To ask the Scottish Executive at what points in a child’s development foetal alcohol syndrome may be diagnosed and what the statistics are for each such point in each deprivation quintile in each year since 2001, broken down by NHS board.
The research base for diagnosing foetal alcohol syndrome is still being developed but current evidence indicated a number of different points in a child''s development at which foetal alcohol syndrome (FAS) can be diagnosed, up to the age of 12. Although FAS diagnosis can be made at birth, it can be easily missed if the clinical team is not alerted to look out for the diagnosis of alcohol exposed pregnancies.
National data on babies born with congenital anomalies are collected centrally in Scotland using a range of administrative NHS and GRO databases. Data are published routinely on a number of individual anomalies such as Neural Tube Defects and Down''s syndrome, with recording considered to be sufficiently robust for reporting statistics comparable to those produced by other UK and European Congenital Anomaly Registries.
Foetal alcohol syndrome, although recorded as a condition on the central databases, does not form a category that is routinely reported in Scotland. There will be an unknown level of under-reporting on the current system as, although foetal alcohol syndrome is present at birth, it may not be ascertained until later and may not be recorded unless the baby requires admission to hospital subsequent to the birth episode.
Available information on singleton babies born in Scotland with foetal alcohol syndrome for the years 2001 to 2006 (most recent available) is shown in the following table. It has not been possible to provide a breakdown by deprivation quintile and NHS board due to the very small numbers. Further background information is also attached.
Singletons born in Scotland and detected1,2,3 with foetal alcohol syndrome4,5 at birth or during infancy: numbers and rates per 1,000 births by year of birth: 2001-06
| 2001 | 2002 | 2003 | 2004 | 2005 | 2006p |
Number | 5 | 4 | 2 | 10 | 3 | 5 |
Rate per 1000 | 0.09 | 0.07 | 0.03 | 0.17 | 0.05 | 0.09 |
Source: Linked Maternity Catalog and SMR Linked Catalog. Ref: IR2009-01815 (data produced October 2008).
Notes:
1. The information given relates to each year of birth ending 31 December and is based on babies born between January 1997 and December 2005.
The data for 2006 should be considered provisional at this time.
2. Anomalies have been located from the diagnostic summaries contained within the linked source data comprising profiles of neonatal and inpatient hospital discharge records, stillbirth notifications and death registrations.
3. All infants followed up from birth for a period of one year to allow detection of anomalies from hospital inpatient records or General Register Office death registrations.
4. Using diagnosis code Q86.0 from the International Statistical Classification of Diseases and Related Health Problems “ Tenth Revision (ICD-10).