"Worsened in big steps due to big stressors - trying to stay in work, trying to get help from doctors, losing my job, getting the vaccines, applying for benefits, finally getting some help but so debilitated that getting help is too much exertion for me so not even capable of getting the help now (“you’re too ill for this service” - me/cfs clinic)” Many people highlighted the impact of long COVID on their quality of life.