To ask the Scottish Government, further to the answer to question S6W-32172 by Jenni Minto on 23 December 2024, what specific data points are being collected to track long-term outcomes; how often any such data will be reviewed, and for what reason it has not reintroduced routine screening for endometriosis, in light of the reported delays in diagnosis.
As stated in question S6W-32172 more information on women’s health data can be found in the recently published data landscape review. It sets out a range of publicly available data on the health of women in Scotland and highlights where there are gaps which need to be addressed. This is just the start of our work to improve women’s health data. Further work will be undertaken to explore the data sources and gaps in more detail.
The Endometriosis Care Pathway for NHS Scotland supports healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms.
While there is no specific routine screening for Endometriosis, the pathway is clear and advises healthcare professionals to suspect endometriosis in women who present with one or more symptom (including in young women aged 16 and under).
Clinicians are advised to assess women’s individual information and support needs and take into account their circumstances, symptoms, priorities, priority for fertility, aspects of daily living, work and study, cultural background, and their physical, psychosexual and emotional needs.
All NHS Boards should be taking steps to implement the pathway.