While representatives from Scotland attend UK NSC meetings and remain in close contact to discuss any emerging issues, they must, at all times, respect and uphold the independence of the committee in formulating its advice, which is based on the best and most up to date evidence available. th As outlined in the UK NSC response to the Committee, dated 9 May 2024, the UK NSC does not make decisions regarding which conditions to screen for based on how rare a condition is or is not.