Chamber and committees

The information requested relating to how many Hospital Infection Incident Assessment Tool Red reports it received in respect of aspergillus infection at the Queen Elizabeth University Hospital and on what date is not centrally held by the Scottish Government due to potentially patient identifiable information.

The Scottish government does not include its long COVID estimates in the COVID-19 in Scotland dashboard, because they are instead published in the weekly Scottish Government Coronavirus (COVID-19): modelling the epidemic series of publications ( Coronavirus (COVID-19): modelling the epidemic - gov.scot (www.gov.scot) ). The estimates reported in the weekly Coronavirus (COVID-19): modelling the epidemic series are based on data and simulation, so are inherently uncertain and therefore this weekly modelling report is the most appropriate location to publish them.

Estimates of the number of long COVID cases in Scotland are also generated by the Office for National Statistics ( Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK - Office for National Statistics (ons.gov.uk) ). These estimates are caveated in a similar manner; “this is analysis of new, recently collected data, and our understanding of it and its quality will improve over time. Long COVID is an emerging phenomenon that is not yet fully understood. The estimates presented in this release are experimental statistics, which are a series of statistics that are in the testing phase and not yet fully developed.”

Information on the amount of people living with dystonia in each NHS board area is not held centrally by the Scottish Government or Public Health Scotland (PHS).

The Scottish Government has submitted a request through NHS Scotland’s Scottish Primary Care Information Request (SPIRE), which holds information from GP patient records, to better understand prevalence amongst neurological conditions including dystonia. We expect this data to be collected in 2022.

The Scottish Government is committed to ensuring that all people living in Scotland with dystonia are able to access the best possible care and support, and benefit from healthcare services that are safe, effective and put people at the centre of their care.

While the Scottish Government’s role is to set the strategic policy for the NHS in Scotland, NHS Boards and healthcare professionals locally have responsibility for both service delivery and people’s care. NHS Boards are expected to ensure that patients, including those who require care and support for dystonia, have access to a range of professionals to provide the appropriate management of their condition.

Dystonia UK, a leading charity that provides supports for people living with dystonia, is a member of the Neurological Alliance of Scotland (NAoS). The NAoS are key members of our National Advisory Committee for Neurological Conditions which is working to drive improvement in outcomes for people with a range of neurological conditions, including dystonia.

In 2019, we published a Neurological Care and Support – National Framework for Action, with a vision to ensure everyone with a neurological condition, including dystonia, can access the care and support they need to live well, on their own terms.

We are investing £4.5 million of funding to implement the 17 commitments in the framework, supporting innovative practice in neurological care for people with conditions such as dystonia. No applications have been received to date for projects in relation to the direct support and care of people affected by dystonia and we would welcome future applications.

Through Commitment 13 of the Framework, the Scottish Government will support neurological research by promoting the work of the Chief Scientist Office, third sector organisations’ research and Scottish neurological research networks; encouraging opportunities for people with neurological conditions to become involved in research trials; and highlighting the need for further qualitative research on the impact of living with a neurological condition.

The Chief Scientist Office research funding committees are open and applications on the underlying causes, diagnosis, treatment and management of dystonia are welcomed - Response Mode Funding Schemes – Chief Scientist Office (scot.nhs.uk)

The 2022-23 Scottish Budget provides investment of £18 billion for the Health and Social Care Portfolio, delivering on the commitment to pass on frontline health and care Barnett consequentials in full.

The funding associated with the Health and Social Care Levy is estimated to be around £1 billion per annum on average across the UK Spending Review period; however HM Treasury has not specifically quantified this funding within our overall settlement. All frontline Health and Social Care consequentials are being passed on.

The Scottish Government Reducing Risks in Schools guidance contains a range of mitigations, such as use of face coverings, distancing requirements in schools and on school transport, and guidance for visitors and in-school events. This guidance is currently under active review, with input this week from the COVID-19 Education Recovery Group and the Advisory Sub-Group on Education and Children's Issues . A new version will be published this week. The guidance will remain under regular review and, where the scientific advice supports it, mitigations will be enhanced or removed as appropriate.

The COVID-19 Scientific Advisory Sub-Group on Education and Children’s Issues published a summary report of the evidence on children, schools, early learning and childcare settings and transmission from COVID-19 on 12 August 2021. This included a brief summary of available evidence on Long-COVID in children and young people , along with a list of references to relevant evidence which may also be of interest. Public Health Scotland also provide a regular review of evidence for the sub-group in relation to COVID-19 and children and young people.

The Sub-Group continues to review the evidence on acute and prolonged health effects of COVID-19, and will update their advice if required in light of new findings.

In addition, the UK wide clinical guideline on managing the long-term effects of COVID-19 produced by the National Institute for Health and Care Excellence (NICE), the Scottish Intercollegiate Guidelines Network (SIGN) and the Royal College of General Practitioners (RCGP) is continuously reviewed and updated in response to emerging evidence.

For the November 2021 update, the evidence for children and young people was reviewed. A full overview of this evidence reviewed can be found on page 37 of the clinical guideline, accessible at Guideline COVID-19 rapid guideline: managing the long-term effects of COVID-19 (nice.org.uk)