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Chamber and committees

Question ref. S6W-08021
Asked by: Beatrice Wishart, Shetland Islands, Scottish Liberal Democrats
Date lodged: 12 April 2022

Question

To ask the Scottish Government whether it will provide an update on what support is available to people living with myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS).

Current status: Answered by Maree Todd on 10 May 2022


Answer

While the Scottish Government’s role is to set the strategic policy for the NHS in Scotland, NHS Boards and healthcare professionals locally have responsibility for both service delivery and people’s care. NHS Boards are expected to ensure that patients, including those who require care and support for ME/CFS, have access to a range of professionals to provide the appropriate management of their condition.

We recently commissioned an independent organisation to engage with third sector and clinical stakeholders and people with lived experience, to discuss how we move forward in implementing the National Institute for Health & Care Excellence (NICE) guideline recommendations on ME/CFS in Scotland, and in identifying priorities for service improvement. We are currently preparing to publish the final stakeholder consultation report and are considering its findings.

I was pleased to meet with #MEAction Scotland representatives in March 2022, to hear their views on improving the access to care and support for people affected by the condition.