Chamber and committees

The Scottish Government funds the Scottish Centre for Healthy Working Lives, part of NHS Health Scotland, to provide information and advice on workplace health and wellbeing. The Centre, and the network of advisers in territorial NHS Boards, offer free and confidential advice on a wide range of issues relating to health and safety in the workplace. This includes promoting wellbeing in the workplace, managing sickness absence and supporting employees to return to work.

The Centre's advice includes how employers can meet their obligations under the Equality Act and how they can make reasonable adjustments to support employees with long term, limiting health conditions and disabilities.

I announced in December 2016 that we will be taking forward the recommendations from the review. We are working at pace, in collaboration with stakeholders, including the Scottish Medicines Consortium, NHS Scotland, and the pharmaceutical industry to implement the recommendations as quickly as possible.

I announced in December 2016 that we will be taking forward the recommendations from the review, which includes the establishment of a multi-agency taskforce or equivalent group to consider options for the managed entry of new medicines. We are working at pace, in collaboration with stakeholders, to implement the recommendations as quickly as possible.

I refer the member to the answer to question S5W-10193 on 26 July 2017. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at http://www.parliament.scot/parliamentarybusiness/28877.aspx

People living with cystic fibrosis can access a range of appropriate services via their local NHS Boards, Integrated Joint Boards and a national service. Specialist services for people with cystic fibrosis are delivered via the nationally designated service across 3 specialist centres around the country – in Aberdeen, Glasgow and Edinburgh. There is also an outreach service in Dundee. The national service shares treatment protocols and guidelines in order to maintain high standards of care across Scotland.

Additionally, there is a National Managed Clinical Network for paediatric cystic fibrosis with well-established transition into adult services.

The Scottish Government recognises the importance of health research and its contribution to improving patient outcomes and delivering improvements to patient care. Through the Chief Scientist Office the Scottish Government invests over £60m each year into health research. This resource is used to support and encourage research excellence. NHS Research Scotland supports clinical trials across the spectrum of medical conditions with further funding provided to support clinical research networks and research units.

Funding to support research is provided by research grant awards. These researcher led awards are not restricted to any particular clinical area and cover the full clinical spectrum. Further support to Scottish based research is provided by the access given to Scottish based researchers to the National Institute of Health Research.

Recent specific funded research by the Chief Scientist Office in respect to Cystic Fibrosis has been:

Although not the main funder, there are 15 other relevant active research studies in Scotland which are supported both financially and in kind by NHS Research Scotland. These trials recruit adults and children across Scotland.

NHS Boards are responsible for planning and delivering healthcare services, including specialist services, to meet the assessed needs of their resident populations, taking into account strategic frameworks and guidance, within the allocations provided

This information is not held centrally.

The core principles of dignity, respect and fairness will be at the heart of delivery of the social security system in Scotland. The Social Security (Scotland) Bill embeds these principles, including a commitment to a human-rights based approach.

Over 2,000 people with recent experience of benefits have volunteered to join our Experience Panels. They will help us design, build and improve the new system including the application process and the language we use. We are also consulting our ill-health and disability stakeholder groups on the use of inclusive language.

We have heard from individuals and organisations that there is too much focus on physical disability within the current system. We are committed to taking a different approach to social security in Scotland. We are designing our new social security system with the help of the Disability and Carers Benefits Expert Advisory Group, our reference groups and our Experience Panels, which involve over 2,400 people with recent experience of benefits and with their assistance will ensure that both mental and physical disabilities are treated equally. This includes the assessment of disability benefits from application all the way through to final decision.