The Official Report is a written record of public meetings of the Parliament and committees.
All Official Reports of meetings in the Debating Chamber of the Scottish Parliament.
All Official Reports of public meetings of committees.
Displaying 372 contributions
Health, Care and Sport Committee [Draft]
Meeting date: 30 September 2026
Helen McDade
That gave us a lot to think about, and some encouraging points to try to get across, perhaps.
11:00
Health, Care and Sport Committee [Draft]
Meeting date: 30 September 2026
Helen McDade
That is an interesting point to end on, and we can continue to consider that.
Health, Care and Sport Committee [Draft]
Meeting date: 30 September 2026
Helen McDade
Thank you, Helen.
Health, Care and Sport Committee [Draft]
Meeting date: 30 September 2026
Helen McDade
I have a question to fit in before we move on to funding. We have spoken a lot about the fact that most people receive care at home and about the role of carers as well as that of professionals. I have a bit of a concern, which has already been mentioned, about inequalities for people in poorer areas and so on. However, this applies across the board: pressure is being put on carers to continue to care for people at home even when they do not feel that they can, or when it might not be the best thing for the patient. Although the patient may have said three weeks ago that they wanted to stay at home, they could be in a lot of pain by now.
The case for what is needed and what would be best has been set out clearly, so you do not need to convince us of that. However, I am really concerned about how people get to make a choice, not just the person who is dying but their carer, too. How do we respond to a carer, who might have mental or physical health issues or might be finding that life is just too much?
10:45
Health, Care and Sport Committee [Draft]
Meeting date: 30 September 2026
Helen McDade
Lots of people want to come in.
Health, Care and Sport Committee [Draft]
Meeting date: 30 September 2026
Helen McDade
Mark, did you want to say something?
Health, Care and Sport Committee [Draft]
Meeting date: 30 September 2026
Helen McDade
Thank you very much, Rami.
Health, Care and Sport Committee [Draft]
Meeting date: 30 September 2026
Helen McDade
Good morning, and welcome to the sixth meeting in 2026 of the Health, Care and Sport Committee. We have received no apologies.
This is the first time that the committee has had the opportunity to focus on palliative care. Under the first agenda item, we will run an evidence session as a round-table meeting, which I hope will allow more discussion. There is no need for anyone to touch their microphones as the broadcasting team will manage them for us. We have up to 90 minutes for the session, and I think that we can get through a good deal in that time. I thank the witnesses for submitting useful background information to us. We appreciate that, particularly when submissions are nice and concise, as they were.
We plan to focus on four themes in turn: what good palliative care looks like; unmet need and demand; funding service models and inequalities; and Government policy, legislation and strategies for improved provision. Some of that will come up in each of the areas, though, so it is not prescriptive.
I am pleased to welcome our witnesses: Mark Hazelwood, chief executive of the Scottish Partnership for Palliative Care; Amy Dalrymple, associate director of policy and public affairs in Scotland for Marie Curie; Rami Okasha, chief executive of Children’s Hospices Across Scotland; and Helen Malo, senior policy and public affairs manager in Scotland for Hospice UK. Thank you all for coming. We are not looking for introductory statements, as such. I will start with the general question of what good palliative care looks like, and I will start on my right with Mark Hazelwood.
Health, Care and Sport Committee [Draft]
Meeting date: 30 September 2026
Helen McDade
You have given us a concrete point to consider in relation to what staff are available to provide such advice. The Government has mentioned that, in the new system, it envisages higher-level staff being available to give advice. That is an example of good practice that would help in many places.
I will bring in Amy, although I am conscious that we have several other subjects to get through in half an hour.
10:30
Health, Care and Sport Committee [Draft]
Meeting date: 30 September 2026
Helen McDade
That is useful and interesting. Would you say, therefore, that we should be training those specialist nurses in Scotland? Is that something that we could be discussing with further education colleges, if that is the appropriate place, or somewhere else?