This equates to approximately 2 hours per week of Genetic Alliance UK’s Policy and Engagement Manager time. 6. Work of CPG 2021/2022 and future plans MSPs are invited to note that: - X of meetings have been held considering topics such as newborn screening, access to medicines, treatment and services for rare conditions, improving care coordination and the experience of diagnosis for people with rare, genetic and undiagnosed conditions, progress towards implementing the UK Rare Disease Framework in Scotland and how research is improving diagnosis for rare, genetic and undiagnosed conditions. - It has been challenging to hold quorate meetings, however it is important to note that the CPG has also attracted non-member MSPs to attend some meetings.