Chamber and committees

We recognise the importance of ensuring that everyone understands what a normal period is. We have developed a range of resources that anyone can access to learn more about periods, period symptoms and conditions like endometriosis, PCOS and PMS. More information can be found in the Women’s Health Plan 2021 - 2024 Final Report.

Additionally, in March 2023 we delivered an engagement campaign in partnership with Young Scot to increase young people’s awareness of endometriosis. The campaign is aimed at those aged 11 to 25 in Scotland, including boys and young men. The campaign includes information about endometriosis symptoms, provides information about available support and provides information on how to support a friend in the process of diagnosis or who may have endometriosis.

Menstrual health and wellbeing education is a key part of relationships, sexual health and parenthood (RSHP) education. RSHP education is an integral part of the health and wellbeing area of the Scottish curriculum, Curriculum for Excellence.

An online RSHP teaching resource, (www.rshp.scot) was published in 2019 and provides age and stage appropriate learning activities on RSHP education for use in all education settings and is aligned to Curriculum for Excellence. This resource includes learning activities on menstruation from second level (P5 to P7), with endometriosis introduced at third/fourth level (S1 to S3).

The Women's Health Plan Implementation Programme Board was established to oversee and drive the delivery of the Plan. The Board brought together a range of organisations, including COSLA and Trade Union representation, to ensure that the actions within the Plan are implemented effectively and in partnership, with continued input and influence from women themselves.

The Boards stood down with the close of the first phase of the Plan. Updated governance will be developed alongside the second phase, to be published in 2025.

In NHS Scotland, a national menopause and menstrual health policy was published in October 2023, to seek to better support employees and their line managers.

NHS Education for Scotland (NES) has launched an e-learning module on menstrual health available on Turas Learnand in particular is aimed at those working in primary care. The school nursing workforce and school counsellors can also access this training as required.

The Health and Social Care Alliance Scotland (the ALLIANCE) has continued to support the Women’s Health Plan through their dedicated lived experience programme. This has included the development of the conversation café toolkit, available for anyone to use, to encourage information sharing and peer support on areas of women’s health including menstrual health and endometriosis.

More information can be found in the ALLIANCE Final Report on Women’s Health Plan.

Menstrual health and wellbeing education is a key part of relationships, sexual health and parenthood (RSHP) education. RSHP education is an integral part of the health and wellbeing area of the Scottish curriculum, Curriculum for Excellence.

An online RSHP teaching resource, (www.rshp.scot) was published in 2019 and provides age and stage appropriate learning activities on RSHP education for use in all education settings and is aligned to Curriculum for Excellence. This resource includes learning activities on menstruation from second level (P5 to P7), with endometriosis introduced at third/fourth level (S1 to S3).

The figures below relate to Endometriosis research funding directly awarded following a competitive independent review process either through Chief Scientist Office’s (CSO) project funding committees, or fellowship funding panels.

This includes the 2022 Scottish Government collaboration with Wellbeing of Women on a £250,000 research call. The research is primarily being run by researchers at The University of Edinburgh and will look at a non-hormonal drug in the management of endometriosis-associated pain.

Most awards are multi-year. The figures below relate to the year in which the funding was committed rather than a breakdown by year of the spend profile for individual projects or fellowships

2007 0

2008 0

2009 0

2010 0

2011 0

2012 £110,198

2013 0

2014 0

2015 £27,639

2016 0

2017 0

2018 £162,651

2019 £30,000

2020 0

2021 0

2022 £394,510

2023 £349,999

2024 £623,028

Full details of CSO’s direct research funding awards are available from the CSO website Funded Research – Chief Scientist Office

The Scottish Government provides baseline funding to NHS Boards, which Boards use to best meet the healthcare needs of their resident population. Funding is not ring-fenced for the treatment of endometriosis. It is not therefore possible to identify funding allocated specifically for endometriosis.

Through the Women’s Health Plan, a range of funding has been provided for resources and research related to improving endometriosis care.

The Scottish Government collaborated with Wellbeing of Women on a £250,000 research call in 2022. The research is primarily being run by researchers at The University of Edinburgh and will look at a non-hormonal drug in the management of endometriosis-associated pain.

The Chief Scientist Office announced funding of £299,509 for the 30 month ENDOCAN project in January 2023, led by researchers at The University of Edinburgh. Through a large scale UK-wide trial, the research will investigate whether a cannabinoid can reduce endometriosis-associated pain.

The Scottish Government also provided £24,000 of funding in August 2023 to Endometriosis UK to deliver a project creating new resources to support people with endometriosis.

The Scottish Government collaborated with Wellbeing of Women on a £250,000 research call in April 2022. The research is primarily being run by researchers at The University of Edinburgh and will look at a non-hormonal drug in the management of endometriosis-associated pain.

The research will be funded over 3 years with the research findings expected to be disseminated in December 2025.

In January 2023 the Chief Scientist Office announced funding of £299,509 for the 30 month ENDOCAN project, led by researchers at The University of Edinburgh. Through a large scale UK-wide trial, the research will investigate whether a cannabinoid can reduce endometriosis-associated pain.

Recruitment for the study is due to start in August 2025 in NHS Lothian and NHS Grampian. More information can be found on the research being undertaken by The University of Edinburgh can be found on their website.

The Health and Social Care Alliance Scotland (the ALLIANCE) has continued to support the Women’s Health Plan through their dedicated lived experience programme, including a Women’s Health Lived Experience Stakeholder Group, to help us continue our conversation with women, and ensure women are meaningfully involved in decision making and priority setting going forward.

More information can be found in the ALLIANCE Final Report on Women’s Health Plan.

I refer the member to the answer to question S6W-30034 on 3 October 2024. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

Through the NHS Inform Women’s Health Platform, we have made information on a range of health topics, including endometriosis, available to women online and in one place. Reciprocal connections have been made throughout the platform with other Scottish Government sites such as Parent Club and with third sector organisations including Endometriosis UK and Endo SOS helping to raise awareness of the condition and supporting women to access the information they need when they need it.

In March 2023 we delivered an engagement campaign in partnership with Young Scot to increase young people’s awareness of endometriosis. The campaign primarily targeted those aged 11 to 25 in Scotland and provided information on how to support a young person in the process of diagnosis or who may have endometriosis.

The Health and Social Care Alliance Scotland (the ALLIANCE) has continued to support the Women’s Health Plan through their dedicated lived experience programme. This has included the development of the conversation café toolkit to encourage information sharing and peer support on women’s health including menstrual health and endometriosis.