To ask the Scottish Executive what assessment it has made of equity of access to innovative treatments for patients with rare diseases.
The Scottish Government has not conducted an assessment of equity of access to innovative treatments for patients with rare diseases. There are longstanding commissioning arrangements to ensure patients are able to benefit from specialised services required for the treatment of rare and ultra-rare conditions. Access to this national resource is managed by the National Services Division (NSD) of NHS National Services Scotland, which commissions relevant treatment within NHSScotland or from highly specialised services across the UK or further afield in Europe, as and when it is required.
Our aim for NHSScotland, as set out in our Healthcare Quality Strategy, is that it provides the best quality healthcare services to the people of Scotland through the delivery of person-centred, safe and effective care.
Our ambition to deliver effective care includes providing the most appropriate treatments, interventions, support and services at the right time to every patient and eradicating wasteful and harmful variation in clinical practice. In undertaking their responsibility for the planning and provision of NHS services in their area, we expect NHS boards to focus on the quality of service they provide.