Chamber and committees

Routinely collected data on the waiting time for a diagnosis of endometriosis are not available.

However, in 2024 Endometriosis UK published a report based on a survey of 4,371 people who received a diagnosis of endometriosis from a medical practitioner or following a diagnostic intervention. The report suggested that the current average waiting time for a endometriosis diagnosis in Scotland is now 8 years and 10 months.

Endometriosis has two stages of diagnosis, a working diagnosis at primary care level and a confirmed diagnosis via laparoscopy at secondary care. Not everyone with endometriosis will want to have a laparoscopy to confirm their diagnosis, particularly if their symptoms can be well managed.

We know that excessively long waits for laparoscopy are not acceptable and we apologise to all patients waiting too long. We are determined to drive improvements in this area and continue to work with NHS boards on a number of actions which will see patients treated as quickly as possible.

We want people to achieve a working diagnosis as soon as possible to enable swift access to appropriate care and treatment.

There are several treatment options to manage the symptoms of endometriosis. These include pain management options and hormonal contraception as well as surgical interventions including laparoscopy. There is no cure for endometriosis. More information can be found on NHS Inform.

As set out in the Endometriosis Care Pathway for NHS Scotland clinicians should consider women’s individual needs in order to determine treatment for example symptoms, aspects of daily living and desire for fertility.

Through the actions set out in our Women’s Health Plan we have taken steps to support both women and health professionals to learn more about endometriosis, the symptoms and treatment options.

Further information about the progress to date against each of the priorities in the Women’s Health Plan can be found in the Women’s Health Plan Final Report.