Chamber and committees

I refer the member to the answer to question S4W-03949 on 24 November 2011. All answers to written parliamentary questions are available on the parliament’s website, the search facility for which can be found at:

http://www.scottish.parliament.uk/parliamentarybusiness/28877.aspx.

I refer the member to the answers to questions S4W-03017 and S4W-03568, on 18 October 2011 and 8 November 2011 respectively. All answers to written parliamentary questions are available on the parliament’s website, the search facility for which can be found at:

http://www.scottish.parliament.uk/parliamentarybusiness/28877.aspx.

I refer the member to the answer to question S4W-03949 on 24 November 2011. All answers to written parliamentary questions are available on the parliament’s website, the search facility for which can be found at:

http://www.scottish.parliament.uk/parliamentarybusiness/28877.aspx.

I refer the member to the answers to questions S4W-03878 on 16 November 2011, S4W-03880 on 17 November 2011 and S4W-03882 on 15 November 2011. All answers to written parliamentary questions are available on the parliament’s website, the search facility for which can be found at:

http://www.scottish.parliament.uk/parliamentarybusiness/28877.aspx.

The money raised by the public health supplement will help to fund the decisive shift to preventative spending proposed in the spending review, of which the three change funds are an integral part.

We are committed to ensuring that young people with muscular dystrophy are supported to make the transition into adulthood.

Through the National Delivery Plan for specialist children’s services we have invested £1.5 million in improving services for complex respiratory conditions. This investment has delivered improvements in complex respiratory and Long Term Ventilation services and has created a number of new posts – consultants, dieticians, physiotherapists, nurses and pharmacists to allow more people to be treated locally.

The Scottish Muscle Network is setting up a specialist respiratory sub-group to promote access to specialist respiratory services for people living with neuromuscular conditions who require it. The respiratory subgroup is to be established next year as part of the network’s work plan.

Respiratory Clinicians from both paediatric and adult disciplines will be represented on the sub groups which will liaise with other existing local and national respiratory groups on issues relating to neuromuscular disorders, including the regional complex respiratory Managed Clinical Networks that are being developed, to maintain a co-ordinated approach.

The muscle network is also working to improve transitions from paediatric to adult services. It has set up a transitions group, which has produced transition materials for young people and health professionals which are being piloted. The network is also piloting a patient held record to assist with the transfer of information between healthcare professionals that will further support smooth transition.

A breakdown of funding proposed for the Scottish Futures Fund over the spending review period is shown in the following table:

This funding is new.

We are keen to ensure that the health and social care needs of people living with neuromuscular disease are met in an appropriate and timely way.

The creation of two social work posts is one option, but the ministerial statement published in March, makes it clear that a more efficient process for accessing social care should already be available. The Scottish Government, together with COSLA, have published a 10-year programme of reform – a strategy for self-directed support.

The strategy will bring a number of advantages. It will benefit not only the individual, but also help reduce unscheduled hospital admissions, prevent delayed discharges, and achieve more efficient use of clinical time and the resources that currently have to be devoted, inappropriately, to the creation of care packages.

The Self Directed Support Bill will also help. It will give people greater choice and control over their own care. It will widen eligibility to include carers, and we are funding councils, providers and user-led groups, starting with £3.4 million this year, to deliver this crucial agenda.

The Scottish Government has funded the Scottish Muscle Network to undertake a project designed to explore how SDS could improve personalised care for people with neuromuscular conditions, and to develop resources to promote the uptake of SDS within local communities.

We have therefore asked the Scottish Muscle Network whether there might be scope to further strengthen this approach.

The ministerial statement on neuromuscular disease published in March, makes it clear that we would discuss with those responsible for planning services in NHSScotland how the proposed MSA posts could be funded on a sustainable basis.

It is ultimately for NHS boards to plan and fund services to need the healthcare needs of their local populations and NHS Scotland’s Regional Planning Groups (RPGs) wish to be very clear on the role of the muscle specialist groups (MSA), their appropriate grading and whether the posts require to be full time.

We are keen to progress the work around whether three full time MSA posts are required in an informed and constructive way, which will ultimately see an improved service for people living with neuromuscular disease.

South East and Tayside (SEAT) and North of Scotland (NoS) regional planning groups (RPGs) are therefore carrying out scoping exercises that will clarify the MSA role and help inform discussions on the way forward. We expect these RPGs to complete their scoping exercises early in the New Year.

SEAT has said that if appropriate, it will develop a job description in collaboration with the SMN for the MSA role, which takes account of regional requirements and which has an appropriate job evaluation.

Following this, the Scottish Government is willing to provide funding to the RPGs to pilot and evaluate the muscle specialist advisor role to ensure that they can deliver the desired outcomes for people living with neuromuscular disease.

Should the pilot prove successful the Scottish Government will work with the RPGs to secure MSA funding in the longer term.

I refer the member to the answer to question S4W-03940 on 22 November 2011. All answers to written parliamentary questions are available on the parliament’s website, the search facility for which can be found at:

http://www.scottish.parliament.uk/parliamentarybusiness/28877.aspx.