To ask the Scottish Executive how many people are currently diagnosed as suffering from cystic fibrosis in each NHS board area and how many were diagnosed, (a) 5 years ago, (b) 10 years ago, (c) 15 years ago, (d) 20 years ago, (e) 25 years ago, (f) 30 years ago, (g) 35 years ago, (h) 40 years ago and (i) 45 years ago, broken down into those aged (i) under 5, (ii) 5 to 10 (iii) 11 to 16 and (iv) over 16.
Centrally held information canprovide details for patients where cystic fibrosis is identified on their hospitalrecords. These figures
may represent an undercount of the true number ofcases because cystic fibrosis could be an underlying reason for admission to hospitaland, as such, will not always be recorded.
Table 1 presents the number ofpatients discharged from acute hospitals in Scotland with a diagnosis of cysticfibrosis broken down by health board of residence and age group. Patients with morethan one discharge in a year are only counted once in each health board and agegroup.
It is not possible to count thenumber of patients prior to 1981 as individual hospital discharge records have notbeen linked before this date.
Table 1. Number of PatientsDischarged with a Diagnosis of Cystic Fibrosis in Scotland in LastFinancial Year, Five Years Ago, 10 Years Ago, 15 Years Ago, 20 Years Ago1,2,3,4
Health Board of Residence | Age Group | Year End 31 March |
1985 | 1990 | 1995 | 2000 | 20054 |
| | 1 | 2 | 3 | 4 | 5 |
Scotland | Under 5 | 68 | 66 | 78 | 59 | 71 |
| 5 to 10 | 66 | 65 | 87 | 87 | 95 |
| 11 to 16 | 51 | 53 | 86 | 95 | 136 |
| Over 16 | 75 | 78 | 116 | 168 | 197 |
| All Ages | 260 | 262 | 367 | 409 | 499 |
Argyll and Clyde | Under 5 | 9 | 2 | 6 | 1 | 4 |
| 5 to 10 | 3 | 7 | 6 | 3 | 6 |
| 11 to 16 | 8 | 1 | 10 | 5 | 11 |
| Over 16 | 7 | 4 | 6 | 15 | 20 |
| All Ages | 27 | 14 | 28 | 24 | 41 |
Ayrshire and Arran | Under 5 | 8 | 8 | 5 | 3 | 5 |
| 5 to 10 | 5 | 6 | 5 | 7 | 4 |
| 11 to 16 | 4 | 8 | 10 | 14 | 9 |
| Over 16 | 3 | 22 | 12 | 16 | 26 |
| All Ages | 20 | 44 | 32 | 40 | 44 |
Borders | Under 5 | 1 | 2 | 1 | 1 | - |
| 5 to 10 | 2 | - | 1 | 1 | 2 |
| 11 to 16 | 1 | - | - | 2 | 2 |
| Over 16 | 1 | 1 | 3 | 2 | 4 |
| All Ages | 5 | 3 | 5 | 6 | 8 |
Dumfries and Galloway | Under 5 | 1 | 7 | 9 | 2 | 1 |
| 5 to 10 | - | 8 | 7 | 10 | 6 |
| 11 to 16 | 1 | 6 | 9 | 11 | 11 |
| Over 16 | - | 7 | 11 | 14 | 13 |
| All Ages | 2 | 28 | 36 | 37 | 31 |
Fife | Under 5 | 2 | 1 | 1 | 2 | 3 |
| 5 to 10 | 6 | 2 | 8 | 2 | 2 |
| 11 to 16 | 8 | 4 | 5 | 6 | 6 |
| Over 16 | 1 | 1 | 4 | 7 | 9 |
| All Ages | 17 | 8 | 18 | 17 | 20 |
Forth Valley | Under 5 | 4 | 11 | 9 | 7 | 2 |
| 5 to 10 | 4 | 6 | 12 | 8 | 9 |
| 11 to 16 | 4 | 3 | 7 | 9 | 16 |
| Over 16 | 2 | 6 | 14 | 18 | 21 |
| All Ages | 14 | 26 | 42 | 42 | 48 |
Grampian | Under 5 | 7 | 9 | 9 | - | 7 |
| 5 to 10 | 8 | 3 | 6 | 3 | - |
| 11 to 16 | 1 | 5 | 6 | 7 | 9 |
| Over 16 | 4 | 7 | 11 | 19 | 16 |
| All Ages | 20 | 24 | 32 | 29 | 32 |
Greater Glasgow | Under 5 | 11 | 3 | 8 | 1 | 9 |
| 5 to 10 | 9 | 4 | 5 | 10 | 9 |
| 11 to 16 | 6 | 1 | 7 | 5 | 11 |
| Over 16 | 46 | 1 | 6 | 7 | 16 |
| All Ages | 72 | 9 | 26 | 23 | 45 |
Highland | Under 5 | - | 3 | 7 | 2 | 4 |
| 5 to 10 | 4 | 4 | 5 | 8 | 5 |
| 11 to 16 | - | 4 | 4 | 3 | 11 |
| Over 16 | - | 6 | 15 | 11 | 7 |
| All Ages | 4 | 17 | 31 | 24 | 27 |
Lanarkshire | Under 5 | 8 | 16 | 22 | 8 | 11 |
| 5 to 10 | 9 | 21 | 22 | 24 | 18 |
| 11 to 16 | 7 | 11 | 15 | 23 | 38 |
| Over 16 | 4 | 16 | 19 | 28 | 33 |
| All Ages | 28 | 64 | 78 | 83 | 100 |
Lothian | Under 5 | 7 | 1 | 1 | 30 | 23 |
| 5 to 10 | 12 | 2 | - | 9 | 32 |
| 11 to 16 | 6 | 3 | 4 | 2 | 9 |
| Over 16 | 5 | 1 | 2 | 16 | 13 |
| All Ages | 30 | 7 | 7 | 57 | 77 |
Orkney | Under 5 | - | - | - | - | 2 |
| 5 to 10 | - | - | - | - | - |
| 11 to 16 | - | - | - | - | - |
| Over 16 | - | - | - | - | - |
| All Ages | - | - | - | - | 2 |
Shetland | Under 5 | 1 | - | - | - | - |
| 5 to 10 | - | - | - | - | - |
| 11 to 16 | - | - | 1 | - | - |
| Over 16 | - | - | - | - | - |
| All Ages | 1 | - | 1 | - | - |
Tayside | Under 5 | 8 | 3 | - | 2 | - |
| 5 to 10 | 4 | 2 | 7 | 1 | 2 |
| 11 to 16 | 4 | 6 | 7 | 7 | 2 |
| Over 16 | 2 | 5 | 12 | 14 | 17 |
| All Ages | 18 | 16 | 26 | 24 | 21 |
Western Isles | Under 5 | 1 | - | - | - | - |
| 5 to 10 | - | - | 3 | 1 | - |
| 11 to 16 | 1 | 1 | 1 | 1 | 1 |
| Over 16 | - | 1 | 1 | 1 | 2 |
| All Ages | 2 | 2 | 5 | 3 | 3 |
Source: ISD Scotland(SMR01).
Notes:
1. These statistics are derived from data collected ondischarges from non-obstetric and non-psychiatric hospitals (SMR01) in Scotland.
2. Cases where the patient was not admitted to hospitalare not included.
3. Up to six diagnoses (one principal, five secondary)are recorded on SMR01 returns. All six diagnoses have been used to identify cysticfibrosis. The following code was used from the International Statistical Classificationof Diseases and Other Health Related Problems, tenth revision (ICD10): E84 for dischargesfrom 1 April 1996, and ninth revision (ICD-9): 277.0 for discharges prior to 1 April1996. However, it should be noted that the use of these codes may vary from hospitalto hospital.
4. Data for year ending31 March 2005 should be treated as provisional.