Chamber and committees

I have the utmost sympathy for the women who may have been adversely affected by diethylstilbestrol (otherwise known as DES or stilbestrol).

The regulations for the licensing, safety and efficacy of medicines is currently reserved to the UK Government and is the responsibility of the Medicines and Healthcare products Regulatory Agency (MHRA). Any review of diethylstilbestrol (otherwise known as DES or stilbestrol) would ultimately be a matter for them to consider.

The information requested is not held centrally.

The Independent Working Group’s report on Antisocial Behaviour raises many important issues, including housing related matters and homelessness. The Scottish Government, Police Scotland and COSLA are considering the recommendations and Ministers provided a progress report to Parliament on key areas in April which will be followed by a comprehensive response in the Summer.

Directly comparable data is available from Financial Year 2014-2015 onwards corresponding to the introduction of the EDGE clinical research management system across the territorial NHS Boards and this data has been provided in the table below.

Patient recruitment figures by Financial Year are provided for 11/14 territorial NHS Boards. NHS Orkney and NHS Shetland patients are routinely treated as part of the NHS Grampian service and patients from these boards are included in the NHS Grampian recruitment figures below. A similar arrangement exists between NHS Western Isles and NHS Highland and is reflected in the recruitment figures below.

Accessed has been interpreted as patients who have been consented and recruited into a trial.

Drug trials has been interpreted as a Clinical Trial of an Investigative Medicinal Product as defined in the Medicines for Human Use (Clinical Trial) regulations 2004.

This information is not held centrally by the Scottish Government. The information may be held under the National Dental Inspection Programme (NDIP) which is a key function of the Public Dental Service, for which responsibility lies with Health Boards.

The NDIP website holds reports dating back to 2003 and covers information on how many children received an inspection each year. The website also holds some earlier reports from the Scottish Health Boards Epidemiological Programme (SHBDEP), which preceded NDIP.

The Scottish Government does not collect this data.

The Scottish Government is committed to implementing the National Neurodevelopmental Specification: Principles and Standards of Care for Children and Young People, published in September 2021, which specifies service standards that all children’s services should follow, to ensure access to support is effective and consistent across Scotland.

The recording of reported dog attack data is an operational matter for Police Scotland. The Scottish Government does not hold this information. Police Scotland may hold information relevant to the subject matter for this PQ and the member may wish to ask for through a freedom of information request to Police Scotland: Freedom of Information - Police Scotland.

The Scottish Government is not aware of any actions to investigate the reported number of people exposed to diethystilbesterol (also known as DES or stilbesterol).

The regulation for the licensing, safety and efficacy of medicines is reserved to the UK Government and is the responsibility of the Medicines and Healthcare products Regulatory Agency (MHRA).

The Scottish Government does not collect this data.

The Scottish Government is committed to implementing the National Neurodevelopmental Specification: Principles and Standards of Care for Children and Young People, published in September 2021, which specifies service standards that all children’s services should follow, to ensure access to support is effective and consistent across Scotland.

The Scottish Government have also established the National Autism Implementation Team, in partnership with Queen Margaret University, to support Health and Social Care Partnerships to consider best practice and support improvement through the redesign of autism diagnostic services.

The National Implementation Team is supporting NHS Boards to examine diagnostic pathways for autism and establish regional experts to assist with improving tiered autism specialisms across health boards.

The NHS in Scotland holds data on the prescribing of diethylstilbestrol (otherwise known as DES or stilbestrol) in both primary care and secondary care.

Data on primary care usage of medicines is published and available on the Public Health Scotland website Show all releases - Publications - Public Health Scotland. Data on secondary usage is not routinely published.