PE2038 : Commission suitable NHS services for people with hypermobile Ehlers-Danlos syndrome and hyper mobility spectrum disorders
Petition Summary
Calling on the Scottish Parliament to urge the Scottish Government to commission suitable NHS services for those with hypermobile EDS (hEDS) and hypermobility spectrum disorders (HSD), and to consult with patients on their design and delivery.
Petitioner: The Ehlers-Danlos Support UK
Status: Under consideration
Date published: 24 July 2023
Click here for the full petition
Citizen Participation and Public Petitions Committee Consideration
SPICe Briefing (153KB, pdf) (153KB, pdf) posted 21 August 2023
Committee Meetings
4 October 2023: The Committee agreed to write to the Scottish Government and the NHS National Services Division.
Official Report of Meeting 04 October 2023
Written Submissions
PE2038/A: Scottish Government submission of 6 September 2023 (89KB, pdf) (89KB, pdf) posted 07 September 2023
PE2038/B: Petitioner submission of 20 September 2023 (131KB, pdf) (131KB, pdf) posted 26 September 2023
PE2038/C: Scottish Government submission of 12 October 2023 (58KB, pdf) (58KB, pdf) posted 20 October 2023
PE2038/D: National Service Division submission of 13 October 2023 (56KB, pdf)