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This is our first evidence-taking session in this inquiry. I welcome Richard Norris and Karen Prentice from the Scottish Association for Mental Health. We have a series of questions for you; but first I would like you to take a few minutes to add anything you would like to the information in the written submission we received from you some time ago.
First of all, I would like to thank the Health and Community Care Committee for giving us the opportunity to give evidence. SAMH welcomes the fact that the committee has decided to hold this inquiry into community care, with particular reference to mental health and services for the elderly. In the past, there has not been enough political scrutiny of community care in Scotland, and we are encouraged that the Scottish Parliament has decided to look at it closely.
I was going to ask what you regard as the top priority for the development of mental health provision over the next five years, especially as it relates to community care services, but I think that you have answered my question before I asked it. I assume that you would respond that it is funding, so I will add to that question—what are the greatest barriers in the way of mental health services being provided as you want them? I expect that you will respond that funding is one of them, but can you give me some other ideas as to what barriers there are to your priorities being met?
A number of reports have identified the fact that provision of mental health services is still based on historic provision rather than on current need. The pattern of provision of mental health services means that money is still going into the old services—resources are not being redirected. Funding is important in relation to that as well, because if there is not funding for new services people will, naturally, be protective about their budgets.
You have painted a stark picture of the fact that we have a good framework but we are not moving forward on it. I asked an oral question on whether targets were being set in relation to the implementation of the mental health framework. The response was that a working party is arising out of the summit that took place in January. What are your views on that mechanism for taking this matter forward?
I agree that there should be targets. I did not attend the mental health meeting in January, but setting up a working group to consider targets sounds like a positive development. A problem with the framework is that there has not been enough prescription. Ambitious mental health strategies are produced, but they tend to be long lists that lack hard commitments in terms of time scale and resources. A typical mental health strategy would have a list of good community services and would give no undertaking as to how money would be found to fund them or when they would come on stream. I would welcome any development that introduces more prescription into the implementation of the framework.
Are the various special funds that are associated with the mental health framework effective, or are they too short-term? One of my concerns in relation to three-year funding is that when you get your funding it takes at least three or four months to get the project working, so you might be six months into the project before it functions. You then have a maximum of two years to run the project and prove that it is worthwhile. There is then six months of planning blight at the end, during which the best staff are looking for new berths.
Three-year funding would be a luxury for many organisations—often, they have yearly funding. One local association told me that they all get a form from their local health board in April to fill in, send back and be told what their funding is from the beginning of that month. Many local associations and many services that we provide do not know what funding they will get from next month. There needs to be more prescription in relation to the length of time of funding. Various documents have said that three-year funding would be a good thing and that the voluntary sector needs more stable funding, but that is not happening. Perhaps the Government needs to be more prescriptive about the contracts that are awarded, through either health boards or social work departments.
You will also have tendering problems because the tenders are all different. Is there any evidence that the Scottish Executive is trying to co-ordinate this in any meaningful way?
Not that we are aware of. The Scottish Executive is sometimes reluctant to appear to interfere in local government affairs. We are often caught in the political problem of the Executive being unwilling to be too prescriptive towards local government as it is conscious of the boundaries between their powers. I think that there have been recommendations in the past.
You have highlighted the fact that there has been a fall in national health service expenditure on mental health. Do you believe that expenditure should be targeted on social care provided by voluntary organisations or local authorities, or should we be considering some other mechanism?
This is a difficult and complex area. The framework document, which mentions the need for joint commissioning and pooling of budgets, is almost half way through its implementation plan. We supported the framework and would still like it to be implemented. There is no stomach for reorganisation, either in local government or in the health service. Local government reorganisation a few years ago caused immense problems for voluntary sector bodies, which had to re-establish relationships. The recent reconfiguration of health trusts is also causing delays in implementing the framework.
You said that there is no stomach for further reorganisation, but since the previous reorganisation little use has been made of the joint investment fund, which was supposed to bridge the gap between primary care and acute services and to include voluntary organisations. Should we pursue that mechanism to ensure that a joined-up and well-thought-out service can be provided?
Can you elaborate on the joint investment fund? I am not familiar with it.
I think that you are not alone. It is something that has not been exploited. It is supposed to be the structural mechanism for individuals who are coming out of institutional care, either from the acute sector or from various types of mental health care. All members find that that mechanism is not being used to best advantage in their constituencies. An organisation such as yours may not have been involved in it, but it is something that we should pick up on.
The framework document made it clear that social work departments are expected to play a strategic part in the planning of services. The evidence shows that working relationships between health boards and social work departments differ throughout Scotland; some are good and some are not so good.
The committee is considering a thematic approach to community care as part of a continuing wider inquiry. We can develop some of your points about a unified approach and the failure of long-term planning. There are two other areas that will crop up again and again in this inquiry. One is the attitude to resource transfer, which is crucial.
In our submission we give the example of money from the sale of psychiatric hospitals going into other services. We think that there is a good case for saying that that money should be earmarked for the development of mental health services. One health board responded that if it did not spend the money, it would lose it, so it had to spend the money quickly on something else. Ring-fencing would help health boards to protect that money for mental health. If the rules on capital receipts being returned to the Executive were relaxed, boards would be able to spend the money better and more strategically on mental health.
Can you outline exactly what you are looking for, so that we can be absolutely clear about what transparency means in this context?
It is very difficult to ascertain the level of spending on NHS mental health services because the resource transfer levels are not contained in Scottish health service costs. Whereas we can work out how much money has been spent on hospital beds or community mental health teams, we do not know how much money from resource transfer is going into the community. We have to rely on the Accounts Commission producing a report, which states the resource transfer levels as a fait accompli, as we cannot go back to check them. We need more transparency so that we can keep an eye on individual health boards and ascertain whether the money is being invested in mental health services and not leaking out somewhere. That would enable us to check whether the money that is being freed up from hospital services is being used for community mental health services.
Because the case for transparency is so obvious, presumably you have been pushing it for some time. How do you explain the resistance to that?
It is difficult to give you an explanation. We are not the only ones calling for more transparency. In its report in 1997, the Scottish Affairs Select Committee once again called for more transparency in resource transfer. I do not know why there is a problem achieving that.
I am a bit confused about your approach to pooled budgets, which you were talking about a minute ago, and how it fits with your support for ring-fencing. What is your position on that?
When we talk about pooling budgets we are talking principally about health and social work departments, as well as budgets that are available from other organisations. In the framework document and other papers that they have issued, both the previous Government and this Government have said that organisations need to be transparent about pooling their resources—in other words, to be honest about what budget they have for mental health. There is a continuing problem in this area, because the evidence indicates that people try to hold on to their budgets. In one sense that is perfectly understandable—it is very human, particularly at a time of severe financial stringency. If a provider thinks that it can hold back some of its budget to spend on something else and get someone else to pick up the tab, it will do that. Unfortunately, the framework document did not offer people incentives to invest in new services. It required a level of honesty and openness that it was unreasonable to expect from people who want to protect their budgets.
In your submission, you mention Forth Valley Health Board, which covers my area. I do not go to the barricades lightly, but I can assure you that, if the £20 million from the retraction of Bellsdyke is used in the acute sector, I will be standing on a barricade somewhere. The primary care trust has said that that will not happen. As it is the trust's land and resources, I have great confidence in the chair and chief executive, who have just been appointed.
I strongly agree. In a sense, this is about information. I refer again to the SHAS report, which comments not only on underfunding, but on the fact that there is poor communication between the health boards, local authorities and the voluntary sector. A local association in the Highlands recently told me that there had been a £3 million resource transfer fee, but that no one knew where it had gone.
I want to pick up on that. Resource transfer varies depending on the health board area. However, we are moving towards planning the delivery of services and putting a lot of emphasis on ensuring that community planning takes place in each locality, particularly in local authority areas. Do those factors allow you to have more strategic involvement both in indicating the level of provision that is required and in consultation with the public? I am aware of the general public's attitude to moving mental health services from the old institutions into the community. Can the community plan be used to break down the barriers that are perceived to exist, and that do exist in some areas? Is the community plan a way forward in terms of funding and saying what services should be provided?
Yes. You identify the fact that there is sometimes opposition to mental health projects in the community. We have encountered opposition when we have tried to set up supported accommodation projects, for example. However, we usually find that opposition evaporates once the project is set up. In one case, people commented that their new neighbours were much better than the old ones. Nevertheless, opposition is a continuing problem.
We are skirting around the relationship between local authorities and the NHS. What do you mean by
The comment was about the professional boundaries that can exist between the two organisations. For example, I heard of a group in the central belt that was trying to set up a self-help project for women suffering from post-natal depression. That got a lot of encouragement from the social work department, because the project fitted in with its agenda, but it did not get any support from the health board. On the other hand, we tend to find that, in terms of contracting, it is easier to deal with health boards and health trusts than with social work departments.
Mentally ill patients—who are not at the heart of the service, as you pointed out in the bleak picture that you painted at the beginning of the meeting—are being failed on account of the personalities of people in health boards and in social work departments. If there are serious issues, I wonder why we are bothering talking about pooled budgets and so on. If health boards and social work departments cannot work together—if their heads cannot be knocked together—we have to look at the issue much more radically. What is your answer, given the personalities, divisions and so on?
I do not want to reiterate the point that I made earlier. There is an experiment in Perth to try to ensure that the social work and health organisations work together more closely. My view is that we should stick with the framework but add more carrots and sticks. If, in two or three years' time, we are still not seeing progress on the ground, we may ask whether a deeper, structural problem needs to be addressed. It may simply be that this is like trying to change the direction of an oil tanker—it takes a long time to do it. However, there is considerable frustration on the ground that services are not appearing.
Last night, I read that, sadly, the National Schizophrenia Fellowship, the Institute of Psychiatry and other mental health bodies with an input into care in the community are all saying what you are saying. We have spent seven years on this. You have painted a bleak picture and I wonder how much more time we have to waste.
Can I stop you there, Mary? I take it that you were going to ask about beds. Ben has a point arising from Richard's comments.
I wanted to expand on the relationship between health boards or hospital trusts and local authorities. Resentment seems to be building among the health boards about where their transferred resources are going. If they cannot see any tangible benefit, they are questioning the amount of money that they are transferring. A number of health boards have told me, "We are under massive pressure because of bedblocking, and we are not getting anything out of the relationship, so what are we doing? We could use the money elsewhere." Have you picked up on that? Do you have any comments?
My comment is a general one. One could speculate that the reason why the funding has not delivered locally, despite mental health being a priority, is that funding decisions are made by health boards and health trusts, which are more interested in what are seen as the politically high-profile areas of waiting lists and acute services. You could ask, "What has been happening for the past seven years?" Care in the community has been a declared objective of different Governments for many years. We may have to recognise that mental health is not a politically attractive issue. Although there has been a clear political will and a recognition that community-based care is more suited to the needs of people with mental health problems, we cannot underestimate the huge amount of political will that might be needed to move things on.
In your submission, you say that
We do not have any figures for that, although both SHAS reports drew attention to the problem. The requirement for beds is running at more than 100 per cent capacity because, at the weekend, people in acute states are taking over the beds of people with weekend passes.
So some people in the community are desperate for hospital care and others in hospital are desperate to be in the community. The whole situation is a real mess.
Our submission also draws attention to the fact that people are sometimes blocked in because no one is willing to earmark funds for a bed in SAMH-supported accommodation. As a result, we have to pick up the cost until that money can be found.
I think that I am right in saying that weekly care costs SAMH £268 and the NHS £700 to £800.
That was partly a rhetorical question. The internal market was abolished because it was seen as bureaucratic and wasteful; however, we still have a market in social care. We must carefully think through a market for social care; it is not a perfect market situation, as the consumers are not the purchasers. One way around that problem is to examine regulating contracts on a more unified basis, so that we are all on a level playing field, and to involve users and carers in evaluating services. Without those factors, the market is a sham.
I am interested in the crisis services to which you have referred. I have worked with users of mental health services in Edinburgh; one of their top priorities is to have at least one crisis centre in place. I understand that users groups elsewhere in Scotland have similar concerns.
You are right—we tend to end up discussing those who have the most severe mental health problems. One in four people in Scotland will experience some form of mental health problem at some point in their life, although the vast majority of them will never go anywhere near a psychiatric hospital. General practitioners are the health service contact for most people when they have a mental health problem. Research indicates that about a third of GP consultations involve mental health problems.
I often feel a crisis coming on in this place.
We should consider non-crisis needs. There is no reason why one has to be facing a crisis in order to use a 24-hour counselling service.
If people receive appropriate community care, crises are far less likely to occur. In our submission, we cite an example of one of our service users, a woman who was a "revolving-door patient" when she was living on her own in the community but who, since she entered SAMH's supported accommodation, has not been in hospital.
I strongly support that kind of project. I was using the phrase "crisis centre" in a more narrow sense, but I happened to have a meeting on Friday with Lothian Health and Lothian Primary Care NHS Trust about an excellent community mental health project in Pilton in my constituency. The funding of that project is being halved because its urban aid funding is coming to an end. Everyone says that the project provides a wonderful service and that more people will end up in hospital if that service contracts.
We are not aware of any in Scotland. Our service users also cite that model as a service that they would like to have.
We have an anti-virus service that is run by general practitioners and nurses, an accident and emergency system that operates 24 hours a day, a social work emergency team that is operating 24 hours a day, housing work that goes on 24 hours a day, some voluntary sector stuff and NHS Direct on the horizon. All those teams offer different types of service, but my worry is that for people with mental illness—as you have described—all the components may be required together. To expect a person out there to ask, "Wait a minute; do I have a social crisis, a housing crisis or an accident and emergency crisis?" is totally ridiculous.
Another problem is that service users often do not know where to go in a crisis. In England, a survey was conducted of service users who were in receipt of help from two or three professionals. They did not have a clue where to go in a crisis. According to the survey, 39 per cent said that they had been turned away when they had gone somewhere in a crisis, or had turned up at their former hospital ward only to be told that they could not just walk in. There should certainly be better co-ordination.
I have an appointment with the doctor at 10.30 am. May I ask a question now?
I will be kind to you, Ben.
My question concerns the waste of resources and the breakdown in co-ordination. I have a constituent whose clinicians—his psychiatrist and his GP—have said that there is no need for him to be sectioned. Nevertheless, the social work department of the local authority has persisted—through meetings and with the police—in trying to get him sectioned. The money that has been spent, through ignoring the advice of the clinicians, shows that a bad procedure has been followed and that resources have been wasted. Do you have a view on that? The clinicians say that it is a reflection of the way in which some mental health officers work, and the social workers persist in the opinion that they are right in overruling what the clinicians have said. Do you think that that is one reason for the waste of resources throughout Scotland?
That sounds like a particular problem rather than a general one, in which the mental health officer is insisting on having someone sectioned against medical opinion. That is not a common scenario.
I have a supplementary question to what Richard Simpson said about crisis centres. We have not mentioned people with mental illness who are placed inappropriately in police care because of the lack of crisis centres—I have two friends who are police surgeons, so I know that that seems to be a problem. If nobody knows how to deal with such people, they are taken to the police cells. The police surgeon is then called in, although the problem is clearly one of mental health, and the person is inappropriately put through the criminal justice system. Do you have any experience of that? It is important to put that point about crisis centres on record.
Our information service, which also provides legal advice, comes across such cases. Ben Wallace's constituent might find it worth while to contact our legal service to find out whether it has any advice on the situation. We sometimes hear of people being inappropriately referred to the criminal justice system. In a case that made the headlines a year ago, a woman was sent to Cornton Vale after attempting to commit suicide.
Some sort of crisis-intervention centre would probably prevent such incidents, as the centre would have professional staff who were well trained in the range of mental illnesses and there would be no need to involve the penal system, which is totally inappropriate.
I wanted to follow up on Richard Simpson's point. He is absolutely right about the need to pull together the disparate groups that are involved. We all agree that we need one point of entry and a much greater focus on the individual. I would like to hear a clear statement from you on what you think that point of entry should be. You talked about the enormous work load of GPs. Do you think that GPs are the best starting point, and if not, who is?
At the moment, GPs are still the gatekeepers to secondary mental health services. I can understand the reasons for wanting to maintain that position. However, we would like to see walk-in facilities—on the lines of those that are being established in other sectors—at which people could refer themselves directly to specialist mental health services. That would be our preference.
You make it clear in your report that there is no middle ground. You say that in many cases
In our experience, the hospital closure programme has been proceeding slowly. The Government made available a large amount of bridging money to Glasgow so that it could close psychiatric hospitals and move people into more appropriate community facilities, but in Scotland as a whole the pace of closing down long-stay psychiatric hospitals to provide more appropriate care in the community has been slow.
The hospitals that I am talking about tend to be very small and based in the community; in Glasgow at least, they are still being closed.
It is very difficult to produce exact figures for that, because in the voluntary sector managers are spending their time sourcing funding so that they can continue projects when they would be better off spending that time developing new models and setting up new projects. The emphasis of the framework is on setting up new services and it is increasingly difficult to get money for existing worthwhile services. I am talking not only about statutory funding but about other sources of funding. People tend to be keener to fund new services than worthwhile services that are already up and running. Even though it might be cheaper to refer people to an existing service, people are referred to the more expensive services that are funded through transferred resources, because that costs the social work department nothing.
You talk about new models and services but the difficulty is that there is no service that fits all. Each area has particular needs. In some areas, there has been a move towards linking accident and emergency. For example, in Crosshouse hospital in my constituency, a consultant psychiatrist will soon be based in the accident and emergency department. That is a welcome development and might assist Irene Oldfather's police surgeon friends.
There is sometimes a tension between what is seen as an effective medical intervention and what users of services want. We are entering into an area of evidence-based medicine and we need to be aware of issues relating to that. The Scottish Executive's health research bulletin talked about the mushrooming of counselling services that are provided by general practitioners. That was seen as a response to a demand for such services. However, the bulletin cast doubt on whether those services were medically effective.
Both things should have equal weight in any audit trail.
Margaret Jamieson mentioned that Crosshouse hospital will have a psychiatrist in the accident and emergency department. That is a good idea and might prevent people ending up in police custody. However, unless there is somewhere that the psychiatrist is able to refer people to, the policy will not be effective.
I want to talk about budgets. On Lennox Castle hospital patients, is there any evidence that taking a mentally ill patient home to their family, where they will face their own daily challenges, is the most appropriate level of care for the long-term mentally ill? Is that best for their care or best for the budget? It would have no impact on national health or social work budgets because the bill for that care would be picked up by the Westminster social security budget. Is that option merely a way of overcoming the difficulties that you have mentioned today? Is the buck being passed not to the NHS, but elsewhere?
Lennox Castle is a facility for people with learning difficulties, not mental health problems. We have not been directly involved in discussions about Lennox Castle. Carers believe that care in the community too often means care by the family. They feel that they are not offered proper support. I am not sure what your point is about social security.
I was referring to attendance allowance, disability living allowance and so on.
In that sense there is a resource transfer away from a health or social work budget to a central Government budget. One could also examine what is happening about housing benefit in that regard. In the past, a person going into a supported accommodation project would have a care component included in their housing benefit. That is ending and housing benefit is being examined with a view to redesigning the care component so that it can be distributed by local authorities from their limited budgets. That will impact on many supported accommodation projects in Scotland.
Many such patients have been in hospital for 20 or 30 years. I want to know whether what is being offered to them is most appropriate in terms of care levels or in terms of budget.
Individual cases must be examined. It is not possible to make the generalisation that somebody should not be discharged because they have been in an institution for more than 20 years.
Is that evidence-based care? It has been tried in Liverpool and it was not a success.
The general principle behind discharging somebody from a long-stay bed into the community is that discharge will result in more appropriate and more therapeutic care. There might be cases in which discharge is not appropriate. SAMH is, in principle, in favour of offering as much independence and community care as possible. We accept that that does not mean that it is appropriate that everybody in a long-stay bed should be cared for in the community.
Absolutely.
A crucial element of any strategy to integrate people with mental health difficulties back into communities is providing them with employment and training opportunities. Your submission says that a national or local strategy for that is lacking. I am aware of groups in my area that do work along these lines, but I take your point about the lack of an overall strategy. However, there are barriers to that because of the breadth of mental illness that you are trying to encompass. What is your view of the components of a national or local strategy? How would they fit together?
We have talked about the need for a number of agencies to work together. Enterprise agencies and employment programmes must be included and must not be regarded as add-ons. Too often it has been thought okay to discharge patients into the community without thinking about the structure that they will have. We have drawn the committee's attention to the problems facing our training programmes, but our programmes are not the only ones that are under threat because of, for example, the uncertainty with the European social fund.
Is the core problem the fact that there is no strategy, or does it lie with funding? I am aware of the problems with the European social fund. That may be a transient factor as the fund and the agencies that support it can change from year to year. The ESF is not core, mainstream funding.
The problem relates to both funding and strategy. It is important to co-ordinate the work of different agencies. That is done better in some parts of the country than in others. Our projects are partly funded by ESF and, in the west of Scotland, by Greater Glasgow Health Board, as well as by the social work department.
You have raised the question of ESF funding. If the Executive does not sort out ESF funding—presumably it is the Executive's responsibility to do that—should there be a period of time for which programmes are automatically extended? For example, there could be an arrangement whereby the clock stops when there are six months to closure and funding has to continue until a decision is made. We have to find some new mechanism to end that uncertainty. In my area of family mediation, which is also supported by European funding, redundancy notices have been issued, because there are three weeks to go and the voluntary organisation cannot afford to issue them after the work has finished.
First, on the issue of the uncertainty of funding, it would certainly help if a contingency plan could be made in advance. For example, we know that we are funded until June, but we will not find out until October whether the project funding will continue. It would be enormously helpful to hear that six months of contingency funding has been made available, not in June or May but in January or February. That would mean that we would not need to issue redundancy notices and would not have to tell staff and project users that the project might end in June.
What does it do to the clients, knowing that the workers might be about to be made redundant? If a person has a mental health problem and does not know whether their support worker will be there on 1 January, they will be distressed. It is bad enough for the staff, but it is even more important for the clients.
We have not had a great deal of involvement in the rough sleepers initiative. I can only speak for my own department, which has not been asked to do any work on that. However, that does not mean that other parts of SAMH have not been involved at a local level. There are 70 different projects.
It seems to me that, overall, the state has made vast savings in the last 20 years or so by closing psychiatric units. Roughly 8,000 beds have been lost. However, your big concern is that that money has not been redirected into care in the community.
I would probably have to say yes. If we knew what our income stream was going to be for the next three years, it would make an enormous improvement.
Are you saying that the key is not even an increase in funding, but simply security of funding?
Yes. At least then we would be able to plan.
Thank you for coming to the meeting. Your contribution has been extremely useful.
Meeting adjourned.
On resuming—