Chamber and committees

Data regarding post-diagnosis referral to fertility services is not held by the Scottish Government.

As set out in the Endometriosis Care Pathway for NHS Scotland, clinicians should consider women’s individual needs in order to determine treatment, for example symptoms, aspects of daily living and whether fertility is a priority for that individual. The Pathway notes that discussions regarding fertility should happen in the first presentation and that management and long-term impact including fertility should be discussed during initial assessment.

The Scottish Government works in partnership across Health and Social Care organisations to ensure a consistent strategic approach to improving the vital digital and data skills for continuing staff development and service transformation. The provision of specific training for managing and accessing digital medical records in accordance with the Health & Social Care Records Management Code Of Practice that can be found at https://www.gov.scot/publications/records-management-code-practice-health-social-care/is the responsibility for NHS Boards as employers.

The Scottish Government is pleased to note that The latest published statistics show that there are higher uptake rates for breast, bowel and cervical screening within health boards which have a higher proportion of rural or island populations. Nonetheless, we recognise the particular challenges people living in those communities may face in accessing preventative health services, and we are working hard to overcome these.

Initiatives supporting access to preventative health services in rural and island areas include:

• a dedicated financial support scheme to cover travel costs for eligible patients and their authorised escorts, which focuses on those on low incomes or living in the highlands and islands. In addition, Health Boards also have the discretion to reimburse patient travel expenses where it is viewed to be an extension of treatment costs and deemed to be clinically necessary. This allows flexibility within the schemes for Boards to provide support to those who need it but would not otherwise qualify.
• Funding for Scottish Ambulance Service mobile vaccination units. These are available to every Health Board across all vaccination programmes and can be used to reach those in rural areas.
• 21 mobile screening units deployed in the breast screening programme across Scotland to minimise travel for all patients.
• Targeted outreach through Detect Cancer Early roadshows, which visited communities right across Scotland, including those in rural areas, in March 2024 to reinforce key preventative messages.

In addition, the National Equity in Screening Strategy, which was published in June 2023, is designed to address inequalities and ensure equitable access for all eligible screening participants. The Scottish Government is also looking to improve our understanding of the experience of people with cancer living in rural and island communities. Examples include an independent evaluation of their access to cancer care services, and a research programme on rural healthcare funded by the Chief Scientist Office.

This information is not collected. Collation of this information would require the gathering of personal data.

It is vitally important that all information on NHS Inform, including any linked websites, is open and accessible. All of the linked websites on NHS inform must be free to access without a need to login or register to ensure there are no barriers to access.

The Scottish Government is providing investment of over £19.5 billion for health and social care in 2024-25 and supporting delivery of the specific actions relating to women’s health as we continue to drive forward the implementation of the Plan.

The Scottish Government provides this baseline funding to NHS Boards, to best meet the healthcare needs of their population, including for women with endometriosis.

Endometriosis is one of the key priorities in the Women’s Health Plan and will continue to be so. Through the implementation of the Women’s Health Plan we have established Women’s Health Lead Network with a Lead in every NHS Board. The Network enables the Leads to identify both common and local challenges and exchange ideas on innovation and best practice, along with discussions on progress to implement the Women’s Health Plan priorities at local level.

NHS 24 use qualitative and quantitative data to evaluate, review and optimise NHS inform content. This includes, for example:

• analysis of user activity on their website
• user feedback
• user research
• user testing
• partner and community engagement feedback
• 111 call trends

NHS 24 conduct regular audits and reviews to ensure accuracy, relevance and clarity of content.

There is a wide range of education and training programmes for those delivering palliative care suitable to their role. These training programmes encourage those delivering palliative care to be aware of cultural factors and how these can impact on individuals and their families.

Our draft palliative care strategy aims to build on this work and includes a number of recommended actions for the provision of palliative care education and training to support all healthcare professionals delivering palliative care services.

The Scottish Government does not asses the effectiveness of third sector initiatives which it does not fund.

Through the NHS Inform Women’s Health Platform, we have made a range of information on endometriosis freely available to women online.

This includes signposting to peer support groups and organisations such as Endometriosis UK who operate a free, confidential helpline run by trained volunteers who have a personal experience of endometriosis. This helpline is available for anyone in Scotland to access. In addition, Endometriosis UK have expanded their helpline provision to include a new nurse-led helpline which launched on 28 January 2025.

There are also national helplines including 111, Breathing Space and The Samaritans.

Through the development of the next phase of the Women’s Health Plan we will continue to engage with women to understand what support they want and need, including for endometriosis.

Glasgow Prestwick Airport operates on a commercial basis and at arm’s length from the Scottish Government and Ministers do not intervene in operational matters.

The following provides details of marketing activity that has run over the preceding five years, to address chronic diseases. Chronic disease is defined in the Scottish Health Survey as any physical illness or mental illness expected to last a year or more. Messaging has not been tailored to target rural communities specifically, however where possible media platforms and channels have been selected and partnerships have been utilised to reach rural communities.

Crohn’s and Colitis

A Crohn’s and Colitis public information campaign ran in March 2023 via stakeholder and community engagement. The campaign aimed to increase awareness of the symptoms of Crohn’s and Colitis, and signpost to trustworthy information to empower and enable the public to seek advice from a healthcare professional.

Community engagement included the distribution of posters to 1,256 community pharmacies, 908 general practices, 256 leisure/community centres and 32 library hubs (for onward distribution to community libraries) throughout Scotland. This included rural areas, the Highlands and Islands.

Campaign resources including a toolkit were sent to over 300 stakeholders, which included Local Authorities and NHS Health Boards.

Women’s Heart Health

To help improve awareness and signs of heart disease and communicate ways of lowering risk, a public information campaign was developed to coincide with national heart month in February 2023 and was activated through community and stakeholder engagement.

Resources highlighted a key stat:istic “heart disease is killing 10 women a day in Scotland” and signposted to NHS Inform for more information on symptoms and actions to take to lower risks.

The campaign was aimed specifically at women and was delivered via community engagement and included the distribution of posters to 1,256 community pharmacies, 908 general practices, 256 leisure/community centres and 32 library hubs (for onward distribution to community libraries) throughout Scotland, this included rural areas, the Highlands and Islands.

A campaign toolkit was also sent digitally to a comprehensive stakeholder list which included Local Authorities and NHS Health Boards.

Cancer

Between April 2020 to date, a number of campaigns have run to support earlier detection of cancer, including Lung cancer, Cervical screening and Detect Cancer Early campaigns. Local press and radio packages were purchased as part of a Scotland wide media plan, to reach rural communities. Press titles included the Ellon Times, Buchan Observer, Berwickshire Advertiser, Ayrshire Post, The Hawick Paper, Banffshire Herald, John 'Groat Journal and radio stations included Radio Borders, Moray Firth Radio, Northsound, Westsound and Tay Radio.

A new burst of the Detect Cancer Early campaign will run in March and includes community radio in a number of rural locations that network radio does not reach, including Argyll FM, Caithness FM, Radio Skye, Radio Wester Ross, Radio Nevis (Fort William) and Shetlands (SIBC). Also included is a content partnership with local publications such as Ellon Times, Buchan Observer, East Fife Mail, Berwickshire Advertiser and Ayrshire Post and Field activity in locations that are more accessible for those living more rurally such as Elgin, Fort William and Stranraer.

Dementia Stigma

The Rethink Dementia campaign launched on 4 September 2024 and ran for 6 weeks in paid-for media. A number of Local Press Titles were purchased as part of the campaign, including:

Community Scotland Zone Newspaper

South Annandale Series

South Ayr Advertiser

South Berwickshire News

South Border Telegraph

South Cumnock Chronicle and Muirkirk Advertiser

South Dumfries Courier

South Eskdale & Lidderdale Advertiser

South Galloway Gazette

South Lanark and Carluke Gazette

South Peeblesshire News

South Southern Reporter

South Stranraer & Wigtown Free Press

South The Hawick Paper

North Angus County Press

North Banffshire Advertiser

North Banffshire Herald

North Banffshire Journal

North The Buchie & Inverurie Herald/ Ellon Times/ Fraserburgh Herald

North Caithness Courier

North Campbeltown Courier & Argyllshire Advertiser

North Deeside & Donside Piper and Herald

North Forres Gazette

North Helensburgh Advertiser

North Highland News Group

North Huntly Express

North Inverness Courier (Fri & Tues)

North Isle of Bute News

North John O'Groat Journal

North Mearns Leader/ Kincardineshire Observer

North Northern Scot

North Northern Times

North Oban Times and West Highland Times

North Ross-shire Journal

North Shetland Times

North Stornoway Gazette

North Strathspey and Badenoch Herald

North The Orcadian - Orkney

North West Highland Free Press

The Rethink Dementia campaign also utilised pharmacies, libraries, GP practices, community centres and sports centres, providing these settings with campaign assets across Scotland including rural communities.