Chamber and committees

The information requested is not held centrally.

The information requested is contained in the following table. Leeds General Infirmary is not a designated transplant unit therefore transplant activity in St James’s University Hospital has been provided.

Paediatric patients¹ resident in Scotland who received a liver transplant in England 1 April 2004 to 31 March 2014:

Source: NHS Blood and Transplant

¹ Patients aged less than 18 at the time of transplant

# to prevent disclosure or patient identification, some values have been suppressed (mainly values of five of less, but other values may also be suppressed if publication could lead to deduction of other small numbers.)

The following table sets out the number of ophthalmic oncology referrals from Scotland to the Clatterbridge Hospital in England for low-intensity proton beam therapy.

Table 1: Patients referred to NHS England for proton beam therapy

Source: NHS National Specialist and Screening Services Directorate

Where possible, people who experience major trauma will be taken directly to one of the four enhanced specialist centres. This will ensure they are assessed and treated immediately by a specialist team with access to the wide range of specialist facilities and treatments needed.

Other centres will continue to care for people with less serious injuries, such as fractures and minor head injuries, and may still deal with a very small number of major trauma cases, particularly where patients are unable to reach a major trauma unit within a reasonable time period.

The proposed model of care will ensure definitive trauma care is provided across Scotland and importantly, better outcomes for people who experience major trauma.

A quality framework that will support the safe, effective and person centred delivery of major trauma care across Scotland has therefore been developed. NHS boards are currently scoping the work required to implement the framework.

After independence Scotland will maintain a very strong relationship with the other UK countries, and existing co-operation arrangements in the area of public health will be maintained.

Effective cross-border working arrangements are already in place for a range of specialist services.

There are a range of different funding avenues available to support youth voluntary organisations and charities. Individual funds and funders do not ring-fence amounts for particular types of applicants, and are more focussed on outcomes. As well as investing strategically through their work with a variety of partners, Creative Scotland and sportscotland administer funding programmes on behalf of Scottish Ministers which are available to charitable trusts, youth and voluntary organisations. Enterprising third sector organisations are able to apply to the Enterprise Ready Fund.

I refer the member to the answer to question S4W-20795 on 6 May 2014. All answers to written parliamentary questions are available on the Parliament’s website, the search facility for which can be found at:

http://www.scottish.parliament.uk/parliamentarybusiness/28877.aspx

Figures for referrals for retinoblastoma in children are available from 2007-08 and all were to Birmingham Children’s Hospital. The referrals include for confirmation of diagnosis and treatment:

This information is not held centrally for all forms of ataxia.

NHS National Services Scotland’s National Services Division (NSD) commission a highly specialist service from NHS England for the rare condition ataxia telangiectasia.

NSD holds information on the number of patients from Scotland referred to the ataxia telangiectasia service in Nottingham, however it would not be appropriate to share this information, in the interest of maintaining patient confidentiality, as the numbers are less than five.

An informal meeting with the Medicines and Healthcare Products Regulatory Agency has already taken place on 7 May 2014 and a more formal, larger meeting is being organised and will be attended by officials from the Health and Social Care Directorate in the Scottish Government.