Chamber and committees

I refer the member to the answer to question S6W-33304 on 24 January 2025. All answers to written parliamentary questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/questions-and-answers

I refer the member to the answer to question S6W-33304 on 24 January 2025. All answers to written parliamentary questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/questions-and-answers

The Scottish Government plans to launch a formal public consultation on a potential local authority cruise ship levy in Scotland in February this year.

The Scottish Government is committed to addressing patient concerns about data privacy in the sharing of medical records across healthcare providers. We provide clear guidance on privacy and confidentiality, promote robust information governance practices, and support the NHS and healthcare providers in implementing appropriate processes to safeguard patient data.

The responsibility for developing data sharing agreements and publishing privacy notices is down to each individual Board. However, NHS Inform provides patients with supportive information to ensure they have an understanding of the holistic approach to data privacy NHS Scotland take. This information can be found here https://www.nhsinform.scot/care-support-and-rights/health-rights/confidentiality-and-data-protection/how-the-nhs-handles-your-personal-health-information/.

In addition to the guidance on Inform, Privacy by design is at the core of the National Information Governance Programme, forming a key part of our Data Strategy to ensure that digital and data-driven practices are developed with privacy safeguards embedded from the outset.

The Scottish Government also engages regularly with patients, the ICO, and citizen interest groups to ensure data-sharing practices respect patients' rights and expectations

Health data is shared, typically in an aggregated and anonymised format, with trusted third parties through trusted research environments known as ‘Safe Havens’. These Safe Havens comprise of a national Safe Haven within Public Health Scotland and four regional Safe Havens associated with NHS Grampian, Greater Glasgow and Clyde, Lothian, and Tayside.

Safe Havens play a crucial role in protecting personal data, providing a secure space, and supporting the secure use of NHS data for researchers to access and analyse healthcare data without compromising individual privacy. Within Safe Havens researchers can work with anonymised or pseudonymised data, reducing the risk of re-identification of individuals. By implementing robust security measures and access controls, Safe Havens ensure that only authorised individuals can interact with the data, and that they can only access the level of data that is appropriate and proportionate.

The existing Scottish Government Records Management Health and Social Care Code of Practice (Scotland) 2024 has guidance on managing health records of people who identify as transgender. This links to guidance from the Medical and Dental Defence Union of Scotland, the General Medical Council and NHS National Services Scotland (NSS). It was recognised in 2020 that it was an area under development, and subsequently the Scottish Government's Chief Statistician issued guidance for public bodies on the collection of data on sex and gender in 2021. The Records Management Code of Practice for Health and Social Care 2024 incorporates the Chief Statistician's guidance along with feedback from stakeholders, providing further guidance to NHS Boards.

I refer the member to the answer to question S6W-18931 on 21 June 2023. All answers to written parliamentary questions are available on the Parliament's website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/questions-and-answers

The Scottish Cardiac Audit Programme publishes annual data on incidence, cardiac interventions and patient outcomes across Scotland. The most recent reports are available here; Scottish Cardiac Audit Programme report 2023/2024 - Scottish Cardiac Audit Programme (SCAP) - Publications - Public Health Scotland.

The Cancer Strategy for Scotland 2023-2033 and Cancer Action Plan for Scotland 2023 – 2026 have a focus on reducing inequities in access to cancer care and cancer outcomes.

The Scottish Government is looking to improve our understanding of outcomes of people with cancer living in rural and island communities. Examples include an independent evaluation of their experiences accessing cancer services, and a research programme on rural healthcare funded by the Chief Scientist Office.

The Scottish Diabetes Survey (SDS) collates data extracted from SCI-Diabetes database submitted by all 14 NHS boards and provides an annual summary of key issues and trends in diabetes care and treatment across Scotland. A link to the survey can be found at: Publications | diabetes in scotland.

Evidence confirms that substance use can be a potential consequence for those of us who have experienced high levels of trauma and adversity in our lives.

The Scottish Government’s ambition, shared with COSLA, is for anyone who has been affected by trauma to be supported by the trauma-informed and responsive support, care and services they need. These are services built on safe, trusted relationships, which foster recovery, prevent re-traumatisation and help reduce the risk that individuals and/or their families might turn to substance use to cope.

Since 2018, the Scottish Government has invested over £12 million in the National Trauma Transformation Programme (NTTP). The NTTP aims to support all sectors of the workforce, to understand how to adapt the way they work to be trauma-informed. This includes understanding how substances can be a coping strategy for the impact of trauma and embedding the principles of choice, collaboration, empowerment, safety and trust to help improve the life outcomes of those affected.

Diagnostics are central to many clinical pathways, and we are working to define the transformation necessary to deliver sustainable and equitable diagnostic services. Service innovation and redesign, creating additional capacity, and digital technology will be central to this.