developed through co-design with diverse voices with lived or living experience of all ages.
Official Report
Meeting date:
3 October 2023
Health, Social Care and Sport Committee 03 October 2023
Part of that has been the establishment of a lived-experience expert panel. When we speak to people, we know that they do not live policy-siloed lives.
Last updated:
27 February 2026
ChairSFCToConvener_25Feb26
The next parliament will follow from over a decade relatively weak growth in living standards and has an outlook where living standards are not expected to improve over the next parliamentary term.
Last updated:
4 December 2025
Chamber_Minutes_20251204
David McGill Clerk of the Parliament 4 December 2025 Appendix (Note: this Appendix does not form part of the Minutes) Subordinate Legislation Affirmative Instruments The following instrument was laid before the Parliament on 4 December 2025 and is subject to the affirmative procedure— National Bus Travel Concession Schemes (Miscellaneous Amendment) (Scotland) Order 2026 [draft] laid under section 52(3) of the Transport (Scotland) Act 2005 Other Documents The following document was laid before the Parliament on 4 December 2025 and is not subject to parliamentary procedure— National Islands Plan - draft (SG/2025/294) laid under section 5(3)(a) of the Islands (Scotland) Act 2018 Published by the Scottish Parliamentary Corporate Body All documents are available on For information on the Scottish Parliament contact the Scottish Parliament website at: Public Information on: Telephone: 0131 348 5000 or 0800 092 7500 www.parliament.scot/documents Email: [email protected] Live...
Last updated:
19 November 2025
Rare Diseases Framework extension 29 October 2025
In the meantime, we will continue to implement Scotland’s Action Plan under the governance of our Rare Disease Implementation Board, to ensure that the lives of people living with rare conditions in Scotland continue to improve.
Last updated:
27 August 2025
Suicide prevention in Scotland notification of key publications 15 August 2025
It will also include active engagement with NSPAG, our suicide prevention Lived and Living Experience Panel and Youth Advisory Group, local suicide prevention leads and organisations working with groups and communities at higher risk of suicide.
Last updated:
4 March 2025
PE2017_F
In addition to COSLA and Scottish Government officers, membership includes representatives from: • Professional groups working in NHS perinatal mental health services; • Professionals working in relevant local authority services (Social Work and Early Years); • Perinatal Mental Health Network Scotland (PMHNS); • Royal College of Psychiatrists in Scotland The Group has sought input from those with lived and living experience to ensure it meets the needs of women and families in Scotland.
