Official Report 230KB pdf
Item 4 on the agenda is a follow-up session on the evidence that we took last week on the development of the clinical portal programme in NHS Scotland and the current status of the Scottish Centre for Telehealth.
I am interested in the pilot portal and am particularly concerned about the content specification. Where might I find that? Is it published anywhere?
Are you talking about Tayside and Glasgow?
Yes.
I will invite my colleagues to add a bit in a moment but, if you will permit it, convener, I will make one or two preliminary comments that relate to the question because it is integral to the design that has been applied in those places.
Just to clarify, when I asked where it is, I did not mean geographically, but in terms of its progress.
Where is it in terms of progress?
Yes.
Oh, sorry—I misunderstood.
It is obvious where it is geographically; I am asking about where it is in terms of progress.
I was thinking less in geographical terms and more about where you could access a document. That is what I was referring to.
I want to know about the document, but I also want to know where we are in terms of progress.
We will try to deal with documentation and give a report on progress. I invite my colleagues to comment.
Good morning, it is a pleasure to be here. I understand that the committee heard last week from my colleague Dr Cliff Barthram, the clinical champion of the Tayside portal. Before I define what is in the portal specifically, I will take a moment to discuss the information landscape of the NHS, as that will put the portal in context.
That does not really answer the question. I understand what a portal is—I claim to be one of the most enthusiastic of committee members on information technology and perhaps one of the most conversant technically. That is an assumption I am making, although perhaps wrongly. I want to know what the progress is and when the system will be rolled out across Scotland. Last week, we heard great frustration from everyone concerned that we still seem to be way behind and we are not making progress. The bottom line is that nobody is driving the process enthusiastically. That is what we need.
Colleagues might be able to give more specific information on numbers of users in each place, which is an indication of the extent of the roll-out. There is great enthusiasm on our part for the portal. We see it as a way of supporting the integration of health care delivery. It brings potential benefits to the quality of clinical care and it is central to the development and implementation of our e-health strategy. I reassure the committee about the centrality of the work to our overall programme on e-health.
Are you saying that, within two to three years, the portal will be rolled out across Scotland?
We hope that the portal will be in the process of being implemented in all parts of Scotland in that period. The development of the clinical portal does not have a simple start and finish. We can always add functionality to it. As Professor Morris described, we hope that better information systems can be accessed through the portal. To that extent, this is an evolution. Over the next two to three years, we want to make that start throughout the health service in Scotland.
You have told me what the timescale is and you have described the portal, but you have still not said whether the content specification is published anywhere.
The clinical change leadership group is discussing how the business specification should be set up. The group is taking material from NHS Tayside and NHS Greater Glasgow and Clyde on how they did it, and it is looking at how NHS Wales has been working in that area. The group will also determine specification issues such as role-based access. As the group produces that advice, it will be cleared by the clinical portal programme board and then published on the website. As the material is finalised and agreed, it will be placed on the website on an on-going basis.
Is there a timescale? How many portals will there be?
The discovery project finishes this month, and we have a two-day session at the Beardmore in January to talk about its results and the implications for the future plan. We would expect agreements on a number of other soft infrastructure elements to come into place over the next six months.
How many portals?
I can comment on that. We are clear that we do not wish to have a proliferation of different types of portal. That is an important point—I know that it has been of concern to the committee. However, we must acknowledge that there is a history of supporting different systems in individual boards. Many of those systems were procured some years ago, when we had trusts in Scotland and individual trusts pursued their own information technology strategy. Since then, especially in recent years, we have been moving to a more co-ordinated and consistent implementation of common IT platforms across the country.
I will follow up on what Dr Woods said. One cannot procure a portal off the shelf, but the work in Glasgow and Tayside is complementary.
What is granular information? I understand document management.
I am sorry—I mean detailed information. That is my scientific language coming out.
I have noted that Richard Simpson, Rhoda Grant and Mary Scanlon want to ask questions. They are parked but noted.
Professor Morris talked about our ability to implement the portals. It is important that the committee is aware that that rests on something that our predecessors got right—the implementation of the community health index number, which provides a unique patient identifier. Without that, it would be very difficult to develop the systems that we are talking about. It has been a success story. CHI numbers are in widespread clinical use, which gives us an important foundation for the work.
Richard Simpson will be happy about that comment.
Some of the questions that I planned to ask have been answered. Colleagues are very aware of what is going on in England, which is taking a completely different approach—a centralised approach with a central spine—from the Scottish approach of building from the bottom up and having a portal to read the information that is available on systems, of which Professor Morris said Tayside has 60.
There are a couple of points there on which I shall make one or two comments, and then I will invite my colleagues to add a little bit.
What we have is joined up at every level. We have agreed the strategy with the boards, and everyone is clear about what we are going to do and when. We have agreed with the boards what the e-health programme is going to fund. As Dr Simpson said, interoperability is fundamental to that—we are not going to fund things that cannot be joined up.
When did you stop funding systems that will not be compatible with others?
We did that when we agreed the strategy.
When was that?
The strategy period runs from 2008 to 2011.
How does that change the ECCI strategy of 2000 and the e-health strategy of 2003? We did not just suddenly land on the planet in 2008.
The functions of ECCI have been subsumed within the new arrangements.
I am going to have to ask another question. I have asked what "granular" means, so I might as well dig myself further in. What on earth is ECCI?
It is the electronic—
I want the witnesses to tell me, if they can.
I was hoping that Dr Simpson might be able to recall the acronym, because I could not. If I remember correctly, it was a pilot project that took place some years ago.
I will ask Dr Simpson, in that case.
It was the electronic clinical communications implementation.
Thank you. You will get an extra pie for that.
In a sense, some of the thinking behind that is replicated in what we are talking about today. There was a period in the middle of this decade when people thought that there might be a single system that would produce an electronic patient record and that such a thing could be purchased. We looked into that carefully in the e-health strategy board. It became obvious that it was most unlikely that there was such a system that we could procure.
I hope that we will get the clinical portal, that everything will be compatible and that the software packages that are not compatible will gradually be replaced by ones that are. One major IT-related problem for clinicians over the years has been that we have had paper and electronic records running in parallel. Except in one or two areas that we have heard about—such as digital transmission of images, which has been hugely helpful—there has been duplication, which has made things more, rather than less difficult.
We have a strong track record on which to build. We are one of the few countries in the world that can do the data linkage to which Richard Simpson refers. I return to the point that the community health index number is vital. I defer to my technical colleagues on audit functionality. Mr Rhodes might comment on that.
I will begin by commenting on the first part of the question. ISD was represented on the programme board for the patient management system that Dr Woods mentioned. It had an opportunity to go through the bids to ensure that its data linkage and transfer requirements could be met by any of the bidders. We will continue to take that approach.
Within a decade—let us be practical and not too ambitious—will clinicians be able to audit patients more holistically, rather than simply within their own narrow specialty? Might they have information fed back to them if that is appropriate for their clinical management of a patient or group of patients?
The simple answer to that is yes. As Dr Woods said in his introductory remarks, we are starting by making the key data available to as many clinicians as possible. However, we will not be finished at that—we will continue to develop the system.
Dr Simpson is absolutely right. The opportunity for Scotland in records linkage for secondary-use purposes—whether it be audit, governance or research—is very exciting. There is a good example of that. Fifteen years ago, Scotland led the way in a clinical trial in the west of Scotland on the role of statin drugs in reducing heart disease. It finished in 1995 and was published in the world's best journal—the New England Journal of Medicine. Because it was a very intense study, it cost about £30 million to run, but it showed us that statins are beneficial in reducing heart attacks and strokes. Through Scotland's records-linkage capabilities, the same investigators were able 15 years later, using routine information, anonymously to see what had happened to the patients in the trial. They demonstrated an important public health message—that the benefit of statins was maintained. The second study was possibly the more important. It cost £60,000, which shows how we can derive important information inexpensively—we can get great value for money.
I think I am right in saying that apart from Western Australia, no other state, country or region has such provision to the extent that we have and are likely to continue to have. Western Australia, however, has big problems with its primary care data because it does not have the sort of system that we have.
That is correct. Western Australia and some of the Scandinavian countries are on a similar competitive level to us.
On patient confidentiality, we were given a fair amount of quite reassuring information last week about the use of individual passwords and how those would be tracked through the system. We also heard about on-going work on programmes that will audit the system and throw up anomalies in order to trace people who look up records when they should not.
I ask Mr Rhodes to comment on the safeguards that are being built into the design of the systems. We take those issues extremely seriously.
The clinical change leadership group is considering standards in that area—the committee took evidence from three members of the group last week. The views that you found comforting are the views that are being built into the system design. There is a question here about education. I think that that was also mentioned last week.
If patients had access, would they be able to monitor who accessed their records?
Patients can already ask for information about who has accessed their records, but I suspect that you are looking for something more proactive and straightforward for them to do. We are considering the patient equivalent of the clinical portal—a patient portal. Work in NHS Ayrshire and Arran is going positively and has been well received by patients, who appear to be deriving significant benefits from it.
The question is good and the topic is important. It is arguable that we are talking about the programme's most important feature, which we must get right. We have an audit log of access that tells us who accessed a record and when. We audit in order to try to verify a legitimate clinical relationship. If I access an ECS record—I am sorry; I must stop using acronyms. What does ECS stand for again?
Emergency care summary.
Well done. If I access a patient's emergency care summary, we can cross-check whether that patient has a record on the patient administration system or the accident and emergency system in the hospital. We use the information that is available to us from multiple systems to define legitimacy of access. If any isolated access points without supporting evidence are identified, that focuses our investigation.
It would make a big difference if someone who might view a patient's record wrongly knew that that patient would see their name and that that could land them in a lot of trouble. However, such a system depends wholly on people having and working with their own log-in names and passwords. Otherwise, someone could walk up to a computer that someone else was logged into and look at anybody's record under that other person's name. The person who was logged on to that computer is the one who would be pulled up about it, but they would have no way of proving that it was so-and-so who wandered in from another ward, saw the opportunity and decided to look at their neighbour's records, or whatever. That has to be monitored very carefully, and training, penalties and the like will have to be put in place.
We agree with that. One of the advantages of such systems is the electronic footprint, which we do not have at the moment. In a sense, there are some added safeguards in the system.
I have a point of clarification about patients' access to their records. I understand absolutely about accessing and being able to see who has looked at a record. I might be wrong about this, but if a patient can access all their records and see everything that is written about them, will that not inhibit what is put on the record? The general practitioner might want to share with someone else a concern about someone's mental wellbeing, for example, but if the patient read that, it might have an adverse impact on them or on the relationship. Do you see what I am getting at? A GP or someone might want to put on a record something that might have an adverse impact or unintended consequences if the patient saw it.
You are touching on very important issues relating to clinical practice. The pendulum is shifting towards clinical communication in anticipation that everything will be shared with the patient. For example, in some services, clinical out-patient letters are copied to the patient, and that is probably the direction that we are going in.
Therefore what is added to a patient's notes has to be written with the knowledge that, although it might express medical or clinical concerns, the patient might read it.
I think so.
That is important.
Can I act as a witness, convener?
Why not?
It has been about three and a half years since I was in general practice, but patients have been able to see their records for quite a long time. However, there was always the stipulation that the GP would look through the records first and would be justified in not allowing the patient to see things that would harm the patient or give information about a third party. There might be information in a patient's notes about their husband being unfaithful, for example, and the GP would not really want to pass that on to the patient. I do not see why it should be any different with an electronic system.
It was important to clarify that and to put it on the record that there are issues. One wants the GP to be honest when they are writing things down, but I did not appreciate that there was a circumstance in which they might properly edit the notes.
The GP would have to be able to justify it.
Thank you for clarifying that.
I would like to ask a couple of questions about "Better Health, Better Care: Action Plan" that I asked last week but which were not appropriate for that session. The clinical portal is quite new to my knowledge, but I wondered about the intention to
They have both been done. The first project is about getting information to clinicians and the second is much more about getting information to patients. "Better Health, Better Care" spoke about knowledge management for self-management, but we have decided that it is much better for patients to get all their information from a single place rather than have to go to two places, so the NHS information service, which will be called NHS inform, hosted by NHS 24, is where patients will be able to get all their information about services and information to help them to manage their own care. Although they are not explicitly part of the portal, they are very much linked to it. Information about good clinical practice, for example, will certainly be valuable to clinicians as they use the portal.
Is the
Yes.
Was that launched in April 2008?
I cannot swear to the date, but it has certainly been launched.
I think that we need more information on those targets, convener. What about the
The development work on that has been launched.
Development work?
Yes.
Although the whole thing was supposed to be in place by April 2009, it is still being developed.
NHS inform is not yet actively available to patients in its joined-up form. At the moment, they can access all the information that it will carry but only by going to different places.
So there are no "clearly signposted access points" blah-de-blah—they simply do not exist.
Not as they will exist when we get NHS inform up and running.
Given that all this was going to exist 18 months ago, then six months ago, I wonder whether the witnesses would mind putting what they have said on paper.
What were you quoting from, Mary?
I will tell you exactly what I was quoting. It is a Government target in the section on technology in "Better Health, Better Care".
Your question raises two central points. First, on the development and the functionality of the underlying systems, we obviously continue to support and invest in the pharmacy system, the laboratory system and so on. However, the portal is intended to bring all those systems together, which of course is what we are primarily talking about today.
They are in a written submission from Dr Docherty and Dr Kelly, who gave evidence last week. All the information is in the committee papers.
I think that it will bring things forward faster. As we have explained, important discovery work is under way in NHS Lothian and we have set up two developmental sites in Tayside and Glasgow. When that discovery work is completed, we will, subject to appropriate business planning and approvals, wish to ensure, over the next two years, that each board is in a position to really get started on implementing the portal. That is where some of the money is going.
I appreciate that.
It supports a whole range of things. Perhaps Mr Rhodes will elaborate on some of its components.
Will some of that budget be allocated to the advancement of the clinical portal, to bring it together and co-ordinate it?
Yes. Mr Rhodes can indicate the size of next year's planned spend on that in the context of other items in the overall budget.
In the budget document, it is one line. We do not have a breakdown.
I appreciate that. We have been asked to give level 4 details, which we have done. Nonetheless, we can help you here today.
Focusing on the clinical portal, Mr Rhodes, can you give us an idea of how the money is allocated?
The additional money in the next financial year is largely focused on the completion of the 2008 to 2011 strategy. There are some larger items, such as the signing of the contract for the patient management system—a large investment that is mentioned in the e-health strategy. Beyond that, the largest single item will be clinical portal work. We anticipate that the likely spend next year to take clinical portal work forward will be around £6 million revenue and £2 million capital. The data that the committee were shown by the clinical change leadership group indicated that, although substantial progress has been made with GP IT over the years, joining up systems within the acute sector remains a priority. That is where the clinical portal investment will help us to move forward much more rapidly and, in a similar manner, to help with staff who work in community settings, who have more limited access to some of that information.
Just to clarify, the spend for the clinical portal is £2 million capital and £6 million revenue.
Yes, although, as Dr Woods indicated, that is subject to the outcome of the discovery work and the business case. However, that is the anticipated allocation of the money next year.
That will be allocated after you have done your discovery work and appraisal.
Yes.
When will that be?
We would be looking for a sign-off from the strategy board in about March.
It is all subject to parliamentary approval.
We just want some details—granular information. I like that expression. I think that I will practise it.
My final question again concerns the paper from Dr Docherty and Dr Kelly. They say:
Some of the challenges relate to how structured the data are. Data such as medications data are easier because there is a structure to them—in IT terms it is a lot easier to move them about. When data are essentially free text, there is a greater set of technical issues.
It is important to ensure that the quality of clinical coding is of a very high standard before sharing information. That has been our experience in Tayside. We want to share very accurate information, so our GPs, who have been fantastic in leading that work, have looked at ways of enhancing the quality of the information. We should commend our general practice community for being at the forefront of considering how to share information. However, we do not want to rush into this precipitously; we want to do it in an incremental way that maintains the support primarily of the public but also of the professions.
Next up is Ian McKee. We have not moved on to telehealth yet—we are still on portals.
My ears pricked up when I heard you say that the developments could contribute to Scotland's wealth. A lot of the technology is not very transferable because other countries might not have the same organisation of their material in primary care and so on. However, I would imagine that when what you are doing is more mature, it will be of enormous benefit to people doing research projects in this country, including pharmaceutical companies. No doubt there could be quite a bit of income from that, especially with anonymised data coming later on. Are you planning for that? There will be drawbacks to that activity as well as advantages.
I will offer some preliminary comments and Professor Morris can then add a little bit about experience in Dundee.
Life sciences, I am told, are one of Scotland's top seven industries.
I do not know what we are to read into the phrase "I am told".
I think that they are.
Okay. I thought that that was a caveat.
No. I am in the sector.
Professor Morris is being modest.
They are also a creative rather than a distributive industry, such as banking.
Banking is quite creative at times. [Laughter.]
That is very good.
That is not the purpose of the clinical portal, although it is an interesting by-product. However, I agree with you.
I totally accept what has been said. However, it strikes me that, when the clinical portal and all the systems that have been talked about have been further developed, Scotland will be a popular place for research. That means that the people of Scotland will have much more research done on them. That is not always entirely beneficial, and there have been examples of populations that have had too many research projects carried out on them. Is that a possibility? Are you planning how to control development in a way that ensures that people do not suffer through the research that is carried out?
As you are probably aware, clinical trial activity in the UK is haemorrhaging to eastern Europe and south-east Asia. Last year, there was an 11 per cent decrease in trial activity, and that has important implications. Trial participation is voluntary, but I argue that, if we have good information systems, we can be more competitive in running clinical trials efficiently.
Thank you for that interesting line of questions and answers. After questions from Michael Matheson, Helen Eadie and Richard Simpson, I want to move on to discuss telehealth.
I will pick up on an issue that I raised with witnesses last week. The value of a good-quality IT system can be undermined if staff are not sufficiently in tune with how to maximise its potential and how to utilise it properly. As you develop the clinical portal and the various IT programmes, what plans are there to ensure that staff are sufficiently proficient in using the system effectively, so that we can gain the maximum potential benefit? What was the experience of staff in Tayside and Glasgow? What were their training requirements for using the clinical portals that are in place there? Have lessons been learned from the experience that has been gained in those areas?
One of the strengths of our approach is that it has been clinically led. It is not something that is being done to clinicians; it is being done with them. The role of the clinical change leadership group is important, as is the input from professional bodies and other organisations. If we involve clinicians in the whole design of the system, we are much more likely to secure utilisation downstream than we are if we just land the system on people and say, "There you go. Here's a new bit of kit. Go on and use it."
It was made clear to us in the evidence last week that there will not be a single clinical portal and you have re-emphasised that there will be different systems in different health board areas. One concern is that staff need to be able to use the clinical portal when they transfer between health boards. For example, a locum who is working in NHS Greater Glasgow and Clyde on the Friday may be working in NHS Lanarkshire on the Saturday. It strikes me that a key issue is for them to be able to log into the system. We have already heard from Rhoda Grant about the importance of professionals having a unique log-in identity so that they can get into the system when they need it. How do you overcome the practical problems of staff transferring at very short notice between different health board areas that may be operating different portal systems and at the same time ensure that the health board's system is able to respond quickly to give the person a unique log-in identity so that we can ensure that the necessary audit trail operates effectively?
I will invite my colleagues to comment on the latter part of your question, which is to do with the allocation of appropriate authorisation when people move, but I want to be clear that we do not expect there to be a proliferation of portals. We expect there to be some variation, as it were, in the underlying functional content, because of the legacy systems that sit behind the portal, but the whole idea of the portal is that it should be something that people find easy to use. That is the kind of convergence that we are trying to pursue. It is important to get that point across at the outset. If people move from health board A to health board B to fill a locum post and they need access to these systems, the question is how, through the authorisation procedure, people will be given access to that specific clinical portal's data while they are serving that board. Mr Rhodes might wish to comment.
There seem to be two aspects to the issue. One is about training and the other is about the responsiveness of the systems. The growth of use in Glasgow that Mr Feeley talked about shows that the clinical portal there is quite intuitive and, compared with some other types of system, has fewer problems in that regard, although there is anecdotal evidence from NHS Greater Glasgow and Clyde that more training effort would be helpful because—
I understand the word "intuitive", but it might be helpful to members of the public who are interested in this and who might be concerned about who will be looking at their records if you explained a little bit more about what an intuitive system is.
The portal presentations from NHS Tayside and from NHS Greater Glasgow and Clyde look different to me, but to clinicians they do not look all that different. The pieces of information that they expect to see are there and it is not hard for them to find their way around. Because there is a benefit to them as individuals doing their job, they are willing to do the work to become familiar with it quite quickly; it is not particularly hard. A number of information technology systems require the user to do a number of steps.
I come back to Professor Morris, because I quite like the BBC website idea. If I am a punter outside, I understand the BBC website, so when you say that it is intuitive—
If you went to the BBC website and looked up international news and then went to the CNN website and looked up international news, you would be able to find your way to the information that you require. That is intuitive; the information is presented in a way that is consistent.
So if one of Michael Matheson's people moved from—
I understand what "intuitive" means, so you are on your own.
If they moved from NHS Lothian to NHS Greater Glasgow and Clyde and went on to the portal site, what would they then do?
I think that we will see a consistency of information provision. For example, drugs and allergies will be shown consistently across both sites. We should move away from talking about systems and start to think about information services and information provisioning in a consistent way. That is what the portal will allow us to do.
Why will we not have one portal? If it is consistent information that we are after, why are we still talking about having three, four or five portals? If we want consistent information with underlying functionality and an intuitive approach, why do we not have one system that is compatible throughout Scotland?
That is a matter for the committee to discuss. In evidence, it has emerged that we might not be starting from where we wanted to be starting from.
One way of explaining it is that some systems are national, such as the emergency care summary and the radiology PAC system, and the information from them will be displayed consistently. We must recognise that because of where we have come from, many boards have systems that are peculiar—that is not the right word; I mean "particular"—to them. The portal will allow us not only to display consistent information from the national information services but to gain best value from the local systems that are particular to individual boards. That is why we need to map convergence, because we do not have clinical systems consistency across Scotland.
I will not pursue the point—I am now Mrs Smith with the headache.
For me, the issue is ease and simplicity of use. The user will not have to worry about what lies behind the system. They will not need multiple passwords and they will not need to know about the intricacies of the underlying systems. Just as you have described, they will be able to approach the portal as though it were a web browser, which, these days, we can all find our way around extremely easily. That is what we are trying to communicate. Therefore, a doctor who moves from one place to another will be familiar with the material even if there is some variation in the underlying systems. Provided that they are an authorised user and the local board has arrangements in place to enable them to obtain an appropriate password rapidly, they will be able to enter the portal and get the information that they need to care for the patient. That is what we are trying to do through our portal work.
You will be pleased to know that I understood that.
Thank you.
I am sorry about that—my team is looking grimly at me.
I have some anxieties about people's ability to log on to the system. My practical experience in the national health service, local government and even this Parliament tells me that getting initial access to mainframe IT systems can take some time—maybe days. We have clinicians who work in different health board areas, and I am highly conscious that the position can change within hours. Issues such as confidentiality, the audit trail and so on are all tied into people's ability to log on. I am not persuaded—and I do not know whether it is possible for you to persuade me—that our health boards will be able to respond quickly to the need for staff to get unique ID numbers and passwords so that they can log on. If that ability is not in place or cannot be provided, we will undermine the system and some of the safeguards that are meant to be built into it.
I think we agree that, if we have smart systems that do the things that we are talking about, we must have smart administrative processes to enable people to access those systems—we fully accept that. I do not know whether my colleagues have anything to add on the experiences in Tayside and Glasgow.
It is well understood in the e-health community that there will need to be some adjustment in this area. In many cases, IT systems, particularly the core ones, have not had a major clinical impact in the past and have been supported as administrative systems. As we move to a situation whereby clinicians will increasingly rely on being able to access certain data flows, the underlying systems that enable them to do that will need to be improved, which includes giving clinicians credentials that allow them to get on to the systems in the first place. The identity and access management system that has been procured and is being tested is part of that improvement, as will be projected improvements around boards' human resources systems. However, the key is that the systems will be supported by individuals who can make system changes, often at short notice and outside normal working hours. It is understood that we need to be able to move the support arrangements into a different place from where they have been to date.
It is important to add that the identity authorisation system to which Mr Rhodes referred is a single national procurement that will be common across NHS Scotland—I know that the committee is concerned about that.
Helen Eadie is next, to be followed by—it is Richard Simpson. Sorry, I cannot read my own writing now. I am turning into a doctor.
You will be pleased to know, convener, that I have a question on telehealth. First, though, I want to pursue with Professor Morris the issue of codes, which he spoke about earlier. In visits to GP practices across Scotland that the British Medical Association organised, GPs raised with me a particular issue. They stated that, when the NHS announces new programmes, the codes are not issued timeously. The GPs therefore have to invent local codes, but they have to unravel all of that when the NHS codes are ultimately issued. They must employ staff to ensure that the codes for costings and so on accord with the NHS codes as opposed to the codes that they had to design locally. There is therefore an issue about ensuring that coding information is introduced timeously for GPs.
That is an important point, which emphasises the rich and complex nature of clinical information. In many ways, our GP colleagues have led the way by adopting a coding system for clinical information called Read. What Helen Eadie alluded to is that, if a Read code is not available, there can be local improvisation. We tend to use different coding systems in hospitals; they are OPCS-4 and SMR—sorry about the acronyms.
I am going to ask for a glossary next time.
The codes are national standards.
Yes. The code issue is being addressed not just in Scotland but internationally. We realise that the more we code consistently, the better the information for not only patient care but all other uses, including audit. That work is on-going. I know that Mr Rhodes is working with colleagues in NHS National Services Scotland to improve our national approach to coding.
That is helpful. GPs expressed great frustration to me about the issue. They said that it cost them a tremendous amount of money when they ultimately got the right codes.
We are moving on to telehealth shortly, but we have one more question on clinical portals.
The problem in general practice is that you record symptoms, as well as diagnoses, which leads to a coding problem.
When work was done to create the e-health programme strategy in 2008, one change was the establishment of an architecture and design division. There is a group of people who have design authority and are charged with designing the future path for applications and technologies in NHS Scotland. We take seriously the issue of how everything fits together.
Those comments are extremely helpful. A number of countries are moving towards open source technology. In America, radiology systems are going open source; a lot of work is also being done in the area in France and Switzerland. I am glad to hear that we are in a more open frame of mind going forward, having come out of the previous agreement, and that we can look at the potential of open source. I know that open source is not free at the higher levels and must be supported. However, it has enormous potential, because it engages all of the clinicians who have an interest in the area in developing the system. We do not get that from Microsoft. I welcome the approach that you are taking and will watch developments closely.
Gentlemen, you will be pleased to hear that I have no intention of asking what open source and patching mean. I lost the will to live during that technical discussion, but I know that somebody here understands it. No doubt they will enjoy it when we come to compile our report.
When we talked about telehealth last week, both witnesses and members expressed some frustrations. There was a feeling that we perhaps have vested interests in Scotland. That was given as one reason why there might be resistance among many clinicians to the development of better telehealth. The issue of cultural resistance is another aspect that came up. Would you like to give us your thoughts and opinions on that?
The points about cultural resistance and the example of dermatology are in the public papers for today's meeting. I am not just picking on you, Helen, as I think that all members could ask shorter questions. I remind members that our witnesses have had the opportunity to read the papers. I ask everyone to ask shorter questions so that we can get through today's business.
I will answer initially in general terms, if I may. The matter is important. We share the committee's view that a more strategic approach to the implementation of telehealth is desirable. If we go back a little while, we created the Scottish Centre for Telehealth in, I think, 2006 because we felt that there was a need for more co-ordinated action. With its advisory and support role, the centre has undoubtedly done some useful things. However, like the committee, we feel that there could be more impetus in the area, which is why—following a review, which made it clear that people supported the idea—we decided to locate the centre as part of NHS 24. As you know, NHS 24 is a telehealth service in many ways. We share the desire to put more emphasis on and impetus behind a strategic approach to telehealth, which is why we are developing a specific telehealth strategy as part of the centre's transition to NHS 24.
I would assume that what is needed is a sound patient case rather than a sound business case, but I understand what you say.
You understand the point.
Yes.
It seems to me that what you have suggested today, which was also suggested to us last week—that we develop telehealth first and then see where it fits—would mean doing things slightly the wrong way round. I would have thought that we first need to put pressure on health boards and clinicians to improve services in certain areas, especially rural areas where patients sometimes have to go to enormous lengths to keep out-patient appointments, visit hospital for various reasons or see their GPs. If pressure is put on the clinicians and health boards to provide better services, they will take up telehealth as a tool. In other words, telehealth will be demanded at the grass-roots level instead of our trying to force telehealth on unwilling participants, which so often seems to be the case.
I do not think that we are trying to force unwelcome technological interventions on anybody. We have talked about this in committee before. The arrangements that we have for the performance management of waiting times in NHS Scotland, for example, create a strong incentive for people to redesign the ways in which they do things. I have seen examples—I am sure that the committee has, too, on its visits around NHS Scotland—of applications that people have developed that are intended to shorten the journey times for individual patients. We welcome those applications; the question is whether NHS Scotland can develop them more systematically. We accept that there is a case for that, and we believe that making that a function of NHS 24—which has experience in other aspects of telehealth—will help us in that endeavour. Nevertheless, you are quite right to say that health boards and clinicians, and other people who are employed by the boards, will be required to value the potential of those applications.
We have seen examples of good projects failing because there has not been co-operation at the grass-roots level. That leads one to feel that the projects have been grafted on instead of being developed as tools to meet needs that everyone who works in the area recognises.
There may be particular issues that need to be carefully addressed in those situations—I do not know exactly to which projects you refer. We need to help people to identify the problems and overcome them. We accept that we must do more in the business-case process of evaluating how a specific initiative should be implemented—what the costs and benefits are and how it fits into the overall delivery of services and the use of people's time.
I have a question on exactly that point about the business case. Last week, I cited the example of the telecare system that supports people in their homes in Argyll, which won an award at a recent event that you attended. When I gave that example to James Ferguson last week, he said that the problem is simply in implementing such projects. He said:
What I said a few moments ago was an acknowledgement of the desirability of doing as you have just suggested. We will have a national organisation—NHS 24 is a national special health board—with expertise in telehealth and a national telehealth strategy that is shared and understood across the whole health service. When evaluated implementation possibilities are identified, we will work collectively to roll them out, subject always to the requirement that they demonstrate good value for money and provide the best use of resources for solving the particular problem involved.
Let me just add that, last week, the people from the Scottish Centre for Telehealth kept telling us, "Yes, I know that these projects are excellent, but we are only an advisory body." As the Scottish Centre for Telehealth is being taken into NHS 24, will it have much more responsibility for appraising and putting forward the business case for projects and for rolling them out? Will it be more empowered and not purely advisory?
As an integral part of NHS 24, the Scottish Centre for Telehealth will continue to provide advice to many people but its work will be guided by the strategy that is being developed. My expectation is that NHS 24 will be right in the middle of trying to ensure that we maximise the use of those applications that are shown to have value.
We are aware of the initiative to which Mary Scanlon referred, which will be evaluated by the UHI Millennium Institute. The telecare programme as a whole has an independent evaluation built in. We also have a randomised control trial of a telehealth intervention in Lothian, which is one of the first of its kind in the world. We are gathering the evidence.
Once the telehealth strategy is published around spring next year, will there be leadership on, commitment to and enthusiasm for rolling out a telehealth system in Scotland or will the strategy just make a nice little recommendation to which the boards will say, "No thank you"? Is that where we are going? Will there be real leadership?
I think Richard Simpson is right: the issue comes down to what the incentive is for boards. Perhaps there needs to be money in it for them.
What are the carrots and sticks to persuade boards?
I have lost the battle for short questions.
I am trying to emphasise that we accept the case for greater impetus towards a more co-ordinated approach to telehealth, which is why we are putting it into NHS 24. You talk about leadership—Dr George Crooks, the medical director of NHS 24, will play an important role in the development of telehealth.
I still do not know whether—
I am not hearing how use of telehealth would be incentivised.
There are strong incentives in relation to the performance challenge that we construct for our boards.
But if boards find another way of doing it, and they say that the traditional mechanism—
If they find a way that is more cost effective—
I do not believe that it will be more cost effective in the long term. There is a failure to adopt the technology, and boards simply go on doing what they are doing. James Ferguson made that clear at the committee last week: people would rather go on doing what they are doing, irrespective of the evidence that is presented to them, because there is no incentive—for example—to put in the capital to underpin the technology.
I think that Rhoda Grant has a question about getting boards to buy into telehealth—she has waited patiently.
My question is along the same lines; it is about national guidelines and patient pathways. A set of guidelines is one of the tools that are available: if telehealth was built into those guidelines and they were issued to health boards, the boards would have to comply and use the technology. It needs to be mainstreamed. We are all hugely frustrated because although we have been hearing about telehealth for a long time, nothing seems to happen unless somebody has a personal interest in it.
I hear what the committee says and I sense your frustration that we are not making as much use of the technology as we could. I will not repeat the points that I have already made, but I think that the picture in Scotland is perhaps a little better than people might believe from our discussion. I invite Mr Feeley to say a little about how the progress that we have made in Scotland compares with that in other countries.
I agree that that is important, but it will take you only so far with the committee. We will hear about it anyway.
We have never had a telehealth strategy before, so it is potentially an important step forward. The fact that NHS 24 is anticipating that strategy and already committing to national-level work in two areas is a positive step forward.
We are not laying the blame on any particular Government. It is simply frustrating. The Parliament has been in existence for 10 years and we are living in a modern age, but some of us who have been MSPs for a while realise that things move very slowly in the Parliament. I am content to stop there for now, if everyone else is. I thank the witnesses for giving evidence today. As agreed, we now move into private session.
Meeting continued in private until 12:13.
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