To ask the Scottish Executive what treatment and support services are available to people with (a) progressive supranuclear palsy, (b) corticobasal degeneration; and (c) multiple system atrophy, broken down by NHS board.
Services for rare diseases such as progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) are provided by the clinical neuroscience units in Edinburgh, Glasgow, Dundee and Aberdeen. These services, which cover the whole of Scotland, are consultant-led, with nurse practitioner support and access to appropriate support such as physiotherapy.
In addition, there are long-standing commissioning arrangements to ensure people with MSA, CBD and PSP are able to benefit from highly specialised services across the UK, or further afield, when clinically indicated.
Voluntary organisations such as the Multiple System Atrophy Trust and the PSP Association also provide valuable support to people living with these conditions. The Neurological Alliance of Scotland, which receives some of its funding from the Scottish Government, acts as an umbrella organisation for all third sector bodies dealing with neurological conditions. We have also given a commitment to work with Rare Diseases UK on taking forward in Scotland the strategy Improving lives, Optimising Resources: A Vision for the UK Rare Disease Strategy, which it launched at the Parliament on 22 February 2011.
In addition, the Scottish Government strongly supports the implementation of NHS Quality Improvement Scotland''s clinical standards for neurological health services. These will drive local improvement of services for all those with a neurological condition, wherever in Scotland they live.