The Official Report is a written record of public meetings of the Parliament and committees.
All Official Reports of meetings in the Debating Chamber of the Scottish Parliament.
All Official Reports of public meetings of committees.
Displaying 1038 contributions
Equalities, Human Rights and Civil Justice Committee
Meeting date: 3 December 2024
Tess White
I look forward to seeing progress on the situations for those 84 learning disabled people who are in delayed discharge.
You touched on assessments and said that more work is needed. The committee heard concerns about waiting times for assessments and diagnosis that were not addressed in the LDAN consultation. What action is the Scottish Government taking to address a growing demand? You highlighted the huge demand for assessments.
Equalities, Human Rights and Civil Justice Committee
Meeting date: 3 December 2024
Tess White
The issue that you talk about with psychiatrists is huge. There is no workforce plan and the issue has not shifted since I came into this job nearly four years ago.
Suzi Martin from the National Autistic Society Scotland shared with the committee last week that Scotland
“is already falling behind England, where … data on waiting times”
for autism and learning disability assessment
“is collected, disaggregated and published.”—[Official Report, Equalities, Human Rights and Civil Justice Committee, 26 November 2024; c 5.]
How can the Scottish Government manage what it is not measuring in relation to assessments?
11:15Equalities, Human Rights and Civil Justice Committee
Meeting date: 3 December 2024
Tess White
It would be good if you could look at the issue of assessments, because that is a huge area.
Equalities, Human Rights and Civil Justice Committee
Meeting date: 3 December 2024
Tess White
As you know, people are falling between the cracks. I will leave that with you.
You mentioned CAMHS. In the NHS Tayside area in my region, the current waiting time for children who have been referred to its neurodevelopmental services is 154 weeks. That is almost three years. We know that children with autism and additional support needs are five times more likely to be excluded from school, but those children feel that they are being left in limbo through no fault of their own. What support is available to those children if they cannot access diagnosis and treatment?
Equalities, Human Rights and Civil Justice Committee
Meeting date: 3 December 2024
Tess White
Minister, I will build on my colleague Paul O’Kane’s question about non-legislative interventions. You have described to the committee a host of work that is going on. However, you cannot manage what you do not measure. For example, of 181 people in hospital with learning difficulties and complex care needs, 84 were classified as delayed discharges, which is close to half. That is a huge issue. You said that you are struggling to effect change without the bill, but there are some key areas that you are accountable for. The LDAN bill has been delayed and the Scottish Government has finally conceded that the National Care Service (Scotland) Bill is not fit for purpose, and meanwhile the social care sector is in crisis. Therefore, what action is the Scottish Government taking now to ensure that adequate care is available in the community for people with learning disabilities and autism and neurodivergent people?
Equalities, Human Rights and Civil Justice Committee
Meeting date: 3 December 2024
Tess White
But it is not able to do that.
I have two final questions. Following the Cass report, under-18s in Scotland will be screened for mental health and neurodevelopmental conditions, such as autism, during initial assessments for gender dysphoria. The chief medical officer has confirmed that resources will need to be found to increase capacity. Given the exceptionally long waits for autism assessments, what progress, if any, has been made in that regard?
Equalities, Human Rights and Civil Justice Committee
Meeting date: 3 December 2024
Tess White
Earlier, Jacqueline Campbell talked about holding your feet to the fire, and I would like to do so on that issue, minister.
The employment rate for autistic people is only 29 per cent, and you said that more work can be done with employers. I have a constituent who has been waiting years for an autism assessment. She is in work, but she cannot get an assessment, which her employer needs in order to make reasonable workplace mitigations and adjustments. She is in a catch-22 situation, and the fact that she has had to wait years is just not good enough. She is one of the lucky ones, because she is in employment. Jacqueline Campbell is nodding her head, so she obviously realises that that is a huge issue.
I asked my constituent about going private, but she said that she cannot do that because she would then be out of the system. She needs an NHS assessment, but she cannot get one.
Minister, what suggestions do you have for increasing the number of autism assessments?
Equalities, Human Rights and Civil Justice Committee
Meeting date: 3 December 2024
Tess White
At the start of the meeting, you said that we are struggling to effect change without the bill. The view is that you are kicking the can down the road. I accept that they are not simple, but the committee has given you some clear concrete suggestions and examples relating to assessment, measuring and having proper data. I hope that you will take those away and start to effect change as soon as possible.
Equalities, Human Rights and Civil Justice Committee
Meeting date: 26 November 2024
Tess White
I will put this question first to Jenny Miller, then to Simon Webster and Susan Burt. MSPs are currently marking—
Equalities, Human Rights and Civil Justice Committee
Meeting date: 26 November 2024
Tess White
Thank you.
Would the LDAN bill be the right vehicle for tackling the issue? I will put that to Simon, and then to Jenny.