The cost of dying A UK Research and Innovation (UKRI) funded study called Dying in the Margins, undertaken by University of Glasgow and Marie Curie, examines barriers to, and experiences of, dying at home for terminally ill people, their families and carers living with financial hardship and deprivation through photography and digital storytelling. Key findings to date relevant to the committee are around existing housing stock often being unsuitable for supporting terminally ill people’s needs at home, and they experience significant barriers, delays and costs for housing maintenance and adaptations which they cannot afford.