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PE2080: Implement the recommended screening guidelines for people with Li Fraumeni Syndrome

Petition Summary

Calling on the Scottish Parliament to urge the Scottish Government to implement screening for people with, or at risk of, Li Fraumeni Syndrome (TP53 mutation), in line with the guidelines recommended by the UK Cancer Genetics Group

Petitioner: Louise McKendrick

Status: Under consideration

Date published: 22 January 2024

Click here for the full petition

SPICe Briefing (186KB, pdf) posted 28 February 2024

Committee Meetings

15 May 2024: The Committee agreed to write to Cancer Research UK, the Scottish Government and NHS Scotland genetic laboratories in Aberdeen, Dundee, Edinburgh and Glasgow.

Official Report of Meeting 15 May 2024

24 September 2025: The Committee took evidence from—

Neil Gray, Cabinet Secretary for Health and Social Care
Alan Morrison, Deputy Director Health Infrastructure & Sustainability, Scottish Government
Douglas McLaren, Deputy Chief Operating Officer, Scottish Government

The Committee took evidence on thematic healthcare issues in Scotland that have been raised in multiple petitions.

Official Report of Meeting 24 September 2025

Update from Cabinet Secretary for Health and Social Care, 30 October 2025