Chamber and committees

We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

Through the NHS Inform Women’s Health Platform, we have made a range of information on endometriosis available to women online.

This has included the Endometriosis UK Pain and Symptom Diary as well as access to a self-help tool on periods and mental wellbeing.

A menstrual health symptom questionnaire has also been developed by NHS Education for Scotland and is available through the TURAS platform for healthcare professionals to share with women. It will also be available for women to access directly via the NHS Inform Women’s Health Platform shortly.

We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

Through the delivery of the Women’s Health Plan we have worked to ensure that women have access to comprehensive information on endometriosis – including options for treatment.

We have; launched a Women’s Health Platform on NHS Inform which includes an endometriosis page with consistent, reliable and accessible information, including a short lived experience film, empowering women to make informed decisions about their health; worked with organisations such as the Health and Social Care Alliance Scotland, Young Scot and Endometriosis UK to raise awareness about the condition and deliver accurate and supportive information to the public; funded Endometriosis UK to produce a booklet and two webinars on treatments and self-management tips for managing endometriosis pain.

More information can be found in the Women’s Health Plan Final Report.

This data is not routinely collected.

We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

That is why endometriosis is one of the key priorities in the Women’s Health Plan and will continue to be so.

The figures below relate to Endometriosis research funding directly awarded following a competitive independent review process either through Chief Scientist Office’s (CSO) project funding committees, or fellowship funding panels.

This includes the 2022 Scottish Government collaboration with Wellbeing of Women on a £250,000 research call. The research is primarily being run by researchers at The University of Edinburgh and will look at a non-hormonal drug in the management of endometriosis-associated pain.

Most awards are multi-year. The figures below relate to the year in which the funding was committed rather than a breakdown by year of the spend profile for individual projects or fellowships

2007 0

2008 0

2009 0

2010 0

2011 0

2012 £110,198

2013 0

2014 0

2015 £27,639

2016 0

2017 0

2018 £162,651

2019 £30,000

2020 0

2021 0

2022 £394,510

2023 £349,999

2024 £623,028

Full details of CSO’s direct research funding awards are available from the CSO website Funded Research – Chief Scientist Office

The Health and Social Care Alliance Scotland (the ALLIANCE) has continued to support the Women’s Health Plan through their dedicated lived experience programme, including a Women’s Health Lived Experience Stakeholder Group, to help us continue our conversation with women, and ensure women are meaningfully involved in decision making and priority setting going forward.

More information can be found in the ALLIANCE Final Report on Women’s Health Plan.

The Scottish Government provides baseline funding to NHS Boards, which Boards use to best meet the healthcare needs of their resident population. Funding is not ring-fenced for the treatment of endometriosis. It is not therefore possible to identify funding allocated specifically for endometriosis.

Through the Women’s Health Plan, a range of funding has been provided for resources and research related to improving endometriosis care.

The Scottish Government collaborated with Wellbeing of Women on a £250,000 research call in 2022. The research is primarily being run by researchers at The University of Edinburgh and will look at a non-hormonal drug in the management of endometriosis-associated pain.

The Chief Scientist Office announced funding of £299,509 for the 30 month ENDOCAN project in January 2023, led by researchers at The University of Edinburgh. Through a large scale UK-wide trial, the research will investigate whether a cannabinoid can reduce endometriosis-associated pain.

The Scottish Government also provided £24,000 of funding in August 2023 to Endometriosis UK to deliver a project creating new resources to support people with endometriosis.

The Scottish Government collaborated with Wellbeing of Women on a £250,000 research call in April 2022. The research is primarily being run by researchers at The University of Edinburgh and will look at a non-hormonal drug in the management of endometriosis-associated pain.

The research will be funded over 3 years with the research findings expected to be disseminated in December 2025.

In January 2023 the Chief Scientist Office announced funding of £299,509 for the 30 month ENDOCAN project, led by researchers at The University of Edinburgh. Through a large scale UK-wide trial, the research will investigate whether a cannabinoid can reduce endometriosis-associated pain.

Recruitment for the study is due to start in August 2025 in NHS Lothian and NHS Grampian. More information can be found on the research being undertaken by The University of Edinburgh can be found on their website.

I refer the member to the answer to question S6W-30034 on 3 October 2024. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

Through the NHS Inform Women’s Health Platform, we have made information on a range of health topics, including endometriosis, available to women online and in one place. Reciprocal connections have been made throughout the platform with other Scottish Government sites such as Parent Club and with third sector organisations including Endometriosis UK and Endo SOS helping to raise awareness of the condition and supporting women to access the information they need when they need it.

In March 2023 we delivered an engagement campaign in partnership with Young Scot to increase young people’s awareness of endometriosis. The campaign primarily targeted those aged 11 to 25 in Scotland and provided information on how to support a young person in the process of diagnosis or who may have endometriosis.

The Health and Social Care Alliance Scotland (the ALLIANCE) has continued to support the Women’s Health Plan through their dedicated lived experience programme. This has included the development of the conversation café toolkit to encourage information sharing and peer support on women’s health including menstrual health and endometriosis.

The Endometriosis Care Pathway for NHS Scotland aims to support healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms.

To support health care professionals to improve their knowledge and understanding of endometriosis NHS Education for Scotland (NES) has launched an e-learning module on menstrual health available on Turas Learn. It is open to anyone working in NHS Scotland and in particular is aimed at those working in primary care.

Further training resources have been provided through the Women’s Health Masterclass on endometriosis which provided information on diagnosis, treatment and current research on endometriosis, raising awareness of the Pathway with attendees. The resources from this event are available on Turas Learn.

We are currently working with the Royal College of General Practitioners (RCGP) to develop new training resources on endometriosis, for general practitioners.

Through the Scottish National Menstrual Health Specialist Network healthcare professionals with a special interest in menstrual health have a forum for peer support and sharing expert clinical advice and best practice related to menstrual health symptoms and conditions.

More information can be found in the Women’s Health Plan 2021 - 2024 Final Report.