Chamber and committees

The Digitisation of records is an operational responsibility of individual Health Boards and GP practices. At a national level and building on the existing use of electronic patient record systems, we are focussed on allowing medical records, including cancer, to be stored, linked, and shared securely. This will support our ambition set out in the 2021 Digital Health & Care Strategy 2021 Strategy - Digital Healthcare Scotland % (digihealthcare.scot) to make the right information available to all appropriate staff, when and where it is needed.

Teachers in Scotland are directly employed by local authorities, who will have their own local payroll arrangements; therefore provisions relating to the backdated payment of pay awards will differ between authorities. The Scottish Government does not hold data on the number of teachers in Scotland who have received backdated payments, because this data is held locally by Councils as the employer of teachers.

On 2 October 2024 the Scottish Negotiating Committee for Teachers (SNCT) issued a joint circular to local authorities regarding the agreed 4.27% pay increase for teachers, at all points in the SNCT pay scales, to be backdated to 1 August 2024.

Guidance on establishing the responsible commissioner has been issued to NHS Boards to ensure services are always provided in the best interests of the patient (CEL 06 (2013)).

As set out in this guidance and under article 2 of the Functions of Health Boards (Scotland) Order 1991, Health Boards have a responsibility to provide for the health care of patients living within their boundaries, i.e. patients who are “ordinarily resident” in their area. This includes when a Health Board refers a patient for whom they are responsible directly to another Health Board within Scotland or cross-border within the UK.

Two exceptions are designated national specialist services in both NHS Scotland and NHS England; and the commissioning of highly specialised services in NHS England. In such cases and through referral from the patient’s home Board, NHS National Services Scotland National Services Division (NSD) manages cross-border care through a financial risk share arrangement on behalf of all NHS Boards or, through an overarching Service Level Agreement in place with NHS England which allows Scottish patients to access highly specialist care.

In situations where the responsible commissioner is unclear, all facets of the NHS are expected to work together to reach agreement on a case by case basis.

In regards to reimbursement for travel specifically, a patient’s home Board is responsible for developing and applying local policy. This includes assessment of eligibility and the discretion to reimburse travel expenses where they are viewed to be an extension of treatment costs and are clinically necessary.

The Scottish Government recognises the importance of early diagnosis of cancer and would expect any child or young adult presenting with potential cancer symptoms to be assessed as quickly as possible.

To support earlier diagnosis, a clinical refresh of the Scottish Referral Guidelines for Suspected Cancer is currently underway to help ensure the right person is on the right pathway at the right time and will be published in 2025.

This will include updated guidelines for suspected cancer in children and young people. These guidelines, developed with input from clinicians in primary and secondary care and third sector, will support primary care clinicians to identify those children and young people with symptoms suspicious of cancer who require urgent assessment by a specialist.

A new primary care cancer education platform – Gateway C – was launched on 30 April 2024 across NHS Scotland. Gateway C provides innovative and tailored information to support earlier cancer diagnosis efforts and enable effective decision-making. This free online platform is accessible to all primary care clinicians and includes specific education on cancers affecting children and young people.

The duration of access to psychological support for children and young people with cancer is led by clinical need.

In December 2022 Scottish Government committed to making recurring funding available to the existing specialist psychological support services for young people with cancer across Scotland. This commitment was successfully met in 2023-24 and continues to provide more certainty to these specialist roles.

The psychological support considerations regarding specialist workforce for children and young people with cancer is currently being reviewed by the Managed Service Network for Children and Young People with Cancer (MSN CYPC) as part of a wider workforce review. The Scottish Government is in regular contact with the MSN as their review continues.

Data provided by the NHS Research Scotland Cancer Research Network on the number of blood cancer clinical studies that have been supported by the Network in each financial year since 2018-19 are shown in the following table, noting that individual studies can take a number of years to complete. The figures are inclusive of studies open to recruitment and in participant follow up in any given year, paediatric and adult studies, and public, charity, and industry sector funded studies.

This is a matter for NHS Lothian. The information requested is not held centrally.

The Scottish Government provides the overall guidance to NHS Boards for patient travel expenses reimbursement. Health Boards are responsible for developing and applying their own policies, including reimbursement rates, ensuring patient care and safety. Health Boards therefore have the discretion to provide financial support for any travel to treatment centres where deemed to be an extension of treatment and clinically necessary.

Scottish Government expects Health Boards to support patients to identify and access support available, taking account of individual circumstances and ensuring that patient care is at the centre of all decisions.

As noted in the answer to the question S6W-28172, the specialist psychological workforce for children and young people with cancer is currently being reviewed by the Managed Service Network for Children and Young People with Cancer (MSN CYPC) as part of a wider workforce review. The Scottish Government is in conversation with the MSN CYPC as their review of workforce needs continues. This will consider how best to improve access to specialist psychological support for those who need it.

The Scottish Government’s role is to set the strategic policy for the NHS in Scotland, NHS Boards are responsible for service delivery and treatment. As set out in our recently published Transport to Health Plan All Health Boards should consider patient transport needs when they plan and deliver services and must ensure Patients have access to all information on any relevant patient transport (including community transport) and travel reimbursement entitlement.

Individual Boards are responsible for developing and assessing their own policies, including determining eligibility for escorts and reimbursement rates, whilst ensuring patient care and safety.