Official Report 276KB pdf
I draw members' attention to the fact that this morning an extra petition has been added to our agenda. Petition PE434, from Mrs Jeanna Swan, relates to the Protection of Wild Mammals (Scotland) Bill and its implications for animal welfare. We will deal with that petition last. A paper relating to the petition is being circulated.
Health Education (Guidelines) (PE427)
The first of the new petitions is petition PE427, from Rev Iain Murdoch. The petition, which has more than 13,000 signatures, calls on the Scottish Parliament to urge the Scottish Executive to withdraw its list of resources for health education and to ensure that all teaching materials comply with the more recently approved guidelines issued by the Scottish Executive education department on the conduct of education in schools. Rev Iain Murdoch is here to speak to the petition. Gil Paterson MSP, who has an interest in the petition, is also present. I ask Rev Iain Murdoch to introduce his colleague.
I am a minister at Cambusnethan in Wishaw. I have brought my wife with me but I am afraid that Mgr Michael Conway, my Roman Catholic colleague, who would have liked to accompany me to this meeting, has not been able to get cover. I will speak only for myself, but the petition is in the name of both of us and of the many people who signed it.
You have three minutes to make an opening statement. We will then take questions from members of the committee.
I thank the convener and members of the committee for allowing me to speak to the petition. Since our first meeting in March and in later letters, officials and politicians have not given us straight answers; they have dismissed our concerns as exaggerated or irrelevant, claiming that we have taken things out of context. It is still being denied that the list is official and that resources are designed for use in the classroom. I refer members to the letter that the Minister for Education and Young People wrote to MSPs on Friday.
Thank you. Before members of the committee ask questions, Gil Paterson wants to make a point.
l will come in after the committee members to ask questions on any points that they miss.
I thank the petitioner for an excellent presentation. You asked why you should bother. I have seen much of the material to which you refer. I wrote to Jack McConnell and asked him to send it to all MSPs so that they, too, could examine the detail. He refused—I am not sure why.
I have not distorted the situation. I have merely quoted and given examples from the materials that are recommended in the Executive's "5-14 National Guidelines Health Education Guide for Teachers and Managers". I believe that the minister's letter says that there is no Scottish Executive-endorsed or recommended list of resources for sex or drugs education. Well, the guide for teachers and managers has the Scottish Executive's imprint. It is referred to as a basic document in the 2001 circular. It contains a clear list of resources that are suggested as useful.
You have second-guessed my next question. The minister, as you say, states that the Executive has not endorsed or recommended anything. However the Executive has provided national advice and guidance. How do you define the difference between those two things?
That is difficult. The Healthwise materials are all designed for classroom use. On almost every page there is advice that the sheets may be photocopied. Some of the examples that I have given are clearly designed for easy and convenient use. That is the purpose of the sheets. For education authorities and busy teachers who are under pressure, the plain import is that the sheets are a resource that they can pick up and use. The wording is clearly geared towards that.
Thank you. I have a series of questions but I recognise that others want to come in. Perhaps the convener will allow me one more question at this point; if opportunity allows, I will come back with more questions.
There is a parental right to withdraw children. That right comes from European legislation and is referred to in the Executive's circular. However, if we have to rely on a right to withdraw, we have admitted defeat. We should be able to send our children to school without worrying that they are going to be singled out because their parents are clear that the materials are not suitable. Some local authorities are using those materials. I am not aware that there has been full consultation in every instance; I am certain that there has not been.
Is not it the case that a lot of those resources are for the teachers' use, to inform them before they teach the class? It is up to the local authority to ensure that the material that is used to teach that class is suitable.
It is true that local authorities have recommended the materials. Where they have been recommended, it is as a resource for teachers. However, it is clear when one reads through the material, especially that produced by the Healthwise organisation in Liverpool, that it is designed for handy and convenient use.
In your answer, you said that you would have felt inadequately prepared to teach sex education. As we do not have teachers who learn to teach sex education at university, surely teachers must be provided with more information than they need to teach. That is the case with most subjects. Most teachers have access to more information than is in the curriculum, so that they can be adequately prepared to answer any questions that may be asked.
The four materials that were produced by Healthwise do not only give information; they also give misinformation. The principles that lie behind the materials are insidious. The materials suggest that, when primary school teachers are preparing to teach sex, there should be brainstorming sessions in which teachers are encouraged to share their sexual experiences and to overcome their inhibitions. That does not seem to be a healthy approach. This stuff is fundamentally flawed.
Have any of the materials about which you are concerned been used in a classroom to teach children?
Yes. We have heard that from parents in various places.
Can you expand on that? Whereabouts has that happened?
I have heard that the materials have been used in Fife and in Perth. They were used in Glasgow before they were withdrawn. The materials have also been used in an Edinburgh school and are recommended for use by Dundee City Council, Angus Council, Fife Council, Scottish Borders Council and Orkney Council. I understand that the materials are being used by those local authorities.
Do the teachers hand out to pupils the material that you are concerned about?
My understanding is that the material is used in the classroom and that inappropriate handouts have been received. I am not a full-time politician or researcher. It is probably not the remit of the Public Petitions Committee to investigate all the details, but the matter should be remitted to the Education, Culture and Sport Committee to uncover the real facts. Great play has been made about stating things on the record so that we can get to the reality. I would welcome clarification of what is really being taught and of what guidance is being given to teachers.
I congratulate you on giving us your carefully worked out research and evidence. This is probably the first time that members of the Scottish Parliament have seen clear pinpointing of what is wrong with the material.
It would be useful. However, it is important to say that the material that I have shown to the committee is just selected highlights.
Lowlights, more like it.
There has been great play about items being taken out of context or sensationalised. I would like people to see the full material for themselves. The introduction to the primary school sex pack says that it is a toolkit of resources and activities that may be of use. Of course, teachers do not have to pick everything up. The introduction to "Taking Sex Seriously" says that purchasers of the manual should be able to copy sections of it to use as handouts in sessions with groups. There are clear lesson plans and a scheme of lessons is laid out.
Do not seven to 11-year-olds get that message, too, if it is conveyed to them by the teacher after reading the material?
I would be careful about jumping to conclusions, but there is a danger that the pure mechanics and procedures of sexual activity are expounded without any reference to the things that are mentioned in the circular—the need for relationships, the appropriate context, self-restraint and so on.
Mr McConnell's replies to you are quite lengthy and thoughtful and he has put a lot of work into them. Nevertheless, I agree that there is a vagueness about overall responsibility, because there are Scottish Executive-produced documents behind the materials and Scottish taxpayers' money has gone into them. Is your message that the taxpayers are paying for the materials, that the buck stops with the Parliament and that you want MSPs to act?
Yes—there has to be public responsibility. Education is too important to be left purely to quangos, which are not answerable or accountable agencies. In this case, they are irresponsible agencies.
Can we cut to the chase? Are you against sex education and drugs education in schools?
No, of course I am not. It is important that young people get clear information and a framework on which to base their decisions. They need to understand the mechanics of sexual activity and the importance of contraception. They also need to understand the importance of self-restraint and self-respect, as well as the importance of commitment and relationships. One should not be taught without the other, but that seems to be the implication in "Taking Sex Seriously". I do not see the need for primary-age children to be given information about sexual stimulation and about what goes on in homosexual intercourse. I do not see the need for first-year and second-year pupils to be invited to explore a variety of bizarre sexual activities.
I wish to take you back six months or so, when you were discussing this matter with people who had no knowledge of it. What was the effect of showing people the documents in question? Did anyone say that the materials were okay?
Some people have heard me discussing the materials and have said to me that we need open education and that we must be blunt with young people, who are getting information from all around them, including the media. In that case, it is even more important to give them objective information and a framework in which they can make their choices. The majority of people who have seen some of the workbooks have been absolutely appalled by them, in particular by some of the examples given, by some of the worksheets and by the underlying assumptions in them.
Are you asking people to make judgments about the documents based on your say-so, or are you asking MSPs to look at the materials and then form a judgment themselves?
I am asking MSPs to consider the materials and to make a judgment on that basis. I am not asking them to take my word for it, just as I am asking them not to take the word of the former Minister for Education, Europe and External Affairs or of officials for it. I am asking them to approach this with an open mind.
You said that you heard from parents that the materials were being used in schools throughout Scotland, for example in Fife, Perth, Glasgow, Edinburgh, Dundee and Angus. The committee's role is to decide whether your case justifies the material being passed to the Education, Culture and Sport Committee for further investigation, so we need to be absolutely clear about what you are saying. Are you telling the committee that you have evidence that the material that we have seen this morning is being used in Scottish schools to teach children in the age group seven to 11, or in any other age group?
The evidence that I have is from individuals who have phoned and passed it on by word of mouth. I do not have documentary evidence, apart from guidelines and curriculums from various councils, which have admitted that the materials are recommended and are being used.
They may be being used, but not necessarily in classrooms. Perhaps they are being used for teacher guidance or training. There is a huge distinction.
I have had reports from parents that these materials are being used, by which they mean that they are aware that "Taking Sex Seriously" and "Safe and Sound" are being used in the classroom.
In what sense are they being used in the classroom? Do you have evidence that these materials are being given to children?
The only evidence that I have that they are being used in the classroom is that people have told me that they are being used. I do not have photographic evidence. I am a parish minister who works seven days a week. I have not got the resources to pin things down, but Parliament has. Parliament can get the information; it can instruct education authorities to provide the information. Officials can come clean about some of the contradictions that they seem to deny. There are certainly local authorities that have admitted that such materials are recommended for use in their schools, and that they are being used.
As you said, you are only a parish minister and you do not have the resources to look into the matter in detail, but the Church of Scotland and the Catholic church were fully involved in the McCabe committee and they declared themselves to be satisfied with the safeguards that were issued in the guidelines. You really have to make a case here. First, what wider support—other than you and the monsignor who was unable to come here this morning—is there behind the petition? Does the Catholic church endorse the petition? Does the Church of Scotland endorse the petition?
The convener of the education committee of the Church of Scotland, Jack Laidlaw, has written on behalf of his committee to the Minister for Education and Young People asking for these unsuitable materials to be withdrawn. My understanding is that that is the position of the Catholic church as well. McCabe came first, then came the five to 14 guidelines from the Executive—although they were produced by Learning and Teaching Scotland—and then came the circular. The churches were happy with the circular. However, the circular referred to the guidelines and on further examination the Church of Scotland and the Catholic church have asked for them to be withdrawn.
Are there any final questions?
Convener, the point was made that—
If it is a point for discussion, we can address it when we discuss the petition. At this stage, we are questioning the petitioner.
Reverend Murdoch is a minister of the cloth and has not been able to demonstrate that the material is being used in full force with children by pinpointing where his information has come from. However, has Jack McConnell, who is a minister of the Crown, been able to demonstrate that the material has not been used? He tells us that it is up to individual teachers, so he is not in a position to demonstrate that it is not being used. Does Reverend Murdoch have evidence of such demonstration?
I do not have any evidence from Jack McConnell, the previous Minister for Education, Europe and External Affairs. He said that the materials might be useful, in whole or in part.
Was there anything in the materials to assist children in avoiding abuse?
No. That is the straight answer. There are occasional warnings to look out for the signs, as teachers should know their children, but that advice is of no use when outside professionals are brought into a class.
So there was not much advice to assist children in avoiding abuse, or on recognising the signs of abuse and warning teachers about what to look out for.
No. Some of the primary school material talks about inappropriate touching and children being able to say no to that. That is helpful. However, the fact that some children will have had sexual experiences or been abused is added almost as an afterthought in the bulk of the material—like shutting the stable door after the horse has bolted. The approach that is taken is that, although some children may not feel comfortable talking about such things, it is still better to brainstorm.
Thank you for your clear and comprehensive presentation. We will now consider what to do with the petition. You are free to stay and listen to the discussion among committee members.
There are further alternatives. Some doubt has been cast over whether the McCabe committee's original reports have been lived up to. We could write to the minister, suggesting that we recall the McCabe committee to re-examine the matter and determine whether what has happened subsequently has been in line with its expectations.
I suggest that we contact the councils that have been mentioned and ask what parts of the materials they distribute to children. That would give us a clearer idea of whether there are concerns that we should pass to the Education, Culture and Sport Committee.
I am not certain that we have a comprehensive list of the councils involved.
I have taken a note of them.
I can give you a list.
Fine, we are able to contact the councils concerned.
I suggest that every MSP be written to and urged to study some of the material. We should also distribute a copy of the petitioner's submission and, in the interests of fairness, Jack McConnell's response. MSPs are more ignorant of this subject than anyone else.
I am sorry to keep this discussion going for such a long time, but I want to support Dorothy-Grace Elder's point.
We have spent nearly an hour on this petition, which is the first on a heavy agenda.
The point is extremely important. If the McCabe committee were reconvened, it could get to the truth of the matter that Dorothy-Grace Elder raises. We are told that parents should be involved in sex education, but we know that teachers will take differing approaches to what they present to the class. That is a good reason for the McCabe committee to re-examine how the system is working.
Phil Gallie has suggested that we write to the Minister for Education and Young People, calling for the re-establishment of the McCabe committee before passing the petition to the Education, Culture and Sport Committee. However, I think that, if we pass the petition to the Education, Culture and Sport Committee, we should not carry out a parallel inquiry.
Could we e-mail MSPs to draw the petition to their attention?
That would put an extra burden on people who are already hard pressed.
We could ask the minister to do that.
If we passed the petition to the Education, Culture and Sport Committee, it would be for that committee rather than us to take such action. We can pass a copy of the Official Report of this meeting to the Education, Culture and Sport Committee to ensure that our concerns are taken into account.
I do not object to the petition being sent to the Education, Culture and Sport Committee, but I think that the Scottish Executive has a role to play. Ensuring that all MSPs are properly informed is not outwith the Executive's remit and it has a large bureaucracy to back it up.
To be honest, if we were to pass the petition to the Education, Culture and Sport Committee, it would become that committee's petition. Therefore, it would be for that committee to act on the petition and to come to a decision about it. On the basis of the information that we have heard this morning, I do not think that I would be qualified to call on the Executive to recall the McCabe committee. We have not heard sufficient evidence, and I would like to hear the other points of view that we have not heard this morning. We cannot come to a conclusion on the basis of one side of the story—we would need to get the story from the other side as well. We cannot make snap decisions simply because doing so suits individual members of the committee. That is an important point.
I do not think that we would be making a snap decision. We have received letters from the previous Minister for Education, Europe and External Affairs in which he said that McCabe is happy and that the Church of Scotland is happy. You said, convener, that we should ask the churches again.
No.
I am saying that we should ask McCabe again. I do not think that there is anything contradictory in that.
I am saying that—
I note that Helen Eadie seems to agree with you, but she did not have the benefit of listening to the whole debate or hearing the introductory remarks.
It is not a question of who agrees with me. A majority of committee members will get their way, whatever I think. All the comments that have been made this morning—including your comments about the recall of the McCabe committee—will be drawn to the attention of the Education, Culture and Sport Committee when the petition is referred to that committee. It will be for that committee to take those comments into consideration as part of the evidence gathering that it will undertake. We simply do not have time at this stage to mount a full inquiry into the petition, which we would need to do before we could come to a conclusion on it.
I am not looking for a full inquiry. I am proposing that the committee should contact the Scottish Executive and ask for certain action to be taken. That would not put any burdens on to the committee—we would simply pass a letter to a minister, asking that minister to fulfil a request. If the minister said no, it would be for the Education, Culture and Sport Committee to respond. If the minister said, "Yes—that is a good idea," everyone would be happy, including the petitioners.
Before we make such a request, we must consider the evidence and build a case for making that request. I do not think that we have heard evidence this morning to justify the committee making such a request of the Scottish Executive. That is why we should draw your comments to the attention of the Education, Culture and Sport Committee and ask that committee to deal with the petition, given that it is the subject committee with responsibility for this area.
I am sorry, convener, but I propose that we write to the minister, asking that the McCabe committee re-examine the situation.
I second that.
There will be a division.
For
The result of the division is: For 2, Against 3, Abstentions 1. The proposal is therefore disagreed to.
I thank the petitioners for attending the meeting.
Charitable Organisations (Regulation) (PE428)
The second new petition is PE428 from Mr Eddie Egan on behalf of Binny House, on the regulation of charitable organisations. At the outset, I apologise to the witnesses for the delay in reaching their petition. I know that some of the witnesses are not well, so it has been quite an ordeal for them to sit through the previous lengthy discussion. Bristow Muldoon is here as the local MSP.
Video evidence was shown.
Thank you. Perhaps Mr Egan would like to introduce his colleagues before making the presentation. You have three minutes, Mr Egan.
My colleagues are: Patsie McAdam, who is the mother of a service user at Binny House; Brian Clark who is also a service user at Binny House; and Wilma Campbell, who is the deputy matron of Binny House. I am a member of the action committee that is trying to ensure that Binny House stays open. The committee will know the local MSP, Bristow Muldoon.
I would like to thank the committee for letting me speak. I ask members to bear with me as I am not feeling too good this morning.
Thanks very much, Brian. That was very moving.
I do not think that I need to add any more to what Brian has articulated on behalf of MS sufferers throughout central Scotland.
I will make a brief contribution. It should be stressed that although Binny House is situated in my constituency and I am the local member of the Scottish Parliament, the service that is provided there is a service to the whole of central Scotland, not just to my constituents. People from Lanarkshire, West Lothian and Fife receive care at Binny House, as does—which the convener might be interested to know—one person from Dundee. Binny House serves people throughout central Scotland and provides a specialist service that is aimed at people who suffer from a range of conditions including MS, Parkinson's disease and motor neurone disease. It provides a range of services from long-term care to the respite care that Brian Clark mentioned—Patsie McAdam's son Richard receives care there—and also provides palliative care to a number of individuals.
Thank you very much.
For clarification, what is the best advice that you have received on the time scale for the closure?
Binny House will close on 28 February.
Have there been any suggestions about alternative provision or is it up to the individual service users of Binny House to arrange that for themselves?
There are for some service users alternatives such as older people's homes. For example, there is a home at Lasswade. People who are receiving palliative care will have to go either into Edinburgh or to St John's hospital at Howden.
The other point is that many of the alternatives that have been identified for the residents of Binny House are not of such a high quality or not as appropriate as the care that the residents currently receive. Although alternatives will undoubtedly be found, they will be less desirable than the current care provisions.
With regard to meetings with the authorities that are responsible—particularly with the commissioners of care—the minister said in last week's debate that he hoped that there would be discussions between the commissioners of care in Lothian and representatives of Binny House. Has such a meeting taken place?
The difficulty is that only one side in the affair is willing to come to the table. The main commissioners of care are Lothian NHS Board and the local authorities in east central Scotland. The last meeting between the commissioners and the provider of care took place on—I think—2 November, at which the most up-to-date offer on resources was made. The provider of care, Sue Ryder Care, left the meeting without deciding on the issue one way or the other and issued a press release later that afternoon indicating that it intended to close the home. Since then, Lothian NHS Board and the public authorities have indicated clearly to Sue Ryder Care that they wish to continue negotiations. Indeed, as recently as last week, James Barbour—chief executive of Lothian NHS Board—wrote again to the chief executive of Sue Ryder Care to encourage him to return to the table. However, I am not aware that Sue Ryder Care has yet agreed to do so.
Who owns Binny House? Does Sue Ryder Care own it 100 per cent?
Yes.
Do you deal with a Sue Ryder office in Scotland or in England?
We deal with an office in England.
So there is at least a geographic distancing. I thank Mr Egan for coming today—he had to travel some distance in horrible weather. He expressed his case well.
You should ask the petitioner questions at this time.
Does Mr Egan want the committee to call Sue Ryder Care to account?
I would be delighted if the committee did that.
We must act quickly because the recess is approaching.
The reason why the petition is more broadly framed is to encourage the Public Petitions Committee to act on it. I know that the committee wants to consider strategic rather than individual issues. Our undoubted priority is to save Binny House. Any assistance that the committee can give in raising the profile of the issue would be much appreciated.
Was that in the United Kingdom?
Yes. The costs rose from about £26 million to about £29 million. I am concerned because many of the cost increases were not connected to the provision of extra care places or to the costs of care. I am pretty sure that staff wages did not rise by 10 per cent last year. The areas in which expenditure increased are management, advertising and promotion, for example. We must ask how the organisation uses its resources and whether it is appropriate that specialist care homes such as Binny House pay the price for those increased costs.
If he has not done so, I suggest that Bristow Muldoon contact some of his Westminster colleagues. The organisation is trying to do something that is utterly deplorable in Scotland and Bristow's colleagues might not know about it. The founder of the organisation, Sue Ryder, who died not too long ago, would be horrified. Might the local authority or health authorities get together to buy Binny House and take it over?
We have asked that question. For that to happen, Sue Ryder Care must be willing to sell Binny House. The difficulty is that nobody knows what Sue Ryder Care's intentions are for the home—people are suspicious that the organisation intends to sell it for its capital value. A difficulty might arise if the organisation wanted to sell Binny House on the open market for development.
Does the house have grounds?
It is an attractive location and I imagine that its capital value is significant.
Roughly how many acres of land does it have?
I am not good at such things, but the house has many acres. The drive is about half a mile long.
We thoroughly disapprove of such sales when hospital boards do them—more disapproval should be heaped on the head of a charity.
If there are no other questions, I have a follow-up question to the last point that was made by Dorothy-Grace Elder. I understand that the latest funding package offer that was made to Sue Ryder Care would have made Binny House the second-best funded of their 26 centres throughout Britain. Is that right?
That is correct.
So there must be another, hidden agenda behind closing down the home. The matter is not just the funding package that is on offer. Could it be that we are seeing asset stripping and that Sue Ryder Care has a valuable property from which it can get a huge capital receipt?
That is our fear.
Is that why the organisation is closing the home? It has nothing to do with the care or funding that is made available by local commissioners.
The funding that was offered to Binny House by the public authorities would—depending upon whose figures you use—have covered between 84 and 93 per cent of the running costs of the home. That seems to be a high proportion and compares favourably with many of Sue Ryder Care's remaining homes.
Thank you for that excellent presentation. The petitioners are free to stay to listen to the discussion about what to do with the petition.
I agree. However, in considering the wider issue, we could still refer the petition to the Health and Community Care Committee. That committee is currently considering legislation and it might be appropriate that the law be changed to ensure that consultation takes place in order to prevent the same thing from happening to other groups. All the same, I understand why we must do something now to protect the people who are affected by the closure.
We could certainly send the petition to the Health and Community Care Committee for information until we get a response from the Executive. I know that the Health and Community Care Committee will have its final meeting of 2001 tomorrow so, if we pass the petition to that committee, nothing will happen until after Christmas, whereas if we take action now, something might happen. We will certainly pass the petition to the Health and Community Care Committee so that it can take it into consideration as part of its deliberations on future consultation.
I do not disagree with what is being proposed. However, given that the issue is so urgent, could we consider taking the more unusual step of asking the convener and Bristow Muldoon to seek a meeting with representatives of Sue Ryder Care? The issue is so urgent and vital for the people in Binny House that I do not think that we can wait until January or February for progress. Perhaps the matter requires personal intervention by the convener.
I am not sure that I am the best-qualified person. We can certainly make that offer to Sue Ryder Care when we meet its representatives. We want an urgent response from Sue Ryder Care and I would be prepared to meet representatives and Bristow Muldoon.
I advise the committee that a number of appeals are going to Sue Ryder Care urging it to come back to the table. When Malcolm Chisholm was Deputy Minister for Health and Community Care—shortly before his elevation to Minister for Health and Community Care—he wrote to encourage Sue Ryder Care to come back to the table. I have written to the organisation, as has Lothian NHS Board. Anything else from the committee would be helpful, but a number of people are putting pressure on the organisation to come back to the table.
In our letter to Sue Ryder Care, we will certainly include the committee's view that the organisation should, as a matter of urgency, come back to the table with the Lothian health commissioners to discuss saving Binny House. That is about as much as we can do, especially if ministers are also writing to Sue Ryder Care. It would be more appropriate for Sue Ryder Care to meet ministers than to meet me.
Has Sue Ryder Care responded?
The organisation has written back to Lothian NHS Board. It has not offered to come back to the table, but has written in response to letters from Brian Cavanagh—the chair of Lothian NHS Board—and from me. There might be slight movement because that is the first time that Sue Ryder Care has responded since November. Just last week a letter was sent to James Barbour of Lothian NHS Board.
That is disgraceful. The whole thing absolutely stinks.
Is it agreed that the committee write to the Scottish Executive and to Sue Ryder Care to ask for their urgent responses to the petition before our next meeting on 15 January? Is it also agreed that we urge them to get back round the table with the Lothian NHS Board commissioners to discuss how to save Binny House? In the interim, we will pass on the petition to the Health and Community Care Committee for its information while we await answers from the bodies that have been referred to.
I thank the petitioners for their attendance this morning, which was helpful.
Multiple Sclerosis (PE431)
The third new petition is PE431, from Mark Hazelwood on behalf of MS Society Scotland. I do not know exactly how many signatures the petition has, but it has more than 30,000. The petition is about the availability of beta interferon for multiple sclerosis sufferers. Before dealing with the petition, we will wait for the previous petitioners to vacate their chairs and the new petitioners to take their places.
During the past six weeks, in excess of 44,000 people have signed the petition. I have brought the latest couple of thousand signatures, which have come in since we handed across the petition 10 days ago.
I remember being involved with the introduction of beta interferon in 1996. It impressed me then very much that certain individuals could benefit, but I accepted that not everyone could benefit. I was happy to find out then that Ayrshire and Arran Health Board signed up for the drug fairly quickly. When I checked recently, the health board advised me that it was still prepared to prescribe beta interferon where it fits the scene.
There is marked regional variation. Patients are able to get beta interferon in Grampian and, probably, in Fife and Ayrshire and Arran. Elsewhere, new patients are unlikely to be able to get beta interferon.
You rightly identify that prescribing the drugs has a high cost, but there are savings to be made. Has anybody done research on the financial savings that prescribing could produce, quite apart from alleviating the misery of those who could but do not benefit?
Perhaps the most authoritative document on multiple sclerosis in Scotland was produced by the Scottish Needs Assessment Programme just over a year ago. The programme assessed the societal costs of multiple sclerosis, which are difficult to quantify, and came up with a figure in the order of £120 million a year.
I understand that there will be large-scale tests south of the border, which will mean that most people who could benefit from beta interferon will have access to it. Do you have information on whether that programme of tests will be carried out in Scotland?
The society is aware of the discussions that have taken place and that, I understand, continue to take place between the Department of Health in England and some of the drug manufacturers. Those discussions came about in part as a result of the proposal of testing as a way forward that one of my colleagues south of the border put to the department.
I declare an interest, because I am honorary president of the Glasgow north-east multiple sclerosis society. Glasgow is one of the areas where there is no prescribing of beta interferon, which is outrageous. I visited someone in Tayside—beta interferon was prescribed there, although I do not know whether it still is—who had received beta interferon treatment.
The figure of £10,000 was used for a while. That was based on the manufacturers' prices. The £7,000 figure reflects a change in those prices. One of the manufacturers has brought the price down a little bit and glatiramer acetate—a similar product that I mentioned, which was launched more recently—was launched at about that price.
You mentioned the figure of £7 million that was given in the SNAP report. I cannot recall whether that was for only the limited number of patients who would be suitable for beta interferon. Was that based on the limited estimated number?
I clarify that beta interferon is not suitable for all people with MS. It is suitable for those with MS at a relatively early stage, before severe disability sets in, which it does not do in all cases. When we consider other countries, around 20 per cent of the total number of people with MS have the potential to benefit from these drugs. In Scotland, about 2,000 people would have the potential to benefit. There is now quite a few years' experience of its use in clinical practice. Some patients do not respond so well and some cannot tolerate the side effects. Although up to 20 per cent might benefit, the number of patients who receive the medication will be lower than that.
Is it not the case that some people currently pay privately for beta interferon, which they obtain from the States? They cannot afford it and somehow raise funds themselves. Are there a number of cases like that?
Yes. People try to pay for it themselves. That is another impact of the moving time scales for a decision on the matter. Some people embarked on funding it themselves last year, in the expectation that a decision would be made prior to Christmas last year. They will have had to try to continue funding it themselves or will have had to stop taking the medication because of the further delay that has taken place this year.
I ask your colleagues whether they could describe the difference between having beta interferon and not having it.
I had five relapses last year and was really ill. This year, I have had one relapse and I am going back to work in January. The difference is amazing. I am now fit, whereas last year I was constantly ill. It has made a massive difference to my life.
I do not take the drug at all. Greater Glasgow Health Board indicated that it will not prescribe to anyone. In November 2000, my neurologist diagnosed that I was suitable for treatment. However, in June 2001, I found that my details and those of a number of other people had simply been put in a filing cabinet and forgotten. I wrote to the health board about that. The list has now been forwarded to the health board and there has been correspondence.
I hesitate to return to finance after that explanation. You have talked about the advantages of prescribing. There can be advantages for the nation. I want to ask Mark Hazelwood about the £7,000 per year prescription charges. Is there a difference between charges in the United Kingdom and those in the United States? I understand that beta interferon is far cheaper in the US—that might be the result of its later introduction to the UK. Is there a difference?
There is less of a difference than some headlines suggest. We handle quite a lot of inquiries from people who have heard that there is a difference. My colleagues carried out work that considered, for example, the costs for people with private funding who are desperately trying to make their money stretch by buying the drug in the US and bringing it over. There are differences in different markets, but those are not as enormous as the press has suggested.
I understand that the Executive leaves whether to prescribe beta interferon to local health boards' discretion, which explains the difference between Greater Glasgow NHS Board's area and your health board area—which is?
Fife.
In Tayside, the number of people who can be prescribed beta interferon is limited to eight in one year. After that, nobody gets it.
In Glasgow, no one receives beta interferon. I have a letter from James Miller of South Glasgow University Hospitals NHS Trust to Harry Burns, the director of public health at Greater Glasgow Health Board. In the letter, James Miller says that he has instructed west of Scotland health boards not to deem anyone suitable for treatment with the drug until funding is identified. That puts the cart before the horse. Funding cannot be identified if a person is unsuitable, but Glasgow is being instructed not to deem anyone suitable before funding is identified. That is even worse than a blanket refusal—that is an instruction not to prescribe.
Do you argue that health boards that decide not to prescribe do so purely because of funding?
Yes.
The Executive has referred the question of the cost-effectiveness of beta interferon to the National Institute for Clinical Excellence, which is likely to report in the near future. The Health Technology Board for Scotland will comment on that report. How likely are they to recommend that beta interferon should be prescribed?
The Minister for Health and Community Care first referred the beta interferon issue to the Health Technology Board in December 1999. We are approaching the second anniversary of that referral. The Health Technology Board did not exist until April 2000. One reason why we ask for the drug to be made available immediately is the long history of delay.
Who is the appeal to? Is it made through the courts?
The appeal is to an appeal panel that is convened by NICE. I think that the chair of the appeal panel is the chair of either NICE or the original appraisals committee that worked on beta interferon.
So the chair would have to find against their own conclusion.
I did not catch who the letter to which Jackie Doyle referred was from.
It was from James Miller, the divisional general manager at South Glasgow University Hospitals NHS Trust.
I suggest that you take that letter straight to the press.
That is entirely a matter for the petitioner.
That is the only way. The letter is an absolute disgrace. I also suggest that we write to this Miller character. Can we do that?
We cannot do that if we refer the petition to the Health and Community Care Committee.
You know that the Health and Community Care Committee does not have time to do everything.
It is up to you and me, as members of the Health and Community Care Committee, to ensure that the issue is chased up when it is referred to that committee.
Could we ask the petitioner for a copy of the letter? We could attach it to the petition when it goes to the Health and Community Care Committee.
Absolutely. If the petitioner can leave a copy of the letter with the clerk we will ensure that it is passed on to the Health and Community Care Committee as part of this morning's evidence.
What about the strange NICE set-up, where it investigates itself? Can we not write to NICE?
The same principle applies again. Once we pass a petition on to a committee, the petition is its property and it is for it to pursue those issues. The operation of NICE and the Health Technology Board is a matter for the Health and Community Care Committee and is something that that committee should be addressing in any case.
Whether we like it or not we are talking about financial prescribing. That is the major factor. A strong argument has come across about the cost to the community, which is estimated at £120 million, compared to the prescription cost of £7 million. I would like to highlight that as a factor that has been raised in today's discussion.
We will certainly highlight that when we pass the petition on to the Health and Community Care Committee.
The HTBS was trying to impress us and justify its existence with a presentation about a week ago.
Is it agreed that we pass the petition to the Health and Community Care Committee?
Social Services Policies (PE432)
PE432, from Mr William McCormack, is about independent appeals and review panels. You have three minutes to make a presentation, then it is open to questions from committee members.
I will not take three minutes, as I feel that this petition is probably better dealt with in questions and answers.
Thank you. Do members have any questions?
I note that the accompanying document explains that many of the individuals concerned are being refused access to the appeals process by senior managers in the social work department. Are people actually being denied access to the appeals process, or is it simply the case that the decision on the appeal is not the one that they hoped for?
People are being denied access to the appeals process. One of our clients was assessed as being able to pay about £32 a week for what was, I think, about eight hours of home care each week. When he received the bill for £32, he immediately stopped his care. He said, "Take them out. I'm no paying it." That service user has lost about six stones, as he no longer has carers to come in and make his meals. His case has been highlighted by the local press and television.
Have you taken legal advice on whether the denial of access to the appeals process is competent?
Yes. The guy was offered legal aid by the legal aid board. The advocate said that there is a strong case but a high cost would be involved because the case would affect so many people. The solicitor said that the on-going cost would be a problem.
I want to ask for clarification. If someone is assessed as having to pay a certain amount towards their care and, because they cannot afford to pay that amount, the care is withdrawn, is it the case that the decision on the amount of their contribution cannot be appealed? Is that the problem in a nutshell?
The individual that I mentioned chose to withdraw the care because of the charge.
Could he not afford to pay for it?
Whether or not he could afford to pay, he was assessed as being able to pay and chose not to pay. The carers were withdrawn. As he needed the care, we told him to keep the carers in place and not to pay, which was the best advice that we could offer him. Rather than take the carers away—which would endanger his life—we advised him to leave the carers in place but not to pay the charge. However, he is not that kind of guy. As he is quite elderly and did not want debt letters, he withdrew the care.
The papers that you made available to the committee refer to the fact that Russell Brown MP and Elaine Murray MSP have complained to the council about the procedure. Has that had no effect at all?
It has had no effect that we can see.
Has public pressure been put on the council locally?
There has been a lot of pressure from the voluntary sector, which has been up in arms, especially over the way in which the policy was introduced without prior consultation.
You also mentioned legal action against the council. Is the council acting within its legal powers by introducing such a system? Is there a question about whether the council has the powers to do that?
Yes, there is a question about the policy. The council is allowed to have a charging policy, but it is debatable whether the council is allowed to charge couples. That issue is open to legal challenge. Having checked this morning, I know that an appeal last week on the couples issue is now at judicial review. In the case of the disabled couple mentioned in item 6 of the supporting documents that we supplied to the committee, only one partner—the wife—is a service user. The partner receives no services from the council, but his disability benefits, which pay for his personal care, are being included despite that fact.
Is an independent review panel such as that set up by Dumfries and Galloway Council, under its powers, common throughout all local authorities in Scotland?
Yes, I believe that it is.
Do local authority committees ignore the advice of such panels throughout Scotland, or do they listen to them?
I do not know.
That is something that we need to know, as this may be a wider issue of relevance throughout Scotland.
What panels give are only recommendations, and the answer that I have received has been, "Councillors make policy, not an independent panel." Our argument was to ask, "What's the point in having an independent panel if it cannae correct illegal policy?" I suspect that ignoring advice from panels is a widespread phenomenon.
Councils indeed make policy, but surely there must be some requirement on them to carry out adequate consultation. There does not seem to have been any in this case.
There was no consultation. We produced a document at a meeting in November: "Good Practice Guide to Consultation in Dumfries And Galloway", dated 1998. Clearly, the council's representatives had not followed it, if indeed they had heard of it. If the policy had been thought out and worked out, that would have benefited specialists such as me. Such a policy would have generated a lot of money with very little upset or hassle.
I thank Mr McCormack again for attending.
Foot-and-mouth Disease (Pyre Ash) (PE429)
We are shifting the order in which we are considering the petitions before us, as Adam Ingram has arrived to speak to PE429, which is from Councillor Julie Faulds, about the dumping of foot-and-mouth pyre ash. The petitioners are calling on the Parliament to take the necessary
It has been a very interesting morning. The committee deals with a lot of serious and sensitive issues, and PE429 falls into that category.
I congratulate Adam Ingram on making such a succinct case. Everything that he has said can be confirmed locally. One issue that was not picked up on was BSE. There is a marginal suspicion that BSE could be transmitted through the transportation of the ash. That causes anxiety not only for the people at the dump, but for all those living along the roads from Dumfries and Galloway.
The farming community across Ayrshire is extremely upset. Farmers sacrificed a great deal to keep foot-and-mouth disease out of Ayrshire in the first place. They responded to all restrictions that the Executive placed on them and they agreed with the Executive that no possibility of infection across borders should be allowed. We now find ourselves in the final act of the outbreak—getting rid of the waste—but the Executive is not practising what it preached during the course of the outbreak. As I say, the farming community is extremely upset.
Will you confirm that when the Executive took its decision, it was against the wishes of the site operator, who was reluctant to take the ash?
The site operator said that he did not wish to take the ash if the local authority was against it. Obviously, the site operator has a major contract with local authorities in the area.
This is part of a wider and very serious issue in the aftermath of foot-and-mouth disease and BSE. Adam Ingram may be able to confirm that, in Glasgow, the situation with ash relates not to foot-and-mouth carcases but entirely to cattle at official high risk of BSE. Under the BSE surveillance scheme, they are fallen stock. Ash from a local incinerator is to be imposed upon Carntyne in the east end, against the wishes of the council. Ash from cattle that were burned in that incinerator is to be taken to Paterson's dump, within the Glasgow boundary. Anything can be dumped on the east end, or so people seem to think. However, we are vigorously opposing these moves. We petitioned the European Parliament earlier this week.
I cannot speak for the situation in Glasgow. I am here in support of the petitioners. Responsibility lies with Scottish ministers and we have still to get a response. I have written to the Minister for Environment and Rural Development, as have the protesters. I have a response with which I am not satisfied in terms of the reasons given for the decisions taken. I do not believe that all the options were properly weighed up. The minister has not responded to the protesters on this request for a moratorium. We therefore thought that the Public Petitions Committee was the appropriate place at which to raise the issue.
I thank Adam Ingram for his comments. We now move on to discuss what to do with the petition. Adam is free to stay and listen to our discussion.
Given the late hour, I suggest that we try to make as much progress as possible. I ask members to intervene only when they feel they really have to.
Telecommunications Developments (Planning) (PE425)
We come now to PE425, which is from Anne-Marie Glashan and which calls on the Parliament to adopt the precautionary principle that was recommended by the Transport and the Environment Committee in its report on the planning procedures for telecommunications developments. It is understood that the Executive has not adopted the principle because it does not consider that emissions from telecommunications masts are a material planning consideration. Emissions of radio-frequency radiation are controlled and regulated under the appropriate legislation by the Department of Trade and Industry and the Radiocommunications Agency. The Health and Safety Executive also has responsibilities in that field.
That sounds fine, but the problem is recognised internationally. There have been many scares and I suspect that all kinds of research have been done much further afield than the Scottish Executive's area of responsibility. Perhaps there might be value in asking the Scottish Executive to give us a detailed response on what research has been carried out in Europe and elsewhere.
Yes—that would not be a problem.
Glasgow City Council's planning department scored a victory for public protest the other day when it refused to grant planning permission for a new clutch of masts. The council might have knowledge of some of the research that has been undertaken. As members know, the research has been inconclusive, but it certainly does not point to there being no danger to the public.
In any event, we can ask the Executive to make information available to the committee, as it will have access to the research. Are we agreed?
War in Afghanistan (PE426)
The next petition—PE426—is from the Scottish Coalition for Justice not War and seeks to stop the war in Afghanistan. It calls on the Parliament to hold a full debate as soon as possible on the events of 11 September, the causes of terrorism and the need to break the cycle of violence. It also calls on the Parliament to emphasise the importance of using the full judicial process to bring those responsible to justice and to do everything in its power to bring pressure to bear on the British Government to halt the military campaign against Afghanistan.
School Playing Fields (PE430)
PE430 is from Mrs M Glendinning and calls on the Parliament to consider whether it is appropriate for local authorities, as owners of school playing fields, to be able to sell such assets and to grant planning permission to a developer, when such a sale is opposed. The petition also calls on the Parliament to consider whether, if a sale is opposed, there should be legally binding guidelines on consultative procedures.
It perturbs me that, time and time again, local authorities sell off land and then give planning permission that cuts across local plans, but when others try to cut across local plans, the plans are regarded as sacrosanct. Can we note our concern about that to the Executive?
Sure. The petition makes that point, linking the two things. We will draw the Executive's attention to the fact that we are concerned about the way in which local authorities can set aside local plans if it suits their interests but will not allow others to do so.
Scottish Ballet (PE433)
The next petition is PE433, from Equity, on behalf of the Scottish Ballet dancers. It calls on the Parliament to urge the Scottish Executive to instruct the Scottish Arts Council to make a condition of continued funding and to recommend that Scottish Ballet restore its own independent board and review its links with Scottish Opera. The Education, Culture and Sport Committee has already conducted an inquiry into Scottish Ballet and copies of the conclusions and recommendations of its report have been circulated to members.
Petition PE410 was on virtually the same subject and the Education, Culture and Sport Committee agreed to forward a copy of its report on Scottish Ballet to the petitioner when it was published. That committee has already addressed the matter, as it was raised in a separate petition.
We have spoken to the clerk to the Education, Culture and Sport Committee. It is that committee's intention to take new evidence and it will welcome this petition when it is referred to it.
Protection of Wild Mammals (Scotland) Bill (PE434)
The next petition is PE434, from Miss Jeanna Swan. It calls on the Parliament to debate the serious implications of the unacceptable scale of destruction of dogs should the Protection of Wild Mammals (Scotland) Bill proceed. It also asks the Parliament to debate the serious implications of the loss of hunting for the welfare of the fox and fallen livestock, to overturn the Protection of Wild Mammals (Scotland) Bill and to forward the petition to the committees that are involved in handling the bill as well as to the relevant Scottish ministers.
I agree that the petition has arrived too late. However, the Executive may consider lodging amendments to the bill at stage 3, so it might be worth while for us to pass the petition to the Executive, in case it felt that there was some merit in it.
We can certainly do that. Is that agreed?
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Current Petitions