Chamber and committees

All Health Boards in Scotland receiving baselined funding from the Scottish Government toward their neurology services. As part of Planned Care funding, the Scottish Government has also invested £217,000 in total towards improving waiting times in NHS Tayside and NHS Greater Glasgow and Clyde.

Through the Neurological Framework, the Scottish Government has given direct investment to numerous territorial Health Boards to undertake projects focusing on neurological care, in line with the Framework’s commitments. Health Boards that have received direct investment are:

• NHS Ayrshire and Arran
• NHS Forth Valley
• NHS Grampian
• NHS Greater Glasgow and Clyde
• NHS Lanarkshire
• NHS Lothian
• NHS Orkney
• NHS Tayside

Third sector organisations have also been awarded funding to work in partnership with a number of statutory organisations to better integrate services, including NHS Greater Glasgow and Clyde and NHS Fife. The Migraine Trust has worked in partnership with seven NHS boards to improve treatment for migraine in community pharmacy.

A full list of projects funded through the Neurological Framework can be found here.

This information is not held centrally by either Scottish Government or Public Health Scotland (PHS).

There are no plans to expand eligibility of The Young Patients Family Fund (YPFF) at this time.

In addition to support available under the YPFF, financial support for travel to hospital is available via the patient travel expenses reimbursement schemes. Under those schemes, patients and authorised escorts can reclaim reasonable costs of travel associated with attending a hospital appointment, in line with eligibility criteria and medical requirements.

The draft budget published on 4 December 2024 includes new investment of £4.5 million to deliver new specialist support across the country for long COVID, ME, Chronic Fatigue, and other similar conditions.

The Managed Service Network for Children and Young People with Cancer (MSN CYPC) are currently working with Young Lives vs. Cancer (YLvC) to take forward learning from the NHS England and Picker Institute U16 Cancer Patient Experience Survey, to see if this can be developed for children and young people with cancer in Scotland.

Additionally, the MSN CYPC provides a range of patient experience support services such as the Youth Advisory Forum which provides children and young people with cancer with the opportunity to share experiences with each other as well as identifying gaps and improve the quality of services by providing feedback. The Parent, Carer and Families Forum, also facilitated by MSN CYPC, gives a voice to the youngest children with cancer, and their support networks which enables their views to also be captured.

Implementation and evaluation of the Collaborative and Compassionate Cancer Care The Cancer Strategy for Children and Young People in Scotland 2021–2026 is managed by the Managed Service Network for Children and Young People with Cancer (MSN CYPC).

Consideration will be given to an evaluation of the delivery of this strategy as it continues into 2026. Recommendations and actions are continually reviewed by MSN CYPC and the 2023-24 MSN CYPC Annual Report has been published on the MSN CYPC website – www.msncypc.Inhs.scot.

The dedicated Cancer Strategy for Children and Young People in Scotland 2021- 2026 was published in 2021. This strategy emphasises the Scottish Government’s commitment to improving the distinct care and support services required for children and young people with cancer. Scotland is the only UK-nation to have in place a cancer strategy dedicated to children and young people with cancer.

Our draft Budget 2025-2026 includes a record £21 billion investment in health and social care services, including for services for children and young people with cancer.

Health Boards are expected to support patients and their families in identifying and accessing available support. Financial support for travel is available for patients and authorised escorts, according to eligibility criteria and medical requirements, through schemes such as the Patient Travel Expenses Scheme (PTES) and the Highlands and Islands Travel Scheme (HITS).

Scottish Government has funded Young Lives Vs Cancer to provide practical advice and emotional and financial support to young people diagnosed with cancer and their families. This includes advice on potential welfare benefits as well as direct grants.

Further to this, we are working in partnership with Macmillan to improve the service we offer patients with cancer through the Transforming Cancer Care Programme (TCC). This partnership with Macmillan is worth £27 million and is the first of its kind in the UK. The programme ensures that every patient with cancer in Scotland has access to a specialist key support worker, who can provide emotional, financial, and practical support.

The delivery of the Cancer Strategy for Children and Young People in Scotland 2021- 2026 continues to be taken forwards by the Managed Service Network for Children and Young People with Cancer (MSN CYPC) into 2026.

The progression of actions in the strategy are regularly reviewed by MSN CYPC and will inform any future national strategy approach required to ensure that children and young people with cancer will have access to the best possible treatment and care.

Public Health Scotland (PHS) publishes annual data on 16 to 25 year olds with cancer in Scotland in their incidence statistics. The latest report is available on the PHS website

PHS also publishes information on cancer in children (ages 0 to 14) and young people (ages 15 to 24) in Scotland

Children and young people with cancer in Scotland 9 May 2023 - Children and young people with cancer in Scotland - Publications - Public Health Scotland