Chamber and committees

The Scottish Government welcomes Kidney Care UK’s recently published report and its important findings and recommendations. These will be carefully considered and reflected as appropriate in future policy planning for long term conditions like chronic kidney disease.

While there are no current plans to conduct a national audit, we expect all NHS Boards to adhere to existing guidelines and best practice in delivering psychosocial care. Our Mental Health and Wellbeing Strategy, MentalHealth Core Standards and the National Specification for Psychological Therapies and Interventions set out clear expectations for the delivery of high-quality, person-centred support across Scotland.

More broadly, the Scottish Government recently consulted on a Long Term Conditions Framework, which will help inform future approaches to prevention, diagnosis and care, including support for mental health and wellbeing.

The Scottish Government remains committed to ensuring people living with kidney disease can access safe, effective and person-centred care, including appropriate psychosocial support.

The Burial and Cremation (Inspection) (Scotland) Regulations 2025 (the Inspection Regulations) make provision for the Scottish Ministers to establish and maintain a register of relevant bodies and provide a power to publish the register or any information contained in the register.

At present there is no universal list of burial authorities, cremation authorities and funeral directors operating in Scotland. The system of inspections will therefore be aided by the inspection register as provided for in regulation 4 of the Inspection Regulations. The Scottish Ministers may publish the inspection register or information from the register and this will, as information is collected over time, provide a platform for the public to access information about the location of relevant bodies, and whether they have been found to be non-compliant with relevant regulations or Codes of Practice. (Such regulations and Codes of Practice are the Funeral Director Code of Practice, the Cremation (Scotland) Regulations 2019, the Burial (Applications and Register) (Scotland) Regulations 2024, and the Burial (Management) (Scotland) Regulations 2025.) The inspection register will also help Inspectors to plan their inspections.

The Scottish Government launched the inspection register (titled the Funeral Sector Register) on 1 April 2025 via a digital portal and continues to encourage all organisations working within the funeral sector including funeral directors to register. The register is also publicly available and details the names and locations of those organisations who are registered.

Regulation 4 of the Burial and Cremation (Inspection) (Scotland) Regulations 2025 makes provision for the Scottish Ministers to establish and maintain a register of relevant bodies and provides a power to publish the register or any information contained in the register.

The Funeral Sector Register opened on 1 April 2025, and to date 92 organisations including funeral directors, cremation and burial authorities have registered. These organisations relate to 333 different premises across Scotland. The Scottish Government has and continues to encourage all organisations working in the funeral sector to register. In addition, the Scottish Ministers have the ability to add organisations to the register if they become aware of them.

We continue to promote the digital register and build on current number of organisations registered whilst highlighting the positive benefits of registration for both the sector and the public.

The Scottish Ministers appointed inspectors of burial, cremation, and funeral directors under section 89 of the Burial and Cremation (Scotland) Act 2016 on 1 October 2023 and 1 October 2024. There is currently one Inspector of burial, cremation, and funeral directors.

In light of the introduction of the inspection regime set out in the Burial and Cremation (Inspection) (Scotland) Regulations 2025, a range of work is in progress to support the appointment of further Inspectors, including establishing the register provided for under regulation 3 of those Regulations, training for Inspectors and support materials for Inspectors.

Section 93 of the Burial and Cremation (Scotland) Act 2016 requires each Inspector to prepare and publish an annual report. The time period for each report is dependent on the appointment date of each Inspector. The current Inspector’s appointment began on 1 October 2024, and the current report is due no later than 12 months after that appointment. Once published, the report will be laid before the Scottish Parliament in accordance with the requirements of the Act.

The Scottish Minsters are committed to the modernisation and improvement of the regulation of burial, cremation, and funeral services. The Burial and Cremation (Scotland) Act 2016 (the 2016 Act) provides for Ministers to make regulations in connection with burial, cremation and inspection; to issue Codes of practice; and to appoint independent Inspectors of burial, cremation and funeral directors.

Work remains ongoing towards full implementation of the Act, and in consultation with a range of stakeholders Ministers have already brought forward a number of regulations. In March of this year the Burial and Cremation (Inspection)(Scotland) Regulations 2025 came into force, providing Inspectors with powers of inspection and enforcement in relation to burial authorities, cremation authorities and funeral directors to ensure that such bodies comply with relevant requirements set out in the Act, the Funeral Director Code of Practice, the Cremation (Scotland) Regulations 2019, the Burial (Applications and Register) (Scotland) Regulations 2024 and the Burial (Management) (Scotland) Regulations 2025.

This inspection and enforcement regime will hold relevant bodies to account for compliance, through inspection against statutory requirements, and will provide clarity for relevant bodies and allow enforcement by Inspectors where non-compliance occurs. In addition, this will improve standards within the funeral sector in Scotland in order to protect the deceased and the public in Scotland.

We currently have a Senior Inspector of Burial, Cremation and Funeral Directors, whose main functions (including powers and duties) are set out in the Burial and Cremation (Scotland) Act 2016 Act (the 2016 Act) and regulations made under that Act. This includes the provision of an annual report detailing how they have exercised their functions as an Inspector.

The Scottish Government is committed to ensuring that all people living in Scotland with long term conditions including Chronic Kidney Disease are able to access the best possible care and support, and benefit from healthcare services that are safe, effective and put people at the centre of their care.

The Scottish Government is aiming to publish the palliative care strategy - Palliative Care Matters for All – and its associated delivery plan, later this summer. This timing reflects the time taken to analyse the 169 responses to the consultation on the draft strategy which closed earlier this year, and to undertake further work based on this feedback to inform the strategy’s finalisation.

We recognise the critical importance of ensuring that patients can access targeted cancer medicines promptly when associated genomic tests are required.

The development of a sustainable and more reactive funding model for genomic testing is a core commitment within the Genomics in Scotland strategy. Work to develop new funding mechanisms continues to progress, however, this process takes time and significant negotiation across Scottish Government and the entirety of the NHS in Scotland.

The Scottish Government remains committed to delivering equitable access to genomic tests associated with Scottish Medicines Consortium (SMC) approved medicines without unnecessary delay.

PIK3CA, AKT1 And PTEN gene alterations for breast cancer are listed on the Scottish Strategic Network for Genomic Medicine’s horizon scanning tracker.

We are keenly aware of the importance of accessing genomic testing in a timely manner for patient care and treatment, and we are working to expand our genomic medicine provision in Scotland, in line with our strategy and resources.