Current status: Answered by Jenni Minto on 18 September 2024
To ask the Scottish Government what support is in place for people who have Huntington's disease and their families.
The National Care Framework for Huntington’s Disease sets out information on the services and support available to people with Huntington’s Disease by health board area. This includes services provided through NHS Scotland and other aspects such as social care, employability, financial help, carer respite and housing adaptation.
The Scottish Huntington’s Association also maintains a list of HD Clinical Leads by health board on its website: HD Clinical Leads • Scottish Huntington's Association (hdscotland.org).