Item 2 is an oral evidence session on the Mental Health (Care and Treatment) (Scotland) Act 2003. At its meeting on 9 February 2010, the committee agreed to focus its post-legislative scrutiny on the equalities principles of the 2003 act. This is the first of two round-table evidence sessions with stakeholders on the issue. The second will take place at our next meeting on 23 March, after which we will have an evidence session with the Minister for Public Health and Sport. It is worth reminding everyone that although the round-table format is less formal than normal, this is still a public meeting for which an Official Report will be produced.
I am Stuart Lennox, representing the Association of Directors of Social Work’s mental health sub-group.
I am Selwyn McCausland, national participation co-ordinator for Barnardo’s Scotland.
I am Malcolm Chisholm, member of the committee.
I am Marlyn Glen, deputy convener of the committee.
Thank you very much.
Having worked in advocacy organisations in England, I support what Donny Lyons said. I was surprised that we did not collection information about age, gender and ethnicity in Scotland. Those features are fundamental to a person’s identity and if services are to be person centred—centred around the needs of the individual—not to consider a person’s ethnicity or their religious or cultural background is a huge failing.
We will move on to the nitty-gritty. I was asking a general question to find out why there was a need for the duty. If you do not mind, we will move on to consider how the duty has been implemented and monitored. The Mental Welfare Commission for Scotland was established to monitor the act, so I ask for some views on how the monitoring has taken place, how the commission has implemented the principles of equality and non-discrimination and how it intends to do so in future. It would also be useful to have comments on the duty as it applies to others who are mentioned in the act: the Scottish ministers, local authorities, health boards and medical practitioners. I ask for a general overview of how the act has been implemented and monitored.
That is helpful. So you are saying that there is a common-sense approach rather than a blanket rule that young people should never be admitted to an adult ward, but that there is a definite concern that there do not appear to be appropriate services for these young people, and that they often end up in adult wards when it is not appropriate for them to be there.
Dale Meller may want to comment on the issue from an NHS Health Scotland perspective.
That is an important issue to put to the minister when we speak to her.
How did the recent limited review of the 2003 act take account of equalities issues? What changes relating to equalities issues do you expect to be made following the review?
The issue about the named person has come up quite a bit for young people who use our services. The named person for someone who is under 16 is a member of their family, and some young people are not happy with that. We support the option of young people under the age of 16 having the power to appoint a named person themselves.
That answers part of my question. As the committee’s race reporter, I am pleased that you want monitoring for race. I would have thought that interpreting facilities were a basic necessity in giving people any kind of treatment or care. My question was going to be about the other equalities strands including sexual orientation, which you did not mention. Did you look at those?
I think the feeling was that it might not happen for a couple of years, and that anything that could be done to hasten it would be all to the good.
That is correct.
Yes, absolutely. It seems perverse that they provide the funding, but when we require translation we have to make an application for them to provide that service. There is a caveat that, if the person is not in receipt of services from that particular authority, we pick up the bill. We do that from our funding, which comes from the health boards, but the local authority also contributes, so in some ways the local authorities are indirectly funding the service. In the past few years, there has been a large influx into our area of operation of people whose first language is not English, but there has been no recognition that the provision of translation services has become a significant aspect of our business, and it is therefore not reflected in our funding levels.
I am always amazed that the SPS does not seem to take account of the fact that people are sometimes off ill or on holiday. No contingency is made, which impacts on the ability to operate rehabilitation programmes. Even if prisoners are ready to undertake such programmes, the security issue prevents that. That is a huge issue.
Some of the questions around—
We have described the provision of advocacy under the 2003 act as a double-edged sword. Access to independent advocacy in Scotland is a positive step forward, but the focus of advocacy organisations, local authorities and health boards has become those in crisis—those who are at risk of losing their liberty, or who are facing a tribunal. Shaun McNeil mentioned that. Local authorities and health boards encourage advocacy organisations to ensure that they prioritise people who need advocacy where there is a legal context for that advocacy work. We know that authorities and boards are calling in advocacy organisations to tell them to provide advocacy to someone who has a tribunal hearing the following day. Organisations are being told that because advocacy is part of the legislation, they must ensure that it is made available.
Is it a question of providing more training—continuous training—for the people who have the relevant duty?
I suppose that there is a feeling that the act was passed six years ago, so we should all know what it means, but of course that is not the case. You make that point well.
That is a very good point, which was well put. Given the amount of money that carers, including unpaid carers, save the Government of the day, it makes sense to look after them and ensure that they have advocacy services.
Yes. I reiterate the points that Shaun McNeil made. As far as we and most people are concerned, there is no discussion about independent advocacy and the definition of independence. Most people are clear that the definition of the term “independent advocacy” has been enshrined in legislation for the past six years, but that definition has been around for much longer than the legislation. It could be said that the Millan committee and the legislation adopted the definition of the term that was already in place from the advocacy movement.
We will certainly follow up the carers issue with the minister when the strategy is published.
Okay. It looks like there will be disagreement on that.
It is important to be frank about the controversy, but I wonder how it can or ought to be resolved.
Take two, I think.
Yes. Hugh O’Donnell asked about early intervention services. We think that there is a need for them, but I do not know how much they relate to the 2003 act. You are right that such services are preventive and at the other end of the process. You will be aware of the Health and Sport Committee’s report into CAMHS that touched on the availability of early intervention and preventive services for children. All schools should now have a mental health contact who can link them with, or provide, services. However, that person might cover a very wide area.
That is a different angle altogether.
What? [Laughter.]
There is only so much that the commission can do. One of our duties is to monitor the operation of the 2003 act. However, monitoring mental health services’ input into schools is actually beyond our specific remit, so I am not sure that I can comment on that matter. We see young people in secure care who have significant mental health problems, and we are concerned not only about the level of support and advocacy for them but about how their transition to adult services is being supported.
I accept Donny Lyons’s point that the commission’s remit covers only the operation of the 2003 act. Interestingly, however, that act also covers advocacy. I spoke to him before the meeting about this but one issue that will come up next week in the Parliament’s consideration of the Public Services Reform (Scotland) Bill is the commission’s role in monitoring the advocacy aspect of the legislation. Put crudely, the debate is about whether the commission should monitor the act’s operation, which would seem to include advocacy, or the act’s 10 principles, which, strictly speaking, do not include advocacy. I ask Dr Lyons to comment on that because it is relevant both to our discussions this morning and to the forthcoming debate on the bill.
I am happy to stick with the issue of advocacy rather than the issue of general provision of mental health care and services to young people in schools or wherever. Whenever we see somebody when we visit any kind of unit—whether it is a hospital, a care home or secure accommodation for younger people—we always ask about the provision of advocacy services. If advocacy services are not being provided or if people do not have the right of access to them that we think they ought to have, we take that up and make recommendations about it. We duplicate what Shaben Begum does; she did very well in producing an advocacy map of Scotland, and we direct people to that. We know where the gaps are and will report on them and make recommendations about them.
I will bring in Marlyn Glen, because it is important that we tease out for our understanding where the commission’s responsibilities under the 2003 act lie.
Yes. Thanks for the opportunity to expand on our submission. The implementation of section 26 has certainly been patchy. In particular, we are now seeing cuts to the lower level and preventive services that promote wellbeing, social development and employability, and much more of a shift to funding for acute services and changes in eligibility criteria, so that free services are available only to those who are judged to have the most acute needs.
We do not monitor that, whether we have responsibility to do so or not. Malcolm Chisholm referred to possible changes to the 2003 act. It is a very big act, but section 26 covers one of the issues that we must deal with. Our duties under the act are largely related to safeguarding the individual, but the problem with those general duties and the duty to monitor the operation of the act is that we cannot possibly monitor all of it. We cannot possibly monitor everything that happens at tribunals, for example. We cannot monitor advocacy services, except in so far as to see whether they are available to the individual. We cannot monitor the services that are specified in sections 25 to 27 of the act, except in so far as to see whether such services are being provided to individuals. If the commission were asked to monitor all of that, it would have to be at least double its size, but, like everybody else, we will be facing budget constraints.
Stuart Lennox is next, because he has a particular interest in this issue, then Shaun McNeil. Does Hugh O’Donnell want to add anything first?
That is a key point: it is much broader than just being a social work services issue. That has been part of the problem of variable practice across the country. There is a danger that the 2003 act is seen as the domain of health and social work services, but of course sections 25 to 31 show that social inclusion is a broader corporate agenda for everybody. The critical issue for local authorities is how to embed that in a community planning framework
I am interested in Shaun McNeil’s comment because his initial contribution triggered some of my thoughts, and what Stuart Lennox said crystallised them a bit. It is about getting the balance right between justice and care, especially with children. Some children will present with disruptive or risky behaviour, and they will perhaps go through the hearings system. If the mental health issues are not picked up early enough, they will end up going down the criminal justice route, rather than a care and protection route. My question is specifically about kids who are in secure accommodation, are looked after and accommodated or are from backgrounds where there are real challenges. What are the panel’s feelings about the balance between justice and care and whether we need to tip the balance towards care? How do we achieve that balance in schools or in facilities for kids who are looked after and accommodated?
I want to pick up on the point about transitions, which is important. I do not know whether the Mental Welfare Commission has discussions with the Scottish Children’s Reporter Administration, but there is an issue about the change point—the point at which someone is too old for the children’s hearings system and immediately goes to adult services. I know that the issue was covered to an extent by the Health and Sport Committee’s review of CAMHS.
Fairly obviously, my main point is that the lack of equality and diversity monitoring is impinging on our ability to analyse meaningfully. We have good data for age and gender, but we do not have good data for the other equality strands. My main point is on improving our monitoring.
I agree entirely with Dale Meller. We said in our written submission that the main barrier is that we just do not know what the situation is because we are not monitoring most of the aspects. The equalities principles state that people will not be discriminated against on the grounds of physical disability, age, gender, sexual orientation, language, religion and so on. However, we do not monitor most of those aspects, so how do we know whether the principles are being fulfilled?
Speaking for the advocacy organisation that I manage—I hope that I am speaking for other advocacy organisations, too—I do not think that it is a lack of knowledge, expertise or desire that is holding us back but the pared-to-the-bone, insecure and insufficient funding levels that the sector receives, which create a problem that is exacerbated, in many areas, by a drive towards commissioning independent advocacy services by competitive tendering, which is forcing down the funding levels for independent advocacy and lowering the quality of what is available. That means that we are much more focused on firefighting. We know that we should be paying more attention to the equality and diversity agenda, but that is the sort of thing that slips off the page of the agenda of every meeting that we have.
However—
I think that the key phrase is “later on”. The submission suggested that monitoring should not be done at the point of crisis but should definitely be on the tick list for later on.
I am certainly aware that organisations that do excellent work and have the necessary expertise and flexibility can come to the end of their funding and suddenly find that things have moved on to something new. That is a problem that the Parliament has wrestled with for many years, but it is good to raise it again.
On the issue of persuasion that Dr Lyons highlighted, we certainly find that pressure can be put on children and young people to agree to voluntary treatment before they are moved on to compulsory treatment. We have had numerous examples of young people saying that they felt under pressure. Obviously, that could skew the figures on the use of compulsory treatment orders.
I thank all the witnesses for their contributions. They have certainly given us some food for thought. The next evidence-taking session will tease out some of the issues that we have begun to address today.
It has been an interesting evidence-taking session and I thank all the witnesses for coming. It is difficult to pick out one issue. I would like the monitoring of data to improve, but there are many other issues.
It is impossible to know whether we are fulfilling the equalities principles when we do not know the equalities data. It is not beyond the ingenuity of those involved to find ways of collecting those data. SAMH would welcome more data on disability in particular.
I reiterate the fact that accessibility is one of the four core principles of advocacy. Advocacy organisations work hard to ensure that they are available to as many people as possible, but we still have a long way to go.
It has been a very worthwhile evidence-taking session. There are many issues that we can raise in the round-table discussion that we will have at our next meeting and with the minister. I thank all the witnesses very much for attending.
I am Shaun McNeil, managing director of Advocacy Matters (Greater Glasgow) Ltd.
I am Hugh O’Donnell, member of the committee.
I am Elaine Smith MSP, member of the committee.
I am Christina McKelvie MSP, member of the committee.
I am Shaben Begum of the Scottish Independent Advocacy Alliance.
One of the most important issues coming from furth of Scotland was the unequal use of mental health legislation in certain parts of England, particularly for people from certain ethnic minority populations. That gave cause for concern, especially its overuse among black African and black Caribbean communities. A number of issues about gender and age were specifically introduced into the Scottish legislation. As the attendees will see, we have produced quite a lot of written evidence about that, which is a summary of all the work that we have been doing.
I certainly agree with Dr Lyons. One of the key points for Barnardo’s is access to age-appropriate mental health services, particularly for children and young people. A key issue that we have faced over the years is the number of young people who have to go through adult services because there are not services appropriate for their age. The 2003 act has been positive in that regard, although there is a long way to go.
Selwyn McCausland from Barnardo’s mentioned inappropriate services for young people. The SAMH submission indicates that admissions of young people to adult psychiatric wards are increasing despite the commitment to halve the number by 2009. Do any of the witnesses have any thoughts on that?
I will follow that up, as you have mentioned our submission. Donny Lyons will correct me if I am wrong, but I believe that the number of such admissions fell initially and has risen more recently. In some areas, there has been investment in children’s and young people’s mental health, as it has been an area of particular concern. We welcome the fact that there has been a lot of investment and hope that that will mean that there will be improvements. However, it remains wrong for a young person not to receive age-appropriate treatment if they are detained. We are very concerned about the impact that the lack of such treatment has on their education and likelihood of recovery.
There is serious concern that when a young person goes into an adult ward, they sometimes do not get the expertise applied to their care that they need.
You illustrated why, in some cases, it is appropriate for young people to be admitted to adult wards. Are there many instances in which young people are moved to adult accommodation because the local juvenile services cannot cope? Are young people being moved out of their communities into other areas because the local facilities are inadequate? I have heard some anecdotal evidence in relation to such issues.
We need to have a discussion about age classification and who we class as a young person. Young people around the age of 17 who are still in education can access CAMHS but we have seen examples of people who are not in education who cannot. I do not know whether that is the case everywhere, of course, and it obviously depends on people’s circumstances. That is a big issue for Barnardo’s, which is concerned about the more vulnerable young people who might not be in education after the age of 16. That brings us back to the issue of age-appropriate services.
On Carolyn Roberts’ point about disability monitoring, we think that it is important that people with learning difficulties are identified and get appropriate treatment. The issue of disability is extremely important with regard to the tribunal, particularly in relation to communication difficulties. A patient who goes before a tribunal needs to know what is happening.
Does Shaun McNeil want to comment on the issue from an advocacy perspective?
Advocacy Matters (Greater Glasgow) is a local advocacy provider. We monitor the age, ethnicity and so on of the people who use our service. In 2007-08, 2 per cent of our referrals were from people who came from a black and minority ethnic background or were asylum seekers or refugees. In the following year, the proportion rose to 10 per cent. I report such information to our funding bodies. I support what panel members have said about the need to capture such statistics if we want an overview of the trends in mental health.
The limited review of the 2003 act took representations from a number of people—including panel members—on improving ethnicity monitoring and consulted the black and minority ethnic group, through the Royal Edinburgh hospital. I am pleased that the review group recommended that professional interpretation services should always be offered in the mental health context, but I did not find in its published report a recommendation on ethnicity monitoring—perhaps colleagues will point me to that.
Perhaps I can speak to you about that.
Thank you. I was not sure whether the issue had made it into the list of recommendations.
The monitoring of the age of service users has enabled SAMH to identify that the commitment to halve the number of young people who are placed in adult psychiatric wards has not been met—indeed, there has been an increase in such admissions. I take on board the point that Donny Lyons made, that it might be more appropriate for a young person in Inverness to spend a short period in an adult ward than to be moved further away. Of course, that leads us to ask why Highland NHS Board does not have facilities in which a young person can get age-appropriate care for a short time. Are we monitoring provision in different health boards? Do we need to discuss that with ministers?
If one or the other will not pick it up, either we are left with it or we have to deny our service to the individual, and we do not want to do that—we want to make our service as open and accessible as possible.
Yes. We know that there is a high level of people with mental health problems in prison. A thematic review was conducted—over a year ago, I think—that looked in particular at mental health problems across prisons and found that a high level of people had such problems. The review used quite a tight definition of mental health problems; if that definition were to be expanded, we feel that an even higher level of mental health problems in prisons would be revealed. We also know that the NHS is taking on responsibility for mental health care in prisons, and we hope that that will present an opportunity to improve the situation. We are yet to see much about how that will operate, but we know that it can be difficult for people in prison to access the mental health treatment that they need.
What is the timescale for the NHS taking on that responsibility?
Since the implementation of the 2003 act, we have been raising that issue with specific stakeholders. We are very concerned about that group of people not having access to independent advocacy, even though they are legally entitled to it. Along with other organisations, we have lobbied on the issue. We know of examples of people who use advocacy in the community, who have ended up in prison and who have, on an ad hoc basis, been able to access an advocate for a very short time while they were in prison. Generally, however, that is the exception to the rule.
The issue has been raised, but we still do not seem to be any further forward. We hope that this round-table discussion will be positive in highlighting the issue.
Shaun McNeil mentioned the funding of translators. I think you said that the local authority and the health boards provide your funding—did I pick that up correctly?
Is it not the case therefore that, by providing your funding, they also indirectly provide money for translators? If they do not, do you need to ask them for increased funding to cover that provision, rather than have them providing funding in two places, if you know what I mean?
The problem is that if the two aspects are not considered together, the system will not work. If a prison is understaffed and someone is off sick, basic security levels might be such that staff cannot be released for prisoners to attend a possible rehabilitation programme or receive mental health assistance. In a previous job, I tried to provide counselling in prisons. If a wing was one man down, nobody could take John to his appointment, so he did not see the counsellor.
I return to the issue of specialist advocacy services, about which we have had some interesting discussion. Shaun McNeil spoke from the point of view of a mental health advocacy provider. Obviously, he makes great efforts to ensure that interpreters are made available. However, if someone wants not a mental health advocate and an interpreter but a bilingual mental health advocate—in other words, they do not want a three-way conversation between themselves, their advocate and an interpreter—we know that that can cause a problem. Such a service is not really provided. A couple of months ago, I was in discussion with Shaben Begum about someone who was looking for a bilingual mental health advocacy worker in one part of Scotland. The need was not met. I am sure that there are similar issues around specialist advocacy provision for young people. That added layer of complexity is part of the debate around specialist advocacy.
Yes. There is certainly a training issue for CAMHS around advocacy and referral, and, more generally, about the definition in the act of “independent advocacy” and what that means.
Yes—much earlier.
I reiterate the carers issue. The underlying mental health problems of carers, which result from stress, are a major concern. They need support, particularly around tribunals.
I want to return to specialist advocacy for children and young people. I am pleased that the Scottish Government recently laid a report that considers advocacy provision for children and young people throughout Scotland; that clearly highlights the gaps in such provision. People have disagreed that there is a debate about independence, and I take that point. However, it has been said that Barnardo’s and other children’s charities are not independent because we are service providers for children and young people. We provide services for children and young people, but we are independent when it comes to advocacy for them. I raised the issue about the debate because those are the issues from our perspective.
In answer to Malcolm Chisholm’s point, the president of the tribunal will be part of next week’s round-table discussion. You will have a chance to raise your points, which we will put to him when he gives evidence. I hope that you are satisfied with that.
I am not aware of the general spread of such services, but there has been significant development across a range of issues in education through initiatives such as peer support, and a number of initiatives in Glasgow to develop a work programme on mental health issues that is delivered in schools. I positively support that approach as a definitive way forward for us. In some ways, this area mirrors the discussion that we just had about advocacy, in which there is an absolute pressure on services that get drawn into areas of compulsion and so on. Perhaps that takes away some of the capacity from the community involvement approach. We need to be careful about that with regard to children and young people. Although we need a better spread of resources, we also need to invest at an earlier stage and get into prevention much sooner and more constructively. I definitely support some of those initiatives and know that there are a significant number of them throughout the country.
Carolyn Roberts raised that point in her submission.
If I may, I will take off my hat as manager of a mental health advocacy organisation and talk about the mental health problems that I have experienced since I was a teenager. Eleven or 12 years ago, I spoke to kids in the first and second years of secondary school about terminology around mental health problems in an effort to destigmatise those problems and give the kids a vocabulary that would allow them to talk about their emotional health and wellbeing. Given my own personal stake, I would welcome any developments in that area.
I will go in a slightly different direction. Obviously, we are all interested in the health and wellbeing outcome in curriculum for excellence and want it to work. How are guidance, training and other such issues being balanced? Who is responsible for striking that balance? Is it all written into curriculum for excellence? Is there any engagement with services as far as guidance is concerned?
When people talk about budget cuts, it is particularly important that we look at the most vulnerable people in society and ensure that they are protected. I was interested in SAMH’s view that
We will ensure that she gets another shot.
The questions about where the balance should be and how people are identified as needing support in the first place are good ones. We have been taking a real interest in the Criminal Justice and Licensing (Scotland) Bill, given that the community payback orders seem to offer just what you are suggesting, although for adults only. On how people are diverted into appropriate health care, it comes back to early intervention services, which we have been discussing. People need to be able to access not just health care but more general support at an early stage. I am moving the discussion away from the 2003 act somewhat, but there is a need for people to be able to ask for, and to be offered, some support at an early stage before we decide that justice should perhaps be involved.
I certainly agree with the point about early intervention. There is no doubt that the earlier we intervene, the more chance we have of addressing some of the issues. There is a big issue around access to information for young people. It is vital that we increase the ways in which we make connections with children and people at all levels. Some of the services out there certainly try to build relationships. One of the key parts of advocacy for children and young people is building trust and relationships, because doing so helps children to access some of the services. Quite often, they have to go through adults to access the services. We have to consider what we can do to address some of those issues. I certainly agree that we should tip the balance back towards the care side rather than go further towards the justice side.
The opposite also applies: young people with dementia who present to general adult services might not get a particularly good deal. We favour a model that concentrates more on the needs of the individual, rather than on whether they happen to be 64 or 66. The same can be said of the transition from being a young person to adulthood. We know of some adolescent services that will happily keep an individual who is well known to them beyond their 18th birthday if the service is more appropriate for that young person’s needs.
My question is specifically for Stuart Lennox. More generally, how are local authorities addressing all the equality strands in relation to section 26? How are they tackling that, and what is the impact on resources and other issues?
All local authorities have an equalities framework. The point that I was trying to make earlier was that the issue with section 26 is how to get that work embedded in those frameworks, rather than seeing it as sitting outside the frameworks and as being to do with social care or health services. It must be seen as being at the core of the social inclusion agenda, which covers a raft of corporate provision in local authorities. At the moment, that work perhaps sits a bit outside.
It perhaps gives us a line of questioning for the panel that we will hear from next, more than anything else.
I am probably moving back to the beginning. I seek opinions from the panel on the constraints that exist in fully realising the equalities principles of the legislation.
I am going to get on my monitoring hobbyhorse.
When we go out and see people, we are alive to diversity issues and will comment on and take action on anything that we think is discriminatory. In the written submission, I have highlighted a few examples. Learning from those individual examples is an important way of challenging attitudes to diversity issues in mental health services.
No one is saying that someone who is acutely mentally ill is going to be asked to fill out a monitoring form. However, how they answer questions could be crucial to their care later on. I think that the issue is serious.
I do not disagree with that. The issue is that we can report on only what is reported to us, via the mental health act forms.
Monitoring is essential and should be as wide as possible. We should, perhaps, take advice from mental health professionals with regard to when it should be done and the best way in which to do it. However, it needs to be done.
Because Tayside has been picked out, I would like the witnesses to say why they think that the use of compulsory powers differs so much between various geographical areas.
That is a good point.
We report on that every year, but have not yet come up with an answer to Marlyn Glen’s question.
To pick up on that, clarity around statutory notification of diversity issues under mental health legislation would be helpful for the commission.
I reiterate the point about support for carers. However, my main point is that we need to have full and effective monitoring, otherwise we will not know whether we are achieving our aims. That point could be extended to the appointment of general tribunal members. What percentage of general members are carers or people with lived experience of mental health problems? Are general tribunal members simply, by default, a few more lawyers and psychiatrists?
I thank the panel of witnesses. It has been a very interesting discussion. For me, some of the main points concern children and young people, the children’s hearings system, the balance between justice and care, and curriculum for excellence.
I thank everybody who took part in the discussion, which has underlined the need for such discussions and exchanges of views. I do not want to pick out any issue. It has been a really good evidence-taking session, and we should do it again.
He is outside.
He is here. That is good.
I am Donny Lions, director of the Mental Welfare Commission for Scotland.
I am Dale Meller, manager for the mental health and race equality programme in NHS Health Scotland.
I am Carolyn Roberts, head of policy and campaigns at the Scottish Association for Mental Health.
That is helpful. Would anyone else like to contribute?
I agree with all of that. Also, if someone has a disability, that can have a real impact on the treatment that they require. If someone has a sensory impairment, for example—if they are deaf or have a visual impairment—it is extremely important for them to get the adjustments that they need if their treatment is to have the outcome that we are looking for. That does not always happen in mental health services generally, so it was extremely important that the 2003 act introduced the duty to promote equalities.
By definition, mental health is very cross-cutting in relation to the population, so a key underpinning principle is that we do not start to impose another discriminatory layer. The 2003 act is positive in that regard and its principles are good in setting a framework, but positive reinforcement is needed on mental health.
I noticed that Shaben Begum supported the principle of the duty but I think that she said that we were not monitoring age, gender and ethnicity. I may have picked that up wrongly and it may come up subsequently, but it seems like an important issue, which I think NHS Health Scotland raised in its submission as well.
Dale Meller and Donny Lyons would be in a good position to respond to that. I was a member of the group that undertook the limited review of the 2003 act. Our experience was that, although documentation asks for background information such as people’s ethnicity, those parts are not always completed and the information is not monitored. Dale Meller will know more about that than me.
I will respond specifically on the issue of young people’s care, because it is very dear to our hearts. Carolyn Roberts is right to say that there was a fall in the number of young people admitted to adult wards. Members of the committee will most likely be aware that that was part of the mental health delivery plan: there was a commitment to reduce by half the number of young people admitted to adult wards by 2009.
There are only three dedicated young people’s in-patient facilities in Scotland, which are based in Glasgow, Edinburgh and Dundee. Health boards that do not have a special facility will contract for places in the specific dedicated facility nearest to the area that they cover. We have found that in some instances, it has been difficult for young people to get access, especially if there is some distance between their home and the in-patient facility.
I cannot comment on the age strand specifically, but I will link that point with the ethnicity question. The reason why we are able to consider the evidence and understand exactly how many young people are admitted to adult wards and where they appear in the system is because age is monitored effectively. That gives us good data, and means that we can hold this type of discussion.
I agree in general with what has been said about younger people’s services. One of the key issues from a local authority perspective is the role of mental health officers. The service that they provide is an important part of the checks and balances with regard to the functioning of the act. My feeling is that there is increasing pressure on that service nationally—incidentally, I believe that the most recent survey showed that mental health workers are an ageing part of the workforce. There has been a significant increase in activity under adults with incapacity legislation and growth in the use of guardianships in Scotland, both of which have put additional pressure on mental health officers.
As I understand it, the review was not given a specific remit with regard to equalities; it was asked to concentrate on a number of other areas. It made some recommendations around making the notification of ethnicity statutory and allowing people under the age of 16 to appoint a named person, which is not allowed at the moment. In our response to the McManus review, we suggested that it would be useful to monitor equalities more widely. For example, along with ethnicity, we would like disability to be monitored more closely. We have not yet seen what will come of the McManus review—there has been no response to it, yet—so we do not know what will happen.
Does Donny Lyons have a view on that? The Mental Welfare Commission for Scotland has a general duty to monitor the operation of the 2003 act.
I understand the argument, but it is probably not logistically possible to have a young person’s unit in each health board area. It might not be economically feasible to have a separate unit, especially in an area that serves a relatively small population. However, if a young person is to be admitted to an adult ward, it is important that they should be admitted to a ward that is designated for that purpose, where there can be greater input from professionals who work with younger people. That is what happens at New Craigs psychiatric hospital in Inverness. It would be hard to sustain the argument that there should be a young person’s unit in each health board area.
Although the review group did not have a particular remit to look at issues around equal opportunities, they influenced a lot of our discussions and debates. We talked about the obstacles and barriers to accessing appropriate levels of services that people might face. We also talked about disability, ethnicity, gender and age.
We did not have a formal discussion about any of the equalities issues, but all the issues were discussed. The background of the group ensured that we all had lots of experience of working in different areas with different groups. Lesbian, gay, bisexual and transgender issues were raised, as people had concerns about service users’ experience through the mental health system. We talked a lot about what the review group could do to remove some of the obstacles that people might face. Sometimes, people talked about interpreting and translation services; however, the important issue was that not all black people need interpreting and translation services. A lot of it is about changing people’s mindsets and challenging assumptions. That applies to all the equalities strands.
I agree with Marlyn Glen that translation facilities are a basic requirement. If somebody is in receipt of either NHS services or social work services, the NHS and local authorities are happy to pay for translation services. However, we deal with a number of people who are not in contact with either of those services and we have had to dip into our reserves to pay for translation services to make our organisation accessible to those individuals. The local authority will not pay for those services because the people are not in receipt of a social work service and the health board will not pay because they are not in receipt of NHS services or are not in-patients. In our desire to make our organisation accessible and to give people the independent advocacy that they need, we must dip into our reserves to ensure that translation services are available to them, and I am not sure that that is right. We are funded by the local authority and the health board, and it should be their responsibility. We should not have to dip into our meagre savings to provide those services.
So, if one of those bodies will not pick up the bill, you are left having to foot it.
That makes sense.
I do not know. Dale Meller does not know, either.
I have a more general question to ask about advocacy, but I wonder whether Shaben Begum could comment on the availability of advocacy services for people with mental health issues in prison.
You raise two issues in response to Hugh O’Donnell’s question. First, you feel that your core funding to promote independent advocacy is sometimes used to provide an interpretation service. Secondly, by the time that you have dealt with the people whom you must deal with—a pecking order exists—you are unable to offer independent advocacy to prisoners.
I have a point that is probably more general than the meeting’s remit is. Andrew McLellan’s report about severe and enduring mental health problems in prison was clear but, as Carolyn Roberts said, if the scope is broadened to bring in lower-level mental health problems—which, if untreated and not examined, will worsen—the problem is enormous. I understand that the handover from the prison health service to the NHS will take 18 months to two years, although much work on that is being done.
Rehabilitation is fairly fundamental. Should we talk just about the health budget or should we consider the criminal justice budget, too?
Thank you—that is helpful. I call Hugh O’Donnell.
I am sorry, but I have to stop you. My mistake; we are still on advocacy. I should have called Malcolm Chisholm.
My question begins in a general way and then homes in on advocacy. Obviously, most witnesses addressed the question in their submissions, but I will put it again. What is the impact of the act on the care and treatment of the different equalities groups and how, in particular, have advocacy services developed following the provision of the right to advocacy? Dale Meller mentioned services for children; I am interested in that area, but the question is wider than that.
Thank you for that full and comprehensive explanation of some of the serious problems that you face.
I back up some of what Shaben Begum said. It is certainly our experience that there is a skewing of the advocacy service towards people who are subject to the act. As Dale Meller knows, when I met the McManus committee, I entitled my evidence, “What happens in the 729 days between tribunals?” If an advocate is involved with someone who has a mental health problem, they help that person on a day-to-day basis.
I agree. We find that access to advocacy for children and young people is patchy throughout Scotland and that people are interpreting the term “mental disorder” in different ways, even though it is defined in the act. With some services, the focus is on young people who are subject to compulsory treatment orders, but in many areas the numbers involved are very low. It is a matter of trying to get the people who make referrals to have a better understanding of the role of advocacy and to increase its span. That is certainly a big issue.
I am not sure that there is a debate about independence. I think that we are pretty clear about what is and what is not independent advocacy.
What was said about the tribunal was interesting. It is a pity that there is not somebody from the tribunal here. I think that I understand the point; I presume that it was not that people should not have someone, but that they need someone at a much earlier stage.
Do you want to add anything to that?
We have launched an updated version of the guide for commissioners with which Malcolm Chisholm was involved originally. We plan to work with commissioners and funders of advocacy organisations from local authorities and health boards. The definition of “independent advocacy” has been clarified and I know that other stakeholders who are here share that definition and have a shared understanding of the term. There is a specific issue for a couple of organisations that provide services for children and young people, which we believe is really important—we welcome the expansion of independent advocacy for children and young people and support it whole-heartedly. I repeat that we are clear about the definition of independence and it is important that it is not muddied.
It will be better this time.
We have covered fairly comprehensively many of the children and young people’s services. If I have understood correctly, the consensus is that services are patchy and tend to focus on firefighting. A couple of organisations and some local authorities, such as North Lanarkshire, have introduced a counselling service into all secondary schools on the basis that early intervention in what might be regarded as low-level mental health issues can be addressed in that way. An organisation in Edinburgh called the Place2Be provides counselling services to primary school children. Are such services generally available throughout the country and is there a need for them?
That useful contribution backs up Carolyn Roberts’s comments. It is all very well to make clear what we should be doing, but what practical steps are being taken to ensure implementation?
You represent the Mental Welfare Commission, which, no doubt, monitors all these new developments. We have identified things that we know we should be doing, by which I mean the role of advocacy in curriculum for excellence, the need to get to young people in schools and the focus on prevention rather than on the firefighting that so much effort has been channelled into. How can the commission ensure that all that is being implemented effectively?
It was advocacy that was mentioned. At this point, I bring in Christina McKelvie, who, as a member of the Education, Lifelong Learning and Culture Committee, which is also looking at this issue, might be able to tell us whether we are on the right track.
I am sorry, but that does not fall within our remit.
We are getting slightly out of the order that I had envisaged, but as the issue is getting wider, it might be appropriate for Stuart Lennox to round off the discussion. Section 26 has been mentioned, but we all know that the same issue is covered in section 25 all the way through to section 31. We have just heard that we do not seem to know who is monitoring implementation, so I wonder what the position is of the local authorities and directors of social work, although I recognise that the issue is broader than just being a social work issue.
I am worried that Christina McKelvie’s point got a bit lost. Ten years ago, when we realised that we had to withdraw from schools, we tried to enable the guidance staff to deliver what we were delivering. We also went to the health promotion department of the local NHS board, where we found out that there was only one half-time member of staff for mental health promotion for the whole of Lothian—I have named and shamed it. She said that she did not have the necessary capacity, given how many schools there were. I apologise for harking back, but I did not want Christina McKelvie to feel that nobody was saying anything about the issue that she raised.
Donald Lyons is correct that the issue of how local authorities take account of equality issues in the implementation of section 26 duties is huge. I do not want to pre-empt the decisions that we will take as a result of our evidence taking, but we might consider passing over the whole issue to the Local Government and Communities Committee to consider in depth. It is a vast area.
With that, we move on to our final question, which is from Elaine Smith.
Marilyn, Dr Lyons has not finished.
On the issue of the barriers that people face in accessing the appropriate levels of service, I want to flag up the fact that competitive tendering, which Shaun McNeil mentioned, is really problematic for the advocacy movement because of the unfortunate emphasis on pushing down funding levels. That seems to fly in the face of the principles of independent advocacy, which is supposed to be about allowing members of the community to decide that they will need and benefit from advocacy. Up until the end of the last calendar year, there were two BME advocacy organisations working in Glasgow, but both of them—for different reasons—lost their funding. That has resulted in a huge loss on a much bigger scale, because those were the only two organisations that worked exclusively with people from black and minority ethnic backgrounds. Those organisations no longer exist.
Was that as a result of competitive tendering, or had those voluntary organisations come to the end of their three years of funding?
I think that there was a mixture of issues and reasons.
The clock is ticking, so contributions must be kept brief. I will go round the table and ask each person to say one thing that should result from our discussions.
Picking up on the issue of three-year funding programmes, I think that our organisation has been on a year-to-year funding programme ever since it was established. I am really looking forward to the security of a three-year funding programme.
Given the current economic climate, it will be interesting to see how we maintain the balance between positive intervention across a diverse range of groups—I go back to the point that mental health is a cross-cutting issue—and support for people who are experiencing compulsory treatment. We need to balance prioritising resources at the sharp end, if I can use that expression, and positive intervention at an earlier stage.
I agree that funding is a big issue; there is no doubt about that. However, on a more general point, I am also really keen to ensure that we focus on children’s rights. The right to advocacy is a key point in that.
Like other committee members, I thank folk for coming along and giving us an interesting discussion.
I am aware that there are some sensitivities around collecting equalities information in the context of mental health care and treatment but, on a more positive note, NHS Health Scotland is involved with a number of initiatives to support NHS staff, and staff more widely, in equalities monitoring. When staff feel confident to ask the questions, there are really not many barriers. I would be interested in exploring that further with others.