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Chamber and committees

Official Report: search what was said in Parliament

The Official Report is a written record of public meetings of the Parliament and committees.  

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Dates of parliamentary sessions
  1. Session 1: 12 May 1999 to 31 March 2003
  2. Session 2: 7 May 2003 to 2 April 2007
  3. Session 3: 9 May 2007 to 22 March 2011
  4. Session 4: 11 May 2011 to 23 March 2016
  5. Session 5: 12 May 2016 to 4 May 2021
  6. Current session: 13 May 2021 to 8 February 2026
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Displaying 4270 contributions

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Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 8 September 2021

Jackson Carlaw

You made reference to a survey. Is that a new survey?

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 8 September 2021

Jackson Carlaw

I am pleased to say that Rhoda Grant has a season ticket to the Citizen Participation and Public Petitions Committee this morning. She joins us, along with Liam McArthur MSP, for petition PE1804, which is on Highlands and Islands Airports Ltd’s air traffic management strategy. The petition, which was lodged by Alasdair MacEachen, John Doig and Peter Henderson on behalf of Benbecula community council, calls on the Scottish Government to halt HIAL’s air traffic management strategy project and to conduct an independent assessment of the decisions and decision-making process of the ATMS project.

The clerk’s note summarises the extensive actions that were taken on the petition during session 5, which included holding oral evidence sessions with the petitioners, representatives of HIAL and the then Cabinet Secretary for Transport, Infrastructure and Connectivity.

Since the petition was last considered, we have received four submissions: two from HIAL, one from the cabinet secretary and one from the petitioners, all of which have been circulated as part of our meeting papers.

I invite our two visiting MSP colleagues to comment before committee members do so. Since he has been waiting for his moment in the sun, I invite Liam McArthur to comment first.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 8 September 2021

Jackson Carlaw

I am sorry—when was that? Is that a new development, or was the committee previously aware of it?

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 8 September 2021

Jackson Carlaw

Do we know whether the round-table event took place?

The clerks are not sure. We want to confirm whether that event took place. If it did, it would be sensible to establish any outcomes from it.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 8 September 2021

Jackson Carlaw

That meets with the general agreement of the committee.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 8 September 2021

Jackson Carlaw

There was a members’ business debate on the issue in session 5, which, from memory, was led by Alexander Burnett.

Do members agree to take that approach?

Members indicated agreement.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 8 September 2021

Jackson Carlaw

Now that we have heard from Christine Grahame and read the submissions, I turn to colleagues for their comments.

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 8 September 2021

Jackson Carlaw

I was struck by Emma Harper’s advocacy of holding off a round-table discussion until we see a little more about where things are going. However, we can still reserve the right to come back to that. We should be clear that we will write to the UK Government about the A75. Do committee colleagues agree to that?

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 8 September 2021

Jackson Carlaw

The next continued petition is PE1662, on improving treatment for patients with Lyme disease and associated tick-borne diseases, which was lodged by Janey Cringean and Lorraine Murray on behalf of Tick-borne Illness Campaign Scotland. The petition calls on the Scottish Government

“to improve testing and treatment for Lyme disease and associated tick-borne diseases by ensuring that medical professionals in Scotland are fully equipped to deal with the complexity of tick-borne infections, addressing the lack of reliability of tests, the full variety of species in Scotland, the presence of ‘persister’ bacteria which are difficult to eradicate, and the complexities caused by the presence of possibly multiple co-infections, and to complement this with a public awareness campaign.”

When the petition was considered previously, in February 2021, the session 5 committee took evidence from the then Minister for Public Health and Sport, Mairi Gougeon, who was supported by Scottish Government officials Dr Gill Hawkins, the senior medical officer for health protection and public health, and Professor Tom Evans, the chief medical officer’s specialty adviser on infectious diseases. During the session, the minister stated that the Scottish Government was

“committed to supporting people with Lyme disease, finding new and better diagnostic and treatment tools, and trying to prevent it in the first place.”—[Official Report, Public Petitions Committee, 24 February 2021; c 2.]

It was revealed that the Scottish Government would soon be holding a round-table event that would bring together clinicians, patient representatives and public health experts to discuss testing, treatment and raising awareness. The minister confirmed that the Scottish Government was keen to develop an infectious diseases managed clinical network and that consideration of Lyme disease would be included in its workstream. The minister and her officials also agreed that more research was needed to underpin the development of better treatment options, particularly for people with longer-term symptoms.

Do colleagues have any comments or suggestions that they would like to make?

Citizen Participation and Public Petitions Committee

Continued Petitions

Meeting date: 8 September 2021

Jackson Carlaw

The next continued petition is PE1723, on essential tremor treatment in Scotland, which was lodged by Mary Ramsay. We are joined for consideration of the petition by Rhoda Grant MSP. The petition calls on the Scottish Government to raise awareness of essential tremor and to support the introduction and use of a focused ultrasound scanner to treat people in Scotland who have the condition.

The session 5 committee previously considered the petition at its meeting on 10 March 2021. At that meeting, the committee agreed to keep the petition open and to include it in its legacy paper for its session 6 successor committee colleagues—us—along with a suggestion to seek an update from the Cabinet Secretary for Health and Sport on the Scottish Government’s plans to make an application to the national specialist services committee for a magnetic resonance-guided focused ultrasound—which is actually easier to say than MRgFUS—service. Magnetic resonance-guided focused ultrasound is a relatively new treatment for essential tremor, which uses magnetic resonance imaging to guide powerful focused ultrasound to a small point in the body, causing an intense local heat that can destroy tissue.

The Scottish Government highlighted guidelines that were published in June 2018 by the National Institute for Health and Care Excellence, which is commonly known as NICE, on the use of unilateral magnetic resonance imaging-guided focused ultrasound thalamotomy for treatment-resistant essential tremor. It concludes that although clinical evidence does not raise safety concerns, current evidence of efficacy is limited. Therefore, evidence of patient benefit is currently too limited for the national health service to adopt MRI-guided ultrasound technology for treatment of essential tremor.

The Scottish Government notes that the national specialist services committee met in December 2018 to consider a stage 1 application for specialist treatment of patients with ET using magnetic resonance-guided focused ultrasound. The committee was unable to endorse the application for funding as a nationally designated service. It was highlighted that NICE guidance is “permissive”, and although there is some evidence for use of magnetic resonance-guided focused ultrasound in essential tremor, there is a clear statement that research is needed into its application for Parkinson’s disease and multiple sclerosis tremor.

The NSSC was clear that, should the evidence base be further developed and magnetic resonance-guided focused ultrasound be recognised as a safe and effective intervention for treatment of tremor, the committee would be willing to consider a reapplication.

On 16 December 2020, our predecessor committee took evidence from Professor Dipankar Nandi, who is a consultant neurosurgeon and head of department at Charing Cross hospital and St Mary’s hospital, and a professor at Imperial College London. Our meeting papers summarise the evidence from that meeting.

In her submission, the petitioner advised that her tremors and the lack of understanding surrounding them have impacted on her entire life. She does not believe that there is a need for further research into and evidence of the effectiveness of magnetic resonance-guided focused ultrasound before the Scottish Government backs it. She notes that the treatment for essential tremor is currently available on Medicare in the USA and on the NHS in Japan, and in other countries around Europe.

When referencing the progress made by NHS England, the petitioner concludes that she believes that

“while England is proceeding a pace with providing this treatment, unfortunately Scotland is falling behind as the costs for bringing it to Scotland are”

simultaneously

“increasing.”

Before I turn to colleagues, I invite Rhoda Grant to speak in support of the petition.