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Chamber and committees

Official Report: search what was said in Parliament

The Official Report is a written record of public meetings of the Parliament and committees.  

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Dates of parliamentary sessions
  1. Session 1: 12 May 1999 to 31 March 2003
  2. Session 2: 7 May 2003 to 2 April 2007
  3. Session 3: 9 May 2007 to 22 March 2011
  4. Session 4: 11 May 2011 to 23 March 2016
  5. Session 5: 12 May 2016 to 4 May 2021
  6. Current session: 13 May 2021 to 12 October 2025
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Displaying 819 contributions

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COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 23 March 2023

Brian Whittle

I would appreciate that, cabinet secretary.

On long Covid specifically, the world-class research that we have in this country highlights the issues that we have just talked about. How do we best deploy in our communities the data that has been gathered for our healthcare professionals on what long Covid looks like and what the symptoms are? We have heard and we know that what is happening practically on the ground does not match the research that we are doing, so how do we connect them? That has to be the starting point. What work are you doing on that? As you said, the data is cloud based, so it is about gathering all that knowledge together so that we can deploy it.

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 23 March 2023

Brian Whittle

I was just thinking about a point that Murdo Fraser made when he raised the potential advantages and disadvantages of having long Covid clinics. Have you considered that if we were to have such clinics where people with that condition, or who potentially have it, coalesce, one of the advantages would be an ability to gather data on it, because we would know where those people are.

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

That seems fair.

Professor Dominiczak, we have heard what Dr Scott said about how that information is now being deployed. How are we ensuring that that good practice is being reflected across the whole of each NHS board? We are hearing that it is patchy and that it is a bit of a postcode lottery with regard to whether people can access any treatment for long Covid, let alone diagnosis. How are we ensuring that that practice is deployed across the whole country?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

Excellent.

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

I will broaden out that question to you, Euan. We have always heard that Scotland is fantastic at gathering data—that we have a phenomenal ability to do that. However, given the practicalities of informing our GPs at the front line about what to look for in Covid and of deploying resources to help patients at the front line, our ability to deploy that data is not good. That is what we are hearing just now—that that element is not good.

Where are we with that, and what do we need to do to ensure that our healthcare professionals are properly informed about the issues around long Covid? We have even heard that some of them still do not believe in long Covid—they feel that there is a mental health issue around long Covid. The reality is that long Covid exists. How are we going to get to a point at which all that gathered data is available to our healthcare professionals so that they can deploy the resources?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

Do we have an information technology system in Scotland that allows for the proper deployment and sharing of data across the whole system?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

Good morning. My interest in health is around the gathering and deployment of data. Do we have a system that allows for the effective deployment of data? We gather data, but do we have a system that, in practice, allows that data to be crunched and deployed, such that effectiveness is measured as we consider how the data ends up being used in the treatment of patients? To date, we have heard from clinicians and from sufferers of long Covid that the investigation and the data are not allowing for effective treatment on the front line.

I put that to you first, Professor Robertson, as a statistician and a non-clinician. Is that right?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

That leads me to another question. As I have said, the quality of research in Scotland is world renowned, but, at the end of the day, it is about how you deploy that effectively on the ground. Can any of the other witnesses—I am looking at you, Dr Scott—help me understand how that data is being deployed to help patients, because that is what we are trying to do?

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 9 March 2023

Brian Whittle

I was interested to hear you say that you have access to data on 5.1 million Scots. That is a significant pool of data from which you can draw. However, for that to be useful, people would first have to suspect or know that they have long Covid and they would then have to access a GP to be diagnosed, or at least be signposted somewhere by their GP to be diagnosed. They would then have to be able to identify a treatment.

You gave the figure of 5.1 million people, but the research that we have done and the evidence that we have taken suggest that there is a problem, especially in more deprived areas, to do with people who potentially have long Covid coming forward.

COVID-19 Recovery Committee

Long Covid Inquiry

Meeting date: 2 March 2023

Brian Whittle

Good morning, panel. Thank you for coming and sharing your experiences.

When we speak to long Covid sufferers, the theme that comes out is a long journey to get to a diagnosis and then to get through treatment. The diversity of symptoms for long Covid seems to require a process of elimination. They get electrocardiograms, MRIs and blood tests. All the other conditions that put the NHS under pressure have not gone away.

It strikes me that one of the keys to streamlining and making efficient the diagnosis and treatment of long Covid is how we gather and use data. Are we gathering data? Do we have an information technology system that allows the deployment of that data?

I am looking at your responses, Dr Heightman, so I will start with you.