Chamber and committees

Work is ongoing to establish how the £16 million funding announced in the draft Scottish budget will be best used to maximise the number of patients able to benefit from thrombectomy.

The new Scottish Budget was presented to Parliament on 4 December 2024 with £16 million allocated to the further development of the thrombectomy service and stroke policy. This details Scottish Ministers spend proposals for the year ahead and the Scottish Parliament will then scrutinise this information through the Scottish Budget Bill. Further details on the Scottish Budget and the Health and Social Care portfolio budget Finance can be found at; Scottish Budget 2025 to 2026.

As set out in the answer to question S6W-33241 on 24 January 2025, Screening Oversight and Assurance Scotland are developing a business case for the implementation of a targeted lung screening programme, which is expected by the end of February 2025.

Following receipt, the Scottish Screening Committee will be convened to discuss its findings and consider next steps.

All answers to written Parliamentary Questions are available on the Parliament’s website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

I refer the member to the answer to question S6W-33241 on 24 January 2025. All answers to written parliamentary questions are available on the Parliament’s website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

Screening Oversight and Assurance Scotland, supported by the work of an expert advisory group and led by the Director of Screening, is currently developing a business case for implementation of targeted lung screening. This is expected by the end of this winter, and will consider the matter of incidental findings. Following receipt of the business case, the Scottish Government and delivery partners across the NHS will have greater scope to make an evidenced-based assessment of implementation timescales.

The roll-out of any screening programme is a complex undertaking, and the UK National Screening Committee acknowledged in its recommendation that there remain a number of significant issues that must be worked through before a full programme of lung screening can be implemented. This means a national screening programme is likely to take years rather than months to implement.

In the meantime, lung cancer remains a national priority. The Scottish Government has a dedicated chapter in our £114.5 million National Cancer Plan, and in December 2023 we redesigned lung cancer diagnostic services to help ensure patients receive faster access to treatment.

The Young Patients Family Fund (YPFF) is designed to support the families of all babies, children and young people from birth to age 18 who require inpatient care in Scotland, regardless of diagnosis.

The YPFF is a demand-led fund and the Scottish Government has ensured full funding against demand in each year since its launch on 26 July 2021. The 2025-26 budget has been set based on expected demand levels and the Scottish Government remains committed to provide full funding for the YPFF in 2025-26.

Other financial support is available to children and young people with a cancer diagnosis and their families for travel to hospital via the patient travel expenses reimbursement schemes. Under those schemes, patients and authorised escorts can reclaim reasonable costs of travel associated with attending a hospital appointment, in line with eligibility criteria and medical requirements.

The largest proportion of funding has been awarded to projects that improve services for all or more than one neurological condition, including services for carers. Direct investment was also made to projects for the following specific conditions:

• Acquired Brain Injury
• Cerebral Palsy
• Epilepsy
• Functional Neurological Disorder (FND)
• Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
• Migraine
• Multiple Sclerosis (MS)
• Parkinson’s Disease
• Progressive Supranuclear Palsy (PSP)
• Psychogenic Non-Epileptic Seizures
• Spina bifida/ hydrocephalus

A full list of projects funded through the Neurological Framework can be found here.

Priorities for the Scottish Government are:

• national implementation of the Scottish Epilepsy Register,
• further adoption of successful approaches to improving services through the neurological conditions network,
• continued improvements in provision of ‘social support’ and psychological services for people with neurological conditions,
• continued development and adoption of condition specific care pathways,
• continued development and adoption of approaches to workforce planning and training for nursing, pharmacy, neuropsychology allied health professionals, and neurophysiology.

This work will be considered as part of the development of the Long Term Conditions Strategy due to be published later this year. Any required funding will be considered during the 2025-26 budget deliberations.

There are no plans to expand eligibility of The Young Patients Family Fund (YPFF) at this time.

In addition to support available under the YPFF, financial support for travel to hospital is available via the patient travel expenses reimbursement schemes. Under those schemes, patients and authorised escorts can reclaim reasonable costs of travel associated with attending a hospital appointment, in line with eligibility criteria and medical requirements.

All Health Boards in Scotland receiving baselined funding from the Scottish Government toward their neurology services. As part of Planned Care funding, the Scottish Government has also invested £217,000 in total towards improving waiting times in NHS Tayside and NHS Greater Glasgow and Clyde.

Through the Neurological Framework, the Scottish Government has given direct investment to numerous territorial Health Boards to undertake projects focusing on neurological care, in line with the Framework’s commitments. Health Boards that have received direct investment are:

• NHS Ayrshire and Arran
• NHS Forth Valley
• NHS Grampian
• NHS Greater Glasgow and Clyde
• NHS Lanarkshire
• NHS Lothian
• NHS Orkney
• NHS Tayside

Third sector organisations have also been awarded funding to work in partnership with a number of statutory organisations to better integrate services, including NHS Greater Glasgow and Clyde and NHS Fife. The Migraine Trust has worked in partnership with seven NHS boards to improve treatment for migraine in community pharmacy.

A full list of projects funded through the Neurological Framework can be found here.

The aims contained in the document Neurological Care and Support in Scotland: A Framework for Action 2020 – 2025 are applicable to healthcare delivery across Scotland. Through this we have supported a number of national initiatives to improve care and reduce variation, including:

• Self-evaluation by all NHS boards against the General Standards for Neurological Care and Support 2019. Development of national care pathways for headache and Functional Neurological Disorder, with care pathways for further conditions in development
• Agreement of a Business Case and funding to adopt the Scottish Epilepsy Register across Scotland, improving the safety and quality of care for people with epilepsy
• Development of a neurology nurse specialist competency framework
• Formation of collaborative improvement networks which include NHS boards, Health and Social Care Partnerships, third sector organisations and people with lived experience to encourage consistent adoption of the successful approaches funded through the Framework
• Development, by third sector partners, of a toolkit for the consistent commissioning of social support for people with epilepsy
• Improved provision of public information on individual neurological conditions through the development and/or revision of 23 NHS inform webpages
• Through national charities, development of nationally-accessible sources of self-management support for people with MS, spina bifida hydrocephalus, progressive supranuclear palsy, cerebral palsy and non-epileptic seizures
• Re-development of the internationally recognised neurosymptoms.org web resource to support people with Functional Neurological Disorder
• Dissemination of nationally-accessible clinician education resource for ME/CFS