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Committee members will remember that we agreed to introduce a new system for the consideration of petitions, because we were probably getting more petitions than almost any other committee in the Parliament.
That seems reasonable.
We should ask the Mental Welfare Commission for clarification and for its observations. It may be that the present legal restrictions mean that its records should not be disclosed; those may not currently fall within the act. One would like the commission's comments as to whether it feels that that is appropriate and should continue.
Is that agreeable to the committee?
The next petition is PE203 from the Friends of the Victoria infirmary. One committee member has suggested that we seek further information on this. My view is that our long-standing approach has been that we do not take petitions that are very much local. Those matters should be in the hands of local trusts, health boards and local people as part of decent consultation exercises. The minister would get involved in that only in extreme circumstances. That is the line that has been taken, and I suggest that we take the same line with PE203 and that we write to the petitioners to inform them of our position.
The next petition is PE214, which calls for the Scottish Parliament to investigate the current recruitment crisis in the cardiac transplant unit at Glasgow royal infirmary and to establish what action will be taken to re-establish the cardiac transplant service as soon as possible. We could consider this as a local issue; or we could consider that the transplant service is a national service, which would mean that it was within our remit to find out more about the issue or to note an interest.
The petition is factually incorrect: it talks about re-establishing the cardiac transplant service, but that service has never stopped. We should perhaps ask the department what the present situation is, and then discuss the matter further.
I support that. Although it is a local issue, the unit is Scotland's only heart transplant unit. I heard on the radio last night that there was a three-year waiting list for the unit in Newcastle. We all empathise with the recruitment problems that faced the cardiac unit earlier in the year. An update would be helpful.
If we were to do some form of inquiry, we would have to ask whether Scotland warrants an independent cardiac transplant service. It is all very well saying that we must have one, but the critical mass may not be there. Some small countries in Europe are very wealthy, but for us to make it an issue that we should have such a unit just for the sake of having one would not be right.
We will write to the Executive for clarification of the present situation of the service. We will also ask for its views on the clinical argument that Ben Wallace has just hinted at.
The unit demonstrated that it did not have sufficient people in its previous team for it to be sustainable. However, it may be sustainable if heart and heart-and-lung transplants are transferred to a new unit in Glasgow. We should make that point clear to the Executive.
We will ask the Executive to give us an idea of the options that it is considering in order to make the unit sustainable in future.
We should take no action in the light of the minister's letter. This is a local issue, and it is for each trust and health board to reach its own conclusions.
If the seven petitions are aimed at individual health boards, there would be nothing wrong in writing to those boards to seek an assurance that the charges are not an income generator. If the hospitals are charging just for upkeep, that is in line with the guidelines issued by the minister.
In a sense, that is a matter for the petitioners to take up with their individual health boards. This is becoming a quite vexatious issue, especially for temporary staff coming into the hospital from the community, who are being charged, as well as for staff who have to stay overnight, who are also charged. There are some difficult issues, and I do not think that we should get involved in the matter.
I would be concerned only if the car parking charges continued to increase and were used for something other than the upkeep of the car parks. We must all be big enough to recognise that it is difficult to park anywhere near a hospital. Even at Ninewells hospital, which has extended its car parking, it is difficult to park and that is a real problem. As long as the money is used to maintain the car park, and to keep it safe, light and trouble free, I have no problem. If the charges were increased to fund health care, I would be concerned, but I am not aware that that is the case at the moment.
I am opposed to charging in hospital car parks, but I support the principle of subsidiarity—that decisions are made at the most appropriate level. Although I feel that charging disadvantages low-income families who are already disadvantaged through poor health and deprivation—that is a double whammy—the decision to charge must be made by the local health board and trust, and we should not interfere with that.
I echo what Irene Oldfather says. I am opposed to charging in principle; however, it is regarded as a way of dealing with the parking issues at local hospitals. Those decisions are made locally, and the people on the ground should be best placed to make them.
The next petition is petition PE217, from Glenorchy and Innishail community council, calling on the Scottish Parliament to take account of the work load and general circumstances of a single general practitioner in the parish of Glenorchy and Innishail and to appoint an additional part-time partner.
Duncan Hamilton has come in at the appropriate time.
Rurality is not the only question, although the petition refers mainly to that. I am not absolutely sure, but I think that the SMPC does not take deprivation into account. The committee should be aware that the English plan proposes abolishing the English equivalent, which will be taken over by a new body. I suggest that broader issues are involved. The particularity of the local practice is one thing, but there are broader issues to consider, as I think the convener said at the meeting of the Public Petitions Committee.
I understand what Richard Simpson is saying about the broader issues, but the petition is from only one community council. The committee has discussed the principle of extracting broader issues from individual petitions before, and I think that, last time, we decided not to do that. We should be clear that we could be setting a precedent. I think that we need to consider the specifics of the petition.
Can I ask for clarification that the petitioners did not lodge a further petition on the general issue?
That is right.
I echo what Irene Oldfather said. We receive petitions that are specific to local areas. If we are to be consistent, we must continue to follow our earlier decision. I take account of what Richard Simpson said, but that is something for another day. It is fine if an organisation wants the broader issues to be addressed—we would do that—but the petition refers to one practice, and we would be taking a dangerous road if we discussed more than that.
I am always careful of the word precedent. The luxury of the committee—if it is a luxury—is that we can examine issues case by case. We do not have to set precedents or avoid precedents. We should be flexible enough to consider issues on their merits. The petition is indicative of a continuing issue. In the light of Arbuthnott and its impact on some budgets and general medical services in rural areas, it is a good time to use the petition as an example. In my view, there is no such thing as a precedent. If a lousy example comes up next week, we do not have to proceed with it. That is the point of the committee.
My first point relates to the nature of this petition and follows on from what Ben Wallace and Richard Simpson have said. The evidence that was taken by the Public Petitions Committee indicated that this is a national problem. I draw the committee's attention to the statement that I made at that meeting. I said:
If we deny local communities the right to highlight national issues, we will be setting a dangerous precedent. As Duncan Hamilton said, the petitioners have been all round the houses. As you noted, convener, they did not come to us as their first port of call. They had an exhaustive trawl of the health board and others before coming to the Parliament. They did everything right. Nobody has a monopoly on identifying problems. Surely this Parliament has a responsibility to respond to people who identify national issues that they cannot deal with. It would be very dangerous for the Scottish Parliament to say that no local community has the right to identify a problem that is experienced locally but can only be dealt with nationally.
The penultimate paragraph of the members briefing for petition PE217 states:
That is the briefing note that was issued to members of the Public Petitions Committee. It does not reflect what the petitioners said at the committee's meeting. That may be how the Public Petitions Committee staff interpreted the petition as lodged, but after the petitioners had spoken about how they had tried other avenues, it became clear that they would not be the only people to find themselves in this position.
I am sure that if we do not take action on PE217, the British Medical Association or the general practitioners committee will organise another dozen petitions. I know of two applications from practices in my area—one rural and one urban—that have been rejected because the formula that was used to assess them was devised without taking into account rurality or deprivation. The formula was determined in the days when general practice was competitive, yet all the other GPs in that area thought that one of those practices, which was operating in one of the most deprived areas in Stirling, had been badly treated by the formula.
We must consider the wording of the petition, which asks the Scottish Parliament to appoint an additional part-time partner. We are not the employer, so we do not have that right. The petition goes on to suggest that the formula could be amended. The petitioners are asking us to deal with two different issues.
I will make a final comment before asking the committee for a decision.
Anyone who wants to volunteer can e-mail the clerks.
I refer the committee to annexe B of the list of petitions. Are there any comments?
I want to deal with PE45.
PE45 is from the west of Scotland group of the Haemophilia Society and deals with haemophilia and hepatitis C. The committee entered into correspondence with the Executive on the petition and the Executive indicated, in a letter dated 13 June, that it would publish its report prior to the recess. We know that it did not do that and that the report is still not available. The committee sent out reminders in June, August and September but we are still waiting for the report and we still do not have an answer from the Executive.
Has an indication been given for the reason for the delay?
We have had no response to our reminders.
Has the Executive confirmed that there is a completed report?
No.
During the recess, I heard an announcement to the effect that people in Scotland with hepatitis C will be treated differently from those in England, who will get legal aid for their cases. The way that the Scottish sufferers have been treated is quite shameless.
I do not think that that has been decided on yet. We should receive the report now. We should make a further formal statement to the minister saying that we expect the report now. If there is a reason for its delay, we should receive an explanation now. The situation has gone on for long enough—we were promised the report in July, then in the recess and now we are well into the new parliamentary term. The committee is being treated with some disrespect.
Can we call in the Deputy Minister for Community Care?
That is what I was going to suggest. If we get neither the report, nor a satisfactory explanation of why the report has been delayed, we should schedule a request for one of the ministers to appear before us before the October recess. I know that that would impact on our calendar.
On petition PE185, which relates to people with hepatitis C, it is unacceptable that compensation will not be considered for those who contracted hepatitis C through blood transfusion unless they also suffer from haemophilia. That is absolutely appalling.
We wrote for clarification on that point in July. We have not received a reply.
We need to pursue those issues.
It is clear from colleagues' comments that they share my deep concern at the manner in which the Executive has dealt with our requests for information. Richard Simpson said that we had been treated with disrespect. I consider the treatment to be disrespectful, not only to the committee but to the people in Scotland who suffer from hepatitis C and those who have been involved in the issue regarding blood supplies. To treat them and us in this manner is totally unacceptable.
I am not sure about "in due course."
I mean prior to the recess. I think that we have a space. We will write to the Executive in those terms.
Our papers say that the Executive was given until 15 September to answer the points that were raised by the committee. Am I right in saying that there has been no response?
There has been no response.
I see a pattern developing.
Yes. I wonder why and how—given the differences in resourcing between the Parliament's committee system and the Executive—we manage to get through our work and give prior copies of reports to the Executive, but such courtesy and respect is not forthcoming in the opposite direction. Given the David-and-Goliath situation that exists in resourcing, that is unfortunate to say the least.
Members may have noticed that I have been engaged in correspondence on this matter over the summer. Two new papers, by Dr Singh and Dr Wakefield, were presented at one of the two recent conferences on autism. One of the conferences still does not think that there is a link with the MMR vaccine; the other one does. We must continue to be cautious, and the convener's careful comments should be commended.
How does Richard Simpson's recommendation—for the MRC to look at the abstracts and determine whether further research is required—relate to what the MRC says it has done? The SPICe research note on the matter says:
I do not know the terms of the study on autism or whether it would encompass the question of a link to the MMR vaccine. As I understand it, the study did not aim specifically to prove or disprove a link with MMR, but was based on the fact that there had been a rise in autism over the past decade and that that rise was coincidental with the introduction of MMR, but was not causally linked to it. That is an important distinction. The MRC has been invited to examine the possible causes of a rise in autism; I have gone on record, both in Parliament and in the press, as commending that. Those causes should be investigated, but we should remain very cautious about determining a causal link.
Committee members are having difficulties with this, and we must empathise with the parents who see both the scaremongering and the relevant, empirical research evidence. The subject is difficult for us, but for parents it is horrendously difficult to decide whether their children should have the vaccine. We must try to find answers fairly soon. No sooner is one report published to say that there is no possible causal link but another report is published that contradicts that finding. Somehow, the Parliament must seek reasonable guidance.
The Health Technology Board for Scotland suggested that we contact the Committee on Safety of Medicines. We wrote to that committee during the summer recess.
A number of different groups are involved. We have written to the Committee on Safety of Medicines. The Joint Committee on Vaccination and Immunisation is also involved.
That balance is missing partly because of what is unknown. I ask members whether it would be worth while appointing a reporter. The reporter's job would be to keep a watching brief on the matter, to report back and to work alongside the SPICe researcher who has done the paper for us. We ought to consider the subject again after the October recess. By that time, we might have further information and a clear steer about what we ought to do. I would appreciate committee members' thoughts on that.
To pick up on my previous point about writing to the MRC, can we ask it to outline the specific research that is being done at the moment, before we consider additional research?
I would go along with that. Richard Simpson would appear to be an appropriate choice, as he takes an interest in such matters and is likely to read most of what comes his way.
And understand it.
Yes—he did a wonderful report on Stobhill hospital.
I was going to make that point. If we decide to have a reporter on the subject continuously, the views of the new chief medical officer ought to be sought at an early stage.
Do we have a volunteer to be our reporter on MMR? Will anyone fight Richard Simpson for that role?
I am deeply involved in something that we will discuss in private session—organ donation—so I would prefer it if someone else were prepared to take on the MMR reporter role.
If any other member is interested, they should e-mail the clerks. I am sure that Richard Simpson would be available to assist if anyone needed information on any medical points.
I would be happy to assist.
I am sure that the SPICe researcher would also be available to assist in building up lists of who we should contact and how we should go about the monitoring. I appreciate that reporting on the subject will be a fairly daunting task for anyone who is not medically trained, but he or she will not be alone.
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